The Impact of a Gluten-Free Diet on Celiac Disease: A Comprehensive Evaluation of Two Cases Using NIH Patient Reported Outcome Measures (PROMIS, NTCB, and Neuro-QoL)

Cassisi, Jeffrey E.; Ross, Emily; Vivier, Helize; James, Nicholas; Su, Le-Chu

doi:10.1007/s10880-020-09698-5

Cited by 5 publications

(8 citation statements)

References 30 publications

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“…11-16 Specifically, applications of NIH Toolbox Cognition Battery measures were reported among pediatric patients with brain tumors in both perioperative and follow-up inpatient and day treatment rehabilitation settings, 11-13 patients living with liver cirrhosis in an outpatient transplant clinic, 14 patients with dementia at a memory clinic, 15 and patients with celiac disease at a multidisciplinary outpatient gastroenterology clinic. 16…”

Section: Resultsmentioning

confidence: 99%

“…[11][12][13][14][15][16] Specifically, applications of NIH Toolbox Cognition Battery measures were reported among pediatric patients with brain tumors in both perioperative and follow-up inpatient and day treatment rehabilitation settings, [11][12][13] patients living with liver cirrhosis in an outpatient transplant clinic, 14 patients with dementia at a memory clinic, 15 and patients with celiac disease at a multidisciplinary outpatient gastroenterology clinic. 16 Study Design An observational study design was used in 39.9% (n = 112) of included records, compared with an experimental study design in 60.1% (n = 169). NIH Toolbox measures were primarily used as outcome variables (n = 250, 89.0%) and occasionally as independent (n = 9, 3.2%) or confounding (n = 6, 2.1%) variables.…”

Section: Clinical Diagnoses Representedmentioning

confidence: 99%

“…The other category (n = 40, 14.2%) contained a variety of clinical diagnoses, While most records reported applications of the NIH Toolbox in research with clinical samples, 6 reported implementation in clinical settings. [11][12][13][14][15][16] Specifically, applications of NIH Toolbox Cognition Battery measures were reported among pediatric patients with brain tumors in both perioperative and follow-up inpatient and day treatment rehabilitation settings, [11][12][13] patients living with liver cirrhosis in an outpatient transplant clinic, 14 patients with dementia at a memory clinic, 15 and patients with celiac disease at a multidisciplinary outpatient gastroenterology clinic. 16 Study Design An observational study design was used in 39.9% (n = 112) of included records, compared with an experimental study design in 60.1% (n = 169).…”

Section: Clinical Diagnoses Representedmentioning

confidence: 99%

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Uses of the NIH Toolbox® in Clinical Samples

et al. 2022

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Background and ObjectivesThe NIH Toolbox® for the Assessment of Neurologic and Behavioral Function is a compilation of computerized measures designed to assess sensory, motor, emotional, and cognitive functioning of individuals across the life span. The NIH Toolbox was initially developed for use with the general population and was not originally validated in clinical populations. The objective of this scoping review was to assess the extent to which the NIH Toolbox has been used with clinical populations.MethodsGuided by the Joanna Briggs Methods Manual for Scoping Reviews, records were identified through searches of PubMed MEDLINE, PsycINFO, ClinicalTrials.gov, EMBASE, and ProQuest Dissertations and Theses Global (2008–2020). Database searches yielded 5,693 unique titles of original research that used at least one NIH Toolbox assessment in a sample characterized by any clinical diagnosis. Two reviewers screened titles, abstracts, and full texts for inclusion in duplicate. Conflicts at each stage of the review process were resolved by a group discussion.ResultsUltimately, 281 publication records were included in this scoping review (nJournal Articles = 104, nConference Abstracts = 84, nClinical Trial Registrations = 86, and nTheses/Dissertations = 7). The NIH Toolbox Cognition Battery was by far the most used of the 4 batteries in the measurement system (nCognition = 225, nEmotion = 49, nMotor = 29, and nSensation = 16). The most represented clinical category was neurologic disorders (n = 111), followed by psychological disorders (n = 39) and cancer (n = 31). Most (96.8%) of the journal articles and conference abstracts reporting the use of NIH Toolbox measures with clinical samples were published in 2015 or later. As of May 2021, these records had been cited a total of nearly 1,000 times.DiscussionThe NIH Toolbox measures have been widely used among individuals with various clinical conditions across the life span. Our results lay the groundwork to support the feasibility and utility of administering the NIH Toolbox measures in research conducted with clinical populations and further suggest that these measures may be of value for implementation in fast-paced clinical settings as part of routine practice.

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Section: Resultsmentioning

confidence: 99%

Section: Clinical Diagnoses Representedmentioning

confidence: 99%

Section: Clinical Diagnoses Representedmentioning

confidence: 99%

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Uses of the NIH Toolbox® in Clinical Samples

et al. 2022

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“…Así mismo, la organización de la sociedad puede afectar la DSG facilitando el acceso a un menú sin gluten en los lugares públicos y comedores estudiantiles. Estos aspectos organizativos son más comunes en sociedades con mucho conocimiento y preocupación por la EC 4,18,19 . La asistencia a sociedades de celiacos permite a los mismos contar con grupos de autoayuda 14,20 .…”

Section: Muestra Final N=364unclassified

Facilidades y barreras para la dieta sin gluten de personas con enfermedad celiaca del Paraguay

Delor¹,

Chamorro-Aguilera

2021

Rev Esp Nutr Hum Diet

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Introducción: el tratamiento de la enfermedad celiaca es la dieta sin gluten, la cual requiere para ser realizada de conocimientos, destrezas y actitudes de los afectados, además de un entorno social propicio. El objetivo fue determinar las circunstancias que facilitan y dificultan la dieta sin gluten en los sujetos con enfermedad celiaca del Paraguay en 2021. Material y métodos: se realizó un estudio exploratorio descriptivo. Se aplicó una encuesta telemática a los adultos, adolescentes y padres de niños con enfermedad celiaca que aceptaban participar voluntariamente. Se midieron variables demográficas, clínicas y 17 aspectos que se presumen son factores facilitadores o barreras para la dieta sin gluten. El estudio fue aprobado por el Comité de Ética de la Universidad Privada del Este, Paraguay. Resultados: se incluyeron 364 encuestas, siendo 85% de adultos. Las circunstancias identificadas como facilitadores fueron los conocimientos propios y los impartidos por el personal de salud sobre la celiaquía, además del poco miedo a la opinión de los demás y los escasos sentimientos de vergüenza por la restricción dietética. En contraste, los factores considerados como barreras fueron el escaso conocimiento de la sociedad sobre las exigencias alimentarias, la poca participación de los encuestados en los grupos de autoayuda y el costo elevado de los alimentos sin gluten. Conclusión: se describen las circunstancias que pueden facilitar y obstaculizar la dieta sin gluten en los portadores de enfermedad celiaca del Paraguay. Se sugieren estudios analíticos para evaluar la influencia exacta de los mismos y aplicar medidas correctivas para disminuir las barreras para la adherencia esta dieta.

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“…However, the findings of whether there is a real correlation between disease activity (intestinal symptoms) and cognitive impairments remain controversial (Casella et al, 2012; Hu et al, 2006; Makhlouf et al, 2018). Evidence regarding the impairment of neuropsychiatric symptoms with the healing of intestinal mucosa after GFD initiation is also conflicting; some previous studies have reported the beneficial outcomes of GFD on cognitive impairments (Cassisi et al, 2020; Kristensen et al, 2019; Lichtwark et al, 2014), while others have not (Briani et al, 2008; Casella et al, 2012; Makhlouf et al, 2018). The disparity in previous findings can be explained by the variation in cognitive dysfunction, techniques used in neuropsychological testing, and the timing of GFD initiation where retardation decreases its efficiency (Makhlouf et al, 2018).…”

Section: Introductionmentioning

confidence: 99%

A Clinical Investigation on ADHD-Traits in Childhood Celiac Disease

Efe

Tok

2023

J Atten Disord

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Objective: There are no definitive results about either the presence of exact comorbidity between celiac disease (CD) and attention-deficit/hyperactivity disorders (ADHD) or etiology. We intend to screen ADHD-related cognitive and behavioral traits in children with biopsy-proven CD and investigate the possible association of these traits with certain vitamin levels, body-mass index, and gluten-free diet (GFD) compliance. Method: A total of 85 children with biopsy-proven CD (the ages of 8–18 years) were compared with age and sex-matched 72 healthy controls in terms of demographics, psychiatric symptoms, certain vitamin levels, and anthropometric measurements. Results: ADHD-like cognitive issues, such as inattention and learning difficulties, as well as psychosomatic symptoms and poor prosocial behavior, were all associated with GFD noncompliance in childhood CD. Conclusion: Untreated CD may predispose to ADHD-resembling symptoms. Physicians should be aware of the probability of ADHD misdiagnosing due to ADHD-resembling cognitive and behavioral traits in untreated CD.

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The Impact of a Gluten-Free Diet on Celiac Disease: A Comprehensive Evaluation of Two Cases Using NIH Patient Reported Outcome Measures (PROMIS, NTCB, and Neuro-QoL)

Cited by 5 publications

References 30 publications

Uses of the NIH Toolbox® in Clinical Samples

Uses of the NIH Toolbox® in Clinical Samples

Facilidades y barreras para la dieta sin gluten de personas con enfermedad celiaca del Paraguay

A Clinical Investigation on ADHD-Traits in Childhood Celiac Disease

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