The Health Care Experiences of the Preschool Child With Autism

Bultas, Margaret W.

doi:10.1016/j.pedn.2011.05.005

Cited by 41 publications

(48 citation statements)

References 34 publications

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“…ASD is characterized by restricted behaviours and activities as well as deficits in communication (American Psychiatric Association, ). Consequently, certain antecedent conditions may evoke challenging behaviour in children with ASD (Bultas, ). Parents have identified common antecedents, functions, and consequences of child problem behaviour in a number of studies (Bultas, McMillin, & Zand, ).…”

Section: Resultsmentioning

confidence: 99%

Medical care experiences of children with autism and their parents: A scoping review

Wilson¹,

Peterson

2018

Child

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Children with autism spectrum disorder (ASD) and their families may benefit from the provision of additional supports in health care settings, particularly when preparing for and attending medical appointments. This review examined literature that describes experiences in medical care settings from the perspective of patients under age 18 with ASD and their caregivers. A scoping review was conducted to examine the experiences of children with ASD and their families in medical care settings. Twenty-nine studies meeting inclusion criteria were identified and reviewed. The review indicated a number of challenges (e.g., parent-reported problems in parent-provider communication and overwhelming environments) as well as factors that facilitate positive experiences (e.g., providing positive reinforcement and explaining exam steps) during medical appointments. Children with ASD and their families are faced with many challenges while receiving care in medical settings. The present review identified many challenges families face, as well as facilitators of positive experiences. Understanding the unique experiences of patients with ASD and their parents will help to improve experiences in medical care settings for children, caregivers, and health care providers.

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Section: Resultsmentioning

confidence: 99%

Medical care experiences of children with autism and their parents: A scoping review

Wilson¹,

Peterson

2018

Child

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“…Put simply, when unaware to the child's disability, the nurses did not have the chance to specifically prepare for the child. Previous research has revealed that the absence of any structure in place for preparation, the knowledge and the attitude of the nurse can only help a child with ASD to a limited extent (17,24,29,30). This study's findings occasionally revealed special and experienced staff working with these children in certain departments.…”

Section: Discussionmentioning

confidence: 68%

“…This study showed that parents often experienced meeting new people who lacked knowledge of the child or knowledge about his or her disorder. Bultas (2012) found that healthcare personnel often did not fully understand the precise impacts of the disorder on the child, nor did these personnel understand how the manifestations of ASD would affect the child's hospital visit. In these instances, parents felt ignored by the staff, even regarding small requests that would serve to reduce the anxiety of their child (30).…”

Section: Discussionmentioning

confidence: 99%

“…Bultas (2012) found that healthcare personnel often did not fully understand the precise impacts of the disorder on the child, nor did these personnel understand how the manifestations of ASD would affect the child's hospital visit. In these instances, parents felt ignored by the staff, even regarding small requests that would serve to reduce the anxiety of their child (30). When only one or two nurses are dedicated to working with children with ASD, the administration of healthcare and adequate care provision can become vulnerable.…”

Section: Discussionmentioning

confidence: 99%

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Perioperative and Anesthesia Guidelines for Children with Autism: A Nationwide Survey from Sweden

Berglund

Huus

Enskär

et al. 2016

J Dev Behav Pediatr

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Perioperative and anesthesia guidelines for children with autism: A nationwide survey from Sweden. Developmental and Behavioral Pediatrics, 37(6) The overall aim of this study was to describe the current set of guidelines for the preparation and care for children with Autism spectrum disorder (ASD) in the perioperative setting across Sweden and explore the content of these guidelines in detail. Method: An online questionnaire was distributed to the chairpersons of all anesthesia departments (n= 68) and pediatric departments (n= 38) throughout Sweden. Follow-up phone calls were made to those departments that did not return the questionnaire. The presence of guidelines was analyzed via descriptive statistics. These guidelines and comments on routines used in these departments were analyzed inspired by conventional content analysis. Results: Seven out of the 68 anesthesia departments and none out of the 38 pediatric departments across Sweden have guidelines for preparing and/or administering care to children with ASD within the perioperative setting. From the guidelines and routines used, 3 categories emerge: "lacking the necessary conditions," "no extra considerations needed" and "care with specific consideration for children with ASD." These 3 categories span a continuum in the care. In the first category, the anesthesia induction could result in the child with ASD being physically restrained. In the last category, the entire encounter with the health care service would be adapted to the specific needs of the child. Conclusion: There is a lack of evidence-based guidelines specifically designed to meet the needs of children with ASD in the preoperative period in Sweden. Further research is needed to understand if children with ASD would benefit from evidence-based guidelines. Journal of

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“…Children with autism often find the experience of attending a medical setting frightening because of their inability to cope with change and comprehend what is happening to and around them (Bultas, 2012;Jones, 2006;Vaz, 2010). Sensory overload from lighting, noise, crowded and busy areas, as well as unpredictability of waiting times may result in overwhelming anxiety, withdrawal, or negative behavioural outbursts (Sanz-Cervera et al, 2015;Vaz, 2010).…”

Section: Introductionmentioning

confidence: 99%

Continuous Service Quality Improvement and Change Management for Children and Young People with Autism and Their Families: A Model for Change

Kennedy

Binns

Brammer

et al. 2016

Comprehensive Child and Adolescent Nursing

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A case study approach was used that included data collection from a wide range of sources, e.g., a stakeholder conference, audit, questionnaires, and evaluative feedback from carers, families, staff, and Autism Champions. Integrated pathways for patient care improvement were developed. Families and carers were involved in raising awareness of the needs of children with autism and policy development to meet these needs. Increased involvement from interdisciplinary working strengthened the work of the Recognising Autism Management Programme (RAMP) and improved patient care outcomes. The interventions undertaken by the RAMP resulted in improved patient /carer satisfaction, the reduction of challenging behaviour, complaints, and treatment refusal. The Autism Champions played a significant role in signposting resources and the cascading of education and practice development. All children and young people (0-25 years) on the Autism Spectrum and their families benefit from safe, individualised, high quality care in a supportive environment. Education of staff and families and targeted actions in adapting attitudes and behaviours in communication and care management will result in positive experiences for staff, children and families and financial benefit to the NHS Trust by reducing cancellation of appointments and operating theatre slots. ARTICLE HISTORY

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The Health Care Experiences of the Preschool Child With Autism

Cited by 41 publications

References 34 publications

Medical care experiences of children with autism and their parents: A scoping review

Medical care experiences of children with autism and their parents: A scoping review

Perioperative and Anesthesia Guidelines for Children with Autism: A Nationwide Survey from Sweden

Continuous Service Quality Improvement and Change Management for Children and Young People with Autism and Their Families: A Model for Change

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