The health care experience of patients with cancer during the last year of life: Analysis of the SEER‐CAHPS data set

Halpern, Michael T.; Urato, Matthew; Kent, Erin E.

doi:10.1002/cncr.30319

Cited by 25 publications

(23 citation statements)

References 30 publications

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“… 4 , 19 , 20 , 21 , 22 , 23 , 24 , 25 , 26 , 27 , 28 These studies showed that overall, younger patients reported less positive experiences than older ones, 20 , 22 , 24 females reported less positive experiences than males, 20 and non-white patients reported less positive experiences than those from the white population. 4 , 20 , 22 , 29 Similar variation in cancer patients’ experiences by their sex, age, and ethnicity were also found in studies from USA, 30 , 31 , 32 and Canada. 33 …”

Section: Resultssupporting

confidence: 70%

“…The number of negative comments about care experiences varied by gender, age, employment status, and cancer type. Halpern et al., 2017 31 The health care experience of patients with cancer during the last year of life: Analysis of the SEER-CAHPS data set Cross-sectional study using the SEER- CAHPS data between 1998 and 2011 for patients with all cancer types in the dataset To assess factors influencing cancer patients’ experiences among individuals within one year before death. 1 Patients with higher general or mental health status were significantly more likely to report excellent experiences across all the measures examined.…”

Section: Resultsmentioning

confidence: 99%

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Factors influencing cancer patients’ experiences of care in the USA, United Kingdom, and Canada: A systematic review

et al. 2022

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Section: Resultssupporting

confidence: 70%

Section: Resultsmentioning

confidence: 99%

Factors influencing cancer patients’ experiences of care in the USA, United Kingdom, and Canada: A systematic review

et al. 2022

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“…12 The possibility of an association between patient experience and survival has not often been investigated in a cancer care setting. Sociodemographic and systemic variations in patient experience with cancer care have been documented in several studies from the United States 13,14 and England. [15][16][17][18][19] Some of the factors associated with poorer experience such as lower socioeconomic status are also associated with poorer outcomes raising the question of whether an independent association exists between patients' experiences of cancer care and their survival.…”

Section: Introductionmentioning

confidence: 99%

How have Patients' Experiences of Cancer Care Been Linked to Survival? A Systematic Review

Alessy¹,

Lüchtenborg²,

Davies³

2019

Patient Experience Journal

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Patient experience of care remains an important indicator of health care quality. Although studies show care experiences are associated with health outcomes for some conditions, the situation for cancer is unclear. New datasets on cancer patients in the US, Canada, and UK linking information on experiences and survival may enable an exploration of any association. This review aimed to identify studies linking any aspect of cancer patients' experiences to their survival, to inform future analyses. We performed a systematic review using Medline database from January 1998 until March 2018. The settings included outpatient oncology clinics, primary care, hospitals, and cancer centres. The participants included adult patients from different demographic groups. 16 Studies (ten observational, two clinical trials, two qualitative, and two consecutive case series) describing a wide range of settings, populations and methods met our inclusion criteria. Patients' experiences were mostly linked to survival in quantitative studies. Satisfaction with care and psychosocial support were the aspects of experience associated with survival. Although positive associations between experience and survival were more common, negative and lack of association findings were also reported. Overall, there was no agreement on the strength, direction of the association, and the type of measurements to use. In conclusion, a wide range of studies suggest a relationship may exist between patients' experiences of cancer care and their survival. However, this relationship is complex and methodological challenging to study. Future research should carefully consider different aspects of patient experience and care and the way in which they may affect cancer survival.

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“…Molecular diagnostics supported by genomic profiling allow applied novel targeted therapies to effectively treat patients, tailoring the treatment to target their unique tumor characteristics (Al-Rohil et al, 2016). Several patient surveys, including Patient Reported Experience Measures (PREMs), have been developed to identify priorities of patient experiences and preferences (Weldring and Smith, 2013; Taylor et al, 2015; Tremblay et al, 2015; Windham et al, 2015; Burns et al, 2016; Halpern et al, 2016). Alongside this gradual shift toward personalized medicine, importance of patient engagement is also increasingly recognized (Tremblay et al, 2015; King et al, 2016; Schnipper et al, 2016).…”

Section: Introductionmentioning

confidence: 99%

Overview on Patient Centricity in Cancer Care

et al. 2017

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Successful implementation of treatment in cancer care partially depends on how patients' perspectives are taken into account, as preferences of health care professionals and patients may differ. Objectives of this exploratory research were (I) to identify patient preferences and values (PPVs) in cancer care as indicated by patient organizations (POs), (II) to determine how these PPVs are captured in cancer care guidelines and (III) to review how guidelines take into account these PPVs. Based on a survey developed and completed by 19 POs, a literature review was conducted to analyse how patient perspectives are incorporated in oncology treatment guidelines. Based on survey results traditional health technology assessment value propositions of oncology care, such as extended life, treatment-free remission and pain reduction, were also highly rated by POs. However, the heterogeneity of cancer PPVs were clearly reflected in the survey results. PPVs in cancer care guidelines were mostly limited to those micro-level aspects that are strictly related to health care provision, such as side-effects and comorbidities. Patient experience, emotional support and convenience of care were relatively neglected fields in the reviewed guidelines. Patient engagement was rarely presented in the guideline development phase. POs believe that patients should be encouraged to take an active role in their own care due to the heterogeneity of cancer patients and PPVs. Even if patient-centricity is a leading paradigm in cancer policy, based on our research it is not yet standard practice to include patients or POs at all appropriate levels of decision-making processes that are related to their health and well-being. Patient engagement should be an integral part of cancer care decision-making. This complexity must be reflected throughout policy making, avoiding a population level “one-size-fits-all” solution.

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The health care experience of patients with cancer during the last year of life: Analysis of the SEER‐CAHPS data set

Cited by 25 publications

References 30 publications

Factors influencing cancer patients’ experiences of care in the USA, United Kingdom, and Canada: A systematic review

Factors influencing cancer patients’ experiences of care in the USA, United Kingdom, and Canada: A systematic review

How have Patients' Experiences of Cancer Care Been Linked to Survival? A Systematic Review

Overview on Patient Centricity in Cancer Care

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