Factors influencing cancer patients’ experiences of care in the USA, United Kingdom, and Canada: A systematic review

Alessy, Saleh A.; Mohammed, Ahmed; Rawlinson, Janette; Baker, Matthew; Davies, Elizabeth

doi:10.1016/j.eclinm.2022.101405

Cited by 29 publications

(25 citation statements)

References 70 publications

(163 reference statements)

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“…This study revealed present challenges that medical oncologists encounter when delivering important and sensitive information to patients during a consultation. The application to the current practice of cancer medicine is evident—patient understanding of treatment intent and prognosis were areas that need the most improvement—similar to what has been previously published 2–16 . Small but impactful changes such as focusing the discussion on defining key phrases like “curative vs. palliative treatment intent” and “median survival” can be made relatively quickly.…”

Section: Discussionmentioning

confidence: 61%

“…[2][3][4][5][6][7] Prognostic disclosure following a cancer diagnosis has been a more difficult topic for physicians to address across all parts of the world. [8][9][10][11][12][13][14][15][16] In a multicenter study, over 70% of patients diagnosed with metastatic solid malignancies in the United States wanted to be told their life expectancy. 10 However, only 17.6% recalled a prognosis being disclosed by their oncologists.…”

Section: Introductionmentioning

confidence: 99%

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First impressions: A prospective evaluation of patient–physician concordance and satisfaction following the initial medical oncology consultation

Bach,

Panov,

Espin‐Garcia

et al. 2023

Cancer Medicine

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BackgroundAn especially significant event in the patient–oncologist relationship is the initial consultation, where many complex topics—diagnosis, treatment intent, and often, prognosis—are discussed in a relatively short period of time. This study aimed to measure patients' understanding of the information discussed during their first medical oncology visit and their satisfaction with the communication from medical oncologists.MethodsBetween January and August 2021, patients without prior systemic treatment of their gastrointestinal malignancy (GI) attending the Princess Margaret Cancer Centre (PMCC) were approached within 24 h of their initial consultation to complete a paper‐based questionnaire assessing understanding of their disease (diagnosis, treatment plan/intent, and prognosis) and satisfaction with the consultation. Medical oncology physicians simultaneously completed a similar questionnaire about the information discussed at the initial visit. Matched patient–physician responses were compared to assess the degree of concordance.ResultsA total of 184 matched patient–physician surveys were completed. The concordance rates for understanding of diagnosis, treatment plan, treatment intent, and prognosis were 92.9%, 59.2%, 66.8%, and 59.8%, respectively. After adjusting for patient and physician variables, patients who reported treatment intent to be unclear at the time of the consultation were independently associated with lower satisfaction scores (global p = 0.014). There was no statistically significant association between patient satisfaction and whether prognosis was disclosed (p = 0.08).ConclusionAn in‐depth conversation as to what treatment intent and prognosis means is reasonable during the initial medical oncology consultation to ensure patients and caregivers have a better understanding about their cancer.

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Section: Discussionmentioning

confidence: 61%

Section: Introductionmentioning

confidence: 99%

First impressions: A prospective evaluation of patient–physician concordance and satisfaction following the initial medical oncology consultation

Bach,

Panov,

Espin‐Garcia

et al. 2023

Cancer Medicine

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“…It was concerning to find that only 60% of participants were satisfied with their physicians’ concerns about their overall well-being (Table 4 ). Patient dissatisfaction with physician support during care is not isolated to this region [ 11 , 12 ]. Coronado et al believe the impact of the patient-provider relationship can affect the survivorship experience, since patients and caregivers who perceive care interactions as supportive, will tend to trust their recommendations for treatment [ 13 ].…”

Section: Resultsmentioning

confidence: 99%

Perception of Survivorship Needs Among Breast Cancer Patients in Trinidad and Tobago

Samaroo¹,

Hosein²,

Ali³

2023

Cureus

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The perception of survivorship among the cancer communities of the Caribbean is largely unknown. This study focused on determining the perception and interest in cancer survivorship among breast cancer (BC) patients in Trinidad and Tobago, as a preliminary, to introducing a pilot survivorship program and evaluating its impact on this patient population. Participants were given a questionnaire to determine needs, expectations and interest in survivorship care. Baseline measurable outcomes reported in this article include the following: 1. Participants' satisfaction with their medical care follow-up plan (if any), 2. Participants' satisfaction with the amount of information provided by healthcare providers, and 3. Participants' satisfaction with their physician's overall concern about their well-being, ranked on a 5-point Likert scale. Participants also reported on the advice/ guidelines provided by their physicians, after surgery and/or on completion of treatment, what they did to cope with BC, and their expectations of what could have been done to improve the quality of care received. A second questionnaire was then used to measure the level of interest in participating in a Cancer Survivorship Program (CSP) with components such as: nutrition, psychosocial development, spiritual well-being, and yoga and mindfulness. The level of interest was ranked by participants on a 5-point Likert scale. Fifteen themes emerged from participants' responses to the first questionnaire. Nutrition stood out as the module of highest interest, followed by psychosocial development among BC patients.

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“…In its original design, the survey did not collect any information regarding many common sampling characteristics (race, ethnicity, socioeconomic status, medical co-morbidities, etc) that could impact survey results ( 26 – 28 ), thus making generalization to other institutions limited.…”

Section: Discussionmentioning

confidence: 99%

Inpatient Experience Surveys and Overall Hospital Rating: A Correlation Analysis for a Private Hospital in Central America

Riopel

Cubilla-Batista

Romero-Romero

et al. 2022

Journal of Patient Experience

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Objectives: To validate the use of a patient experience survey composed of the Spanish version of the Hospital Consumer Assessment of Healthcare Providers and Systems (HCAHPS) survey and of questions locally created in our institution, a private hospital in Panama. To identify which domains of our patient experience survey have the strongest association with the overall inpatient hospital experience rating. Methods: A retrospective analysis of 1619 electronic survey results of adult inpatient experience data was performed using exploratory factor and Pearson correlation analyses. The data was collected between March 2018 and December 2019 from a web-survey application, accessible through a link sent by email after hospital discharge. Results: Results from analyses showed that questions grouping occurred under the same domains as the HCAHPS English version (factor loading 0.456 to 0.918) and that a new domain named administrative processes (0.818 to 0.846) arose for the newly created questions. Cronbach's alpha values ranged from 0.32 to 0.85, with an α of0.65 for the new local questions. Correlation analyses were higher for the domains of communication from nurses (0.670) and administrative processes (0.618). Conclusions: Our investigation validates the use of our patient experience survey, composed of questions from the Spanish version of the HCAHPS survey and locally created ones. In our institution, communication from nurses is most correlated with the inpatient hospital experience rating. Hospital administrative processes were also strongly associated with the overall inpatient hospital rating, and we argue that these later aspects should be addressed to improve the patient experience.

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Factors influencing cancer patients’ experiences of care in the USA, United Kingdom, and Canada: A systematic review

Cited by 29 publications

References 70 publications

First impressions: A prospective evaluation of patient–physician concordance and satisfaction following the initial medical oncology consultation

First impressions: A prospective evaluation of patient–physician concordance and satisfaction following the initial medical oncology consultation

Perception of Survivorship Needs Among Breast Cancer Patients in Trinidad and Tobago

Inpatient Experience Surveys and Overall Hospital Rating: A Correlation Analysis for a Private Hospital in Central America

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