The Grief of Mothers After the Sudden Unexpected Death of Their Infants

Goldstein, Richard D.; Lederman, Ruth I.; Lichtenthal, Wendy G.; Morris, Sue; Human, Melanie; Elliott, Amy J.; Tobacco, Deb; Angal, Jyoti; Odendaal, Hein J.; Kinney, Hannah C.; Prigerson, Holly G.

doi:10.1542/peds.2017-3651

Cited by 37 publications

(32 citation statements)

References 46 publications

(40 reference statements)

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“…On the level of those affected, bereaved parents associate blame and judgment with the use of different terms [27], with ASSB and undetermined cause of death carrying a stigma of implied blame, even when evidence does not support that parents have caused harm. Parents suffer from severe grief-related symptoms [28], and few options are available to obtain enhanced diagnostics for better explanations, despite recent advances in undiagnosed diseases [29].…”

Section: The Problemmentioning

confidence: 99%

Inconsistent classification of unexplained sudden deaths in infants and children hinders surveillance, prevention and research: recommendations from The 3rd International Congress on Sudden Infant and Child Death

Goldstein

Blair

Sens

et al. 2019

Forensic Sci Med Pathol

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This report details the proceedings and conclusions from the 3rd International Congress on Unexplained Deaths in Infants and Children, held November 26–27, 2018 at the Radcliffe Institute at Harvard University. The Congress was motivated by the increasing rejection of the diagnosis Sudden Infant Death Syndrome (SIDS) in the medical examiner community, leading to falsely depressed reported SIDS rates and undermining the validity and reliability of the diagnosis, which remains a leading cause of infant and child mortality. We describe the diagnostic shift away from SIDS and the practical issues contributing to it. The Congress was attended by major figures and opinion leaders in this area from countries significantly engaged in this problem. Four categories (International Classification of Diseases (ICD)-11 categories of MH11, MH12, MH14, PB00-PB0Z) were recommended for classification, and explicit definitions and guidance were provided for death certifiers. SIDS was reframed as unexplained sudden death in infancy or SIDS/MH11 to emphasize that either term signifies the lack of explanation following a rigorous investigation. A distinct category for children over the age of 1 was recommended (MH12). Definitions and exclusions were provided for the alternative categories of accidental asphyxia and undetermined. As recommended, unexplained sudden death in infancy or SIDS on a death certificate will code a unique, trackable entity, accurately reflecting the inability to determine a definitive explanation, while satisfying surveillance needs and reliable identification for research efforts. The conclusions will be submitted to the World Health Organization for inclusion in the upcoming ICD-11.

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Section: The Problemmentioning

confidence: 99%

Inconsistent classification of unexplained sudden deaths in infants and children hinders surveillance, prevention and research: recommendations from The 3rd International Congress on Sudden Infant and Child Death

Goldstein

Blair

Sens

et al. 2019

Forensic Sci Med Pathol

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“…The seriousness of such losses is also reflected in several studies that have shown increased mortality over many years among parents who lose children, especially among mothers (Espinosa & Evans, 2013;Harper, O'Connor, & O'Carroll, 2011;Li, Precht, Mortensen, & Olsen, 2003;Rostila, Saarela, & Kawachi, 2011). A very high incidence of psychological difficulties (K. Dyregrov, Nordanger, & Dyregrov, 2003;Murphy, Johnson, & Lohan, 2002), prolonged grief disorder (PGD) (Goldstein et al, 2018) and functional impairment (Wilcox, Mittendorfer-Rutz, Kjeldgård, Alexanderson, & Runeson, 2015) has been found years after the death of a child.…”

Section: Introductionmentioning

confidence: 99%

Parental Relationships following the Loss of a Child

Dyregrov

Gjestad

Dyregrov

2019

Journal of Loss and Trauma

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To enhance understanding of parental relationships following the loss of a child, a questionnaire was sent to members of Norwegian bereavement support organizations. The sample consisted of 175 couples. Using the Dyadic Adjustment Scale (DAS), we found that an individual's ability to talk to a partner about own feelings positively correlated with fewer problems and higher satisfaction and cohesion in the couples. Couples felt closer to one another following the loss and were pleased with their relationship. Early intervention may help couples navigate the changes necessitated in a relationship by the loss of a child and prevent negative dyadic changes.

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“…In comparison to its population, South Asia has the highest number of studies per slum inhabitant (Table 3). Most of the studies were conducted in India (109) and Bangladesh (30). In contrast to the high number of studies for the slums of Nairobi, the medical studies for India are spread across the whole country (cf.…”

Section: Fstmentioning

confidence: 99%

“…Looking at the cross-national scale, only eight studies are available. There is one cross-national study on communicable diseases [84] in Burkina Faso and Kenya, one on malnutrition between Chile and Kenya [106], one on nurturing care in Angola and Kenya [107], one on contraceptive methods in Bangladesh and Kenya [108], one on early child loss in South Africa and India [109], and three non-specific on noise annoyance and sensitivity [110] between dwellers of informal settlements in South Africa and inhabitants of Switzerland, one on community health in three Melanesian countries [111], and one on urban growth and water access in sub-Saharan Africa [112].…”

Section: Analysis By Scalementioning

confidence: 99%

Slums, Space, and State of Health—A Link between Settlement Morphology and Health Data

Friesen

Dietrich

et al. 2020

IJERPH

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Approximately 1 billion slum dwellers worldwide are exposed to increased health risks due to their spatial environment. Recent studies have therefore called for the spatial environment to be introduced as a separate dimension in medical studies. Hence, this study investigates how and on which spatial scale relationships between the settlement morphology and the health status of the inhabitants can be identified. To this end, we summarize the current literature on the identification of slums from a geographical perspective and review the current literature on slums and health of the last five years (376 studies) focusing on the considered scales in the studies. We show that the majority of medical studies are restricted to certain geographical regions. It is desirable that the number of studies be adapted to the number of the respective population. On the basis of these studies, we develop a framework to investigate the relationship between space and health. Finally, we apply our methodology to investigate the relationship between the prevalence of slums and different health metrics using data of the global burden of diseases for different prefectures in Brazil on a subnational level.

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The Grief of Mothers After the Sudden Unexpected Death of Their Infants

Cited by 37 publications

References 46 publications

Inconsistent classification of unexplained sudden deaths in infants and children hinders surveillance, prevention and research: recommendations from The 3rd International Congress on Sudden Infant and Child Death

Inconsistent classification of unexplained sudden deaths in infants and children hinders surveillance, prevention and research: recommendations from The 3rd International Congress on Sudden Infant and Child Death

Parental Relationships following the Loss of a Child

Slums, Space, and State of Health—A Link between Settlement Morphology and Health Data

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