The experiences and acceptability of a novel multimodal programme for the management of fibromyalgia: A qualitative service evaluation

McIlroy, Suzanne; Vaughan, Bethany; Crowe, H. Warren; Bearne, Lindsay

doi:10.1002/msc.1672

Cited by 4 publications

(1 citation statement)

References 55 publications

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“…Some studies offer a general exploration of the experiences of those living with FM (e.g. Arnold et al., 2008; Ashe et al., 2017; Boulton, 2019; Climent‐Sanz et al., 2021; Vall‐Roqué et al., 2024), while others delve into specific aspects, such as healthcare services utilisation, medications or particular interventions (e.g., Beltrán‐Carrillo et al., 2013; Durif‐Bruckert et al., 2015; Mailen Arfuch et al., 2021; Mcllroy et al., 2022). Some also include perspectives from health professionals (Briones‐Vozmediano et al., 2013).…”

Section: Introductionmentioning

confidence: 99%

Written narratives to understand the experience of individuals living with fibromyalgia

Serrat,

Sora,

Ureña

et al. 2024

Musculoskeletal Care

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PurposeTo explore the experiences of individuals with fibromyalgia (FM) through written narratives (WN) and to preliminarily investigate the potential value of these narratives for healthcare professionals in assessing the overall perceived severity and disability experienced by individuals with FM.Materials and methodsThis cross‐sectional study was conducted with 46 participants with a FM diagnosis. They were asked to complete a WN task that aimed to capture their personal experiences. The degree of severity and disability expressed in their texts was assessed by researchers, and participants were also asked to complete the Revised Fibromyalgia Impact Questionnaire (FIQR), the Hospital Anxiety and Depression Scale (HAD), and the Tampa Scale for Kinesophobia.Results and conclusionsEight main themes were identified after qualitatively analysing the narratives provided by participants: story of their illness, FM characteristics, other illnesses, impact, coping strategies, social support, pain triggers and treatments. Pain emerges as a profound symptom affecting mental, physical, and social well‐being, with diverse triggers and coping mechanisms. Participants highlighted difficulties in the diagnostic process, used multiple treatment strategies, and expressed a lack of understanding from healthcare professionals and society. There were significant correlations between researchers' assessments of severity and disability of the writings and FIQR and HAD scores. This study emphasises the value of narratives in capturing the multifaceted nature of FM experiences and hints at their potential for clinical understanding and management.

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Section: Introductionmentioning

confidence: 99%

Written narratives to understand the experience of individuals living with fibromyalgia

Serrat,

Sora,

Ureña

et al. 2024

Musculoskeletal Care

View full text Add to dashboard Cite

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The experiences and acceptability of a novel multimodal programme for the management of fibromyalgia: A qualitative service evaluation

McIlroy

Vaughan

Crowe

et al. 2022

Musculoskeletal Care

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Multi-disciplinary community-based group intervention for fibromyalgia: a pilot randomized controlled trial

et al. 2023

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Fibromyalgia is characterized by widespread pain, fatigue, sleep disturbances, mood disturbances, and cognitive impairment. Most individuals with fibromyalgia experience poorly managed symptoms and increased healthcare service use. Multicomponent therapies, with a focus on nonpharmacological modalities, are increasingly supported in the literature. However, given the limited resources available, implementation in smaller communities remains a challenge. This research tested a community-based multidisciplinary group intervention for individuals diagnosed with FM living in a small urban centre. The primary outcome was perceptions of quality of care and secondary outcomes included disease-related functioning, anxious and depressive symptoms, pain beliefs, and health service utilization. A pilot randomized control trial was conducted in which 60 patients diagnosed with fibromyalgia were randomized into a 10-week community-based multidisciplinary group intervention program or usual care. Treatment components included twice-weekly exercise sessions and weekly education sessions (e.g., pain education, cognitive behavioral strategies for stress, nutrition, peer support). The trial (NCT03270449) was registered September 1 2017. Statistically significant post-intervention improvements were found in the primary outcome, perceived quality of care (Cohen’s d = 0.61, 0.66 for follow up care and goal setting, respectively). Secondary outcomes showing statistically significant improvements were disease-related daily functioning (Cohen’s d = 0.70), depressive symptoms (Cohen’s d = 0.87), and pain beliefs (Cohen’s d = 0.61, 0.67, 0.82 for harm, disability and control, respectively). No adverse events were reported. Community-based multidisciplinary group interventions for fibromyalgia show promise for improving satisfaction with quality of care, disease-related functioning, and depression, and fostering more adaptive pain beliefs.

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The experiences and acceptability of a novel multimodal programme for the management of fibromyalgia: A qualitative service evaluation

Cited by 4 publications

References 55 publications

Written narratives to understand the experience of individuals living with fibromyalgia

Written narratives to understand the experience of individuals living with fibromyalgia

The experiences and acceptability of a novel multimodal programme for the management of fibromyalgia: A qualitative service evaluation

Multi-disciplinary community-based group intervention for fibromyalgia: a pilot randomized controlled trial

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