The Experience of Siblings of Adolescents With Eating Disorders

Areemit, Rosawan; Katzman, Debra K.; Pinhas, Leora; Kaufman, Miriam

doi:10.1016/j.jadohealth.2009.12.011

Cited by 36 publications

(84 citation statements)

References 34 publications

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“…Data on the HRQoL of AN, BN, BED, and relatives/caregivers of ED patients were reported in 41 studies: 18 for AN [13–30], 17 for BN [13–15, 17, 20–25, 27, 29–34], 18 for BED [17, 21, 22, 24, 35–48], and 5 for the relatives/caregivers of ED patients [49–53]. Seventeen types of HRQoL instruments were applied in the included studies.…”

Section: Resultsmentioning

confidence: 99%

A systematic review of the health-related quality of life and economic burdens of anorexia nervosa, bulimia nervosa, and binge eating disorder

Ágh¹,

Kovaćs²,

et al. 2016

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PurposeTo perform a systematic review of the health-related quality of life (HRQoL) and economic burdens of anorexia nervosa (AN), bulimia nervosa (BN), and binge eating disorder (BED).MethodsA systematic literature search of English-language studies was performed in Medline, Embase, PsycINFO, PsycARTICLES, Academic Search Complete, CINAHL Plus, Business Source Premier, and Cochrane Library. Cost data were converted to 2014 Euro.ResultsSixty-nine studies were included. Data on HRQoL were reported in 41 studies (18 for AN, 17 for BN, and 18 for BED), on healthcare utilization in 20 studies (14 for AN, 12 for BN, and 8 for BED), and on healthcare costs in 17 studies (9 for AN, 11 for BN, and only 2 for BED). Patients’ HRQoL was significantly worse with AN, BN, and BED compared with healthy populations. AN, BN, and BED were associated with a high rate of hospitalization, outpatient care, and emergency department visits. However, patients rarely received specific treatment for their eating disorder. The annual healthcare costs for AN, BN, and BED were €2993 to €55,270, €888 to €18,823, and €1762 to €2902, respectively.ConclusionsAN, BN, and BED have a serious impact on patient’s HRQoL and are also associated with increased healthcare utilization and healthcare costs. The burden of BED should be examined separately from that of BN. The limited evidence suggests that further research is warranted to better understand the differences in long-term HRQoL and economic burdens of AN, BN, and BED.Electronic supplementary materialThe online version of this article (doi:10.1007/s40519-016-0264-x) contains supplementary material, which is available to authorized users.

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Section: Resultsmentioning

confidence: 99%

A systematic review of the health-related quality of life and economic burdens of anorexia nervosa, bulimia nervosa, and binge eating disorder

Ágh¹,

Kovaćs²,

et al. 2016

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“…Nonetheless, the study sample comprises siblings from high and low socioeconomic groups, from urban and rural environments, with index cases suffering a variety of common pathologies of varying severity. Moreover, the sample is larger than that presented by comparable studies (Areemit et al 2010;Dia and Harrington 2006;Kelvin et al 1996;Kilmer et al 2008) and can be taken to be representative in the context of the mainstream Australian community. The distinguishing feature of the participants is that they have a sister or brother receiving treatment from CAMHS, yet the sibling sample shows both concerning rates of mental health problems and significantly poorer quality of life.…”

Section: Discussionmentioning

confidence: 99%

“…In a more recent investigation of siblings of children with severe emotional disturbances, 20% of siblings had the same or higher levels of maladjustment than the index child (Kilmer et al 2008). The most recent sibling study, reported a third of siblings of adolescents with eating disorders rated their emotional functioning on a quality of life measure as being in the impaired range (Areemit et al 2010). These investigations have tended to consider only one aspect of the siblings functioning and to rely on parent report.…”

Section: Introductionmentioning

confidence: 99%

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Adjustment of Siblings of Children with Mental Health Problems: Behaviour, Self-Concept, Quality of Life and Family Functioning

Barnett

Hunter

2011

J Child Fam Stud

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This study examined the adjustment of siblings of children with mental health problems. The participants had brothers or sisters receiving treatment at a Child and Adolescent Mental Health Service within the Hunter New England Health Service, New South Wales, Australia. Seventy-five siblings completed questionnaires on their selfconcept, quality of life and family functioning. Their carers completed questionnaires on the sibling's behaviours, family demographics and family functioning. The diagnosis and severity of disability of index children were attained from the treating clinician. The study revealed the siblings had significantly higher rates of psychopathology, poorer quality of life and lived in more dysfunctional families than normally developing children. Regression modelling predicted variables related to the three main behaviour scales of the Child Behaviour Checklist (CBCL). Family functioning, family communication and the extreme ends of family cohesion and balance, were the most significant contributors to regression model. The sibling self-concept domains of global selfworth, athletic competence and behavioural conduct, contributed to the model. Additionally, a smaller family size was associated with more internalising behaviour disorders in the siblings. The diagnosis and severity of mental health problem of the index child and other family demographic factors did not impact on the sibling's behavioural functioning. This study highlights that siblings of children with mental health difficulties are a group vulnerable to adjustment difficulties regardless of the index child's diagnosis or the severity of impairment. Overall, family functioning had a greater impact on the siblings than other factors.

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“…19 In addition, family stress may be affected by the family's lifestyle and impact on the healthy siblings who are at high risk of psychosocial problems. 20 Taiwan differs from Western countries because of the strong influence of Confucianism, which values family concerns over those of the individual. 21 n Aims…”

mentioning

confidence: 99%

How Does Culture Shape Roles and Relationships in Taiwanese Family Caregiving for an Adolescent With Cancer?

et al. 2015

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The Experience of Siblings of Adolescents With Eating Disorders

Cited by 36 publications

References 34 publications

A systematic review of the health-related quality of life and economic burdens of anorexia nervosa, bulimia nervosa, and binge eating disorder

A systematic review of the health-related quality of life and economic burdens of anorexia nervosa, bulimia nervosa, and binge eating disorder

Adjustment of Siblings of Children with Mental Health Problems: Behaviour, Self-Concept, Quality of Life and Family Functioning

How Does Culture Shape Roles and Relationships in Taiwanese Family Caregiving for an Adolescent With Cancer?

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