The Experience of Caring For or Living with an Individual with an Eating Disorder: A Meta‐Synthesis of Qualitative Studies

Fox, John R. E.; Dean, Madeleine; Whittlesea, Anna

doi:10.1002/cpp.1984

Cited by 68 publications

(134 citation statements)

References 61 publications

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“…To our knowledge, coping strategies of relatives of patients with eating disorders have been explored mainly by qualitative approaches or using instruments not specifically developed for eating disorders …”

Section: How Do Relatives Cope With Eating Disorders? Results From Anmentioning

confidence: 99%

“…Until now, most of available information on coping strategies adopted by relatives of patients with eating disorders have been collected through qualitative approaches, or with assessment instruments not tailored for eating disorders and within different conceptual frameworks . On the contrary, in the present study we have used a validated, easy to use and reliable questionnaire developed for eating disorders …”

Section: Discussionmentioning

confidence: 99%

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How do relatives cope with eating disorders? Results from an Italian multicentre study

Fiorillo

Sampogna

Luciano

et al. 2016

Intl J Eating Disorders

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Section: How Do Relatives Cope With Eating Disorders? Results From Anmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

How do relatives cope with eating disorders? Results from an Italian multicentre study

Fiorillo

Sampogna

Luciano

et al. 2016

Intl J Eating Disorders

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“…To provide a guide as to their relative rigor, the methodological quality of the included studies was assessed by M.G. using the Critical Appraisal Skills Programme (CASP, ) checklist for qualitative research, a tool employed in previous syntheses of qualitative ED studies (e.g., Espindola & Blay, ; Fox, Dean, & Whittlesea, ). The checklist has 10 criteria, so each study was awarded a score out of 10, with half‐points granted if a criterion were partially fulfilled.…”

Section: Methodsmentioning

confidence: 99%

The lived experience of working with people with eating disorders: A meta‐ethnography

Graham

Tierney

Chisholm

et al. 2020

Intl J Eating Disorders

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Objective Working with people with eating disorders (EDs) is known to elicit strong emotional reactions, and the therapeutic alliance has been shown to affect outcomes with this clinical population. As a consequence, it is important to understand healthcare professionals' (HCPs') experiences of working with this client group. Method A meta‐synthesis was conducted of qualitative research on HCPs' lived experiences of working with people with EDs. The results from the identified studies were analyzed using Noblit and Hare's meta‐ethnographic method. Data were synthesized using reciprocal translation, and a line of argument was developed. Results Thirty‐seven studies met the inclusion criteria. Reciprocal translation resulted in a key concept: “Coping with caring without curing.” This was underpinned by the following third‐order concepts: (a) “The dissonance and discomfort of being a helper struggling to help,” (b) “Defending against the dissonance,” and (c) “Accepting the dissonance to provide safe and compassionate care.” These concepts were used to develop a line‐of‐argument synthesis, which was expressed as a new model for understanding HCPs' experiences of working with people who have an ED. Discussion Although the conflict associated with being a helper struggling to help led some HCPs to avoid and blame people with EDs, others adopted a compassionate stance characterized by humanity, humility, balance, and awareness.

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“…Evidence‐based clinical practice strives to provide treatments that are both most effective and accessible without undue financial or time strain on systems or service users with EDs. Given that the severity of impacts experienced by caregivers to those with an ED (Anastasiadou et al, ; Fox, Dean, & Whittlesea, ; Stillar et al, ) and the interpersonal maintenance model that shows ineffective caregiving may exacerbate ED symptoms (Goddard et al, ), it is vitally important that effective interventions aimed to help them are made as broadly accessible in a variety of contexts.…”

Section: Introductionmentioning

confidence: 99%

A feasibility study comparing a web‐based intervention to a workshop intervention for caregivers of adults with eating disorders

Dimitropoulos

Landers

Freeman

et al. 2019

Euro Eating Disorders Rev

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Objective To assess for the validity of a future trial, the current feasibility study aimed to compare the feasibility and efficacy of a web‐ and workshop‐based education intervention for caregivers of adults with eating disorders. Methods Psychoeducation was provided to caregivers, who were randomly assigned to a web or workshop condition. Independent samples t tests were conducted to analyse the between‐group effect sizes for intervention condition with regard to change over time. A random selection of participants from each intervention provided qualitative feedback about their experiences. Results Overall, participants reported positive experiences in both education interventions. From baseline to the end of intervention, small between‐group effect sizes were observed for changes in caregiver accommodation, problem‐solving abilities, the quality of psychological health, and the quality of social relationships, favouring the web‐based intervention, and changes in expressed emotion in the family context, caregiver burden, perceived stress, and the quality of the environment, supporting the workshop intervention. Conclusions There was a difference in initial feasibility of the web intervention. A future large‐scale trial of these interventions is supported by the results of this feasibility study.

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The Experience of Caring For or Living with an Individual with an Eating Disorder: A Meta‐Synthesis of Qualitative Studies

Cited by 68 publications

References 61 publications

How do relatives cope with eating disorders? Results from an Italian multicentre study

How do relatives cope with eating disorders? Results from an Italian multicentre study

The lived experience of working with people with eating disorders: A meta‐ethnography

A feasibility study comparing a web‐based intervention to a workshop intervention for caregivers of adults with eating disorders

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