The Experience of Applying a Narrative Research Approach With Older People

Hsu, Ming‐Yi; McCormack, Brendan

doi:10.1097/jnr.0b013e3181fc669e

Cited by 9 publications

(5 citation statements)

References 27 publications

(28 reference statements)

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“…Another included study found that patient influence on hospital services was more likely when patients were asked to provide unique insight into problems that allowed providers to identify new possibilities for solutions rather than for patients to recommend solutions that were not viewed by providers as relevant or appropriate. 25 This approach could be accommodated in PE activities that consulted, involved or partnered with patients, appeared to be a comfortable role that allowed patients to express themselves freely and provide detailed accounts of their experiences, 26 and would ensure that providers were engaged rather than alienated by the process.…”

Section: Discussionmentioning

confidence: 99%

Patient engagement in hospital health service planning and improvement: a scoping review

Liang

Cako

Urquhart³

et al. 2018

BMJ Open

106

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ObjectivesPatient engagement (PE) improves patient, organisation and health system outcomes, but most research is based on primary care. The primary purpose of this study was to describe the characteristics of published empirical research that evaluated PE in hospital health service improvement.DesignScoping review.MethodsFive databases were searched from 2006 to September 2016. English language studies that evaluated patient or provider beliefs, participation in PE, influencing factors or impact were eligible. Screening and data extraction were done in triplicate. PE characteristics, influencing factors and impact were extracted and summarised.ResultsFrom a total of 3939 search results, 227 studies emerged as potentially relevant; of these, 217 were not eligible, and 10 studies were included in the review. None evaluated behavioural interventions to promote or support PE. While most studies examined involvement in standing committees or projects, patient input and influence on decisions were minimal. Lack of skill and negative beliefs among providers were PE barriers. PE facilitators included careful selection and joint training of patients and providers, formalising patient roles, informal interaction to build trust, involving patients early in projects, small team size, frequent meetings, active solicitation of patient input in meetings and debriefing after meetings. Asking patients to provide insight into problems rather than solutions and deploying provider champions may enhance patient influence on hospital services.ConclusionsGiven the important role of PE in improving hospital services and the paucity of research on this topic, future research should develop and evaluate behavioural interventions for PE directed at patients and providers informed by the PE barriers and facilitators identified here. Future studies should also assess the impact on various individual and organisational outcomes.

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Section: Discussionmentioning

confidence: 99%

Patient engagement in hospital health service planning and improvement: a scoping review

Liang

Cako

Urquhart³

et al. 2018

BMJ Open

106

View full text Add to dashboard Cite

show abstract

“…Narrative data are typically derived by asking broad, open-ended questions designed to explore people's views of reality, but may also be collected through review or documents or materials [25,27]. Narrative approaches consider the investigator as someone who plays an integral role in constructing, guiding, and analyzing the narratives produced [25,27]. Thematic analysis of narrative data is a common method used to identify and organize concepts emphasized in the data [24,25].…”

Section: Introductionmentioning

confidence: 99%

Racial disparity in breast cancer survivorship: themes from a series of four national healthcare provider live virtual forums

et al. 2023

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Purpose Significant disparity exists in the diagnosis, treatment, and survivorship outcomes among Black breast cancer (BC) survivors. Black BC survivors have more significant survivorship issues and a greater burden of illness than White counterparts. Barriers to rehabilitation exist for all BC survivors but are magnified in Black BC survivors. The purpose of this qualitative research was to document patient, clinician, and researchers’ perceptions surrounding contributing factors, lived experiences, and potential solutions to racial disparity in BC survivorship. Methods A narrative approach was utilized to identify themes from a series of four virtual healthcare provider forums that explored lived personal and professional experiences, issues, and potential solutions surrounding racial disparity in BC survivorship. Forums included perspectives of patients, healthcare providers, researchers, and stakeholders in the BC field. An independent thematic analysis was performed by the investigators, all of whom have emic perspectives with respect to race and/or BC. Results Three main themes were identified related to racial disparity in BC survivorship: (1) societal and cultural contributing factors, (2) contribution of healthcare providers and systems, and (3) models of care and research considerations. Conclusions The findings provide compelling documentation of lived personal and professional experiences of racial disparity in BC survivorship. Potential solutions exist and must be enacted immediately to ensure equitable survivorship outcomes for Black individuals following a BC diagnosis. Implications for Cancer Survivors Increased awareness related to racial disparity in BC survivorship among survivors, healthcare providers, and researchers will contribute to health equity and improved outcomes for Black individuals.

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“…The study by Augustin and Freshman [26] emphasized that education is about students acquiring knowledge from instructors, as well as gaining knowledge from their accumulated personal involvement and experience. The narrative approach provides an opportunity to come to a better understanding of what it means to be human and what health means to people [27]. Through the experience narrative of the OACD, students were guided to explore the details of the effects of chronic disease from the patients' perspective [6].…”

Section: Discussionmentioning

confidence: 99%

Intergenerational Narrative Learning to Bridge the Generation Gap in Humanistic Care Nursing Education

2021

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Background: The development of nursing students’ ability to practice humanistic care is extremely important. Methods: This study explored students’ learning experience when providing humanistic care for older adults with chronic diseases while employing intergenerational narrative learning. An exploratory descriptive qualitative study design was adopted. Results: We analyzed evaluations from 35 students who completed the course, in which intergenerational narrative learning was employed. Evaluations contained open-ended questions that asked students to reflect upon their experiences and describe their perceptions, thoughts, and feelings after the course. Three main themes were revealed by thematic analysis: direct interaction supersedes knowledge in books, the framework for improving humanistic caring, and internalization of the importance of humanistic care in nursing. Conclusion: An awareness of patients’ perspectives inspired the students in their development toward a more profound caring attitude. The intergenerational narrative learning teaching strategy could foster professional and humanistic-centered care in nursing students.

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The Experience of Applying a Narrative Research Approach With Older People

Cited by 9 publications

References 27 publications

Patient engagement in hospital health service planning and improvement: a scoping review

Patient engagement in hospital health service planning and improvement: a scoping review

Racial disparity in breast cancer survivorship: themes from a series of four national healthcare provider live virtual forums

Intergenerational Narrative Learning to Bridge the Generation Gap in Humanistic Care Nursing Education

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