The Everyday Life of the Young Child Shortly After Receiving a Cancer Diagnosis, From Both Children’s and Parent’s Perspectives

Abstract

Nurses need to reevaluate the newly diagnosed child's care routines so as to shift focus from the illness to the child. This requires competent nurses, secure in their caring role.

Children's Experiences of Cystic Fibrosis: A Systematic Review of Qualitative Studies

“…[50][51][52][53][54][55] Being able to participate in physical activity is viewed as important in both the CF and asthma populations. 56 What may be unique in children and adolescents with CF is how their susceptibility to infections (including cross-infection necessitating segregation 32,57,58 ) limits their lifestyle, reduces their capacity to participate in physical activity, and perpetuates anxiety, isolation, and uncertainty.…”

The process of striving for an ordinary, everyday life, in young children living with cancer, at six months and one year post diagnosis

“…Children from the age of seven years old and older living with cancer have described a longing to do normal things, to know more about their cancer, to feel cared for, to feel special and to get used to having cancer (Bj€ ork et al, 2009;Hockenberry-Eaton and Minick, 1994). Information and knowledge, creating good relationships with health care professionals (Bj€ ork et al, 2006;Ensk€ ar et al, 1997) and the comfort and protection of parents are seen as essential components for the sick child's wellbeing, independent of age (Bj€ ork et al, 2006(Bj€ ork et al, , 2009Darcy et al, 2014).…”

“…The few known studies in which three to six year old children themselves were asked about their lives with cancer, describe how they were affected by treatment in terms of tiredness, hair loss and limited possibilities for relationships and activities (Gibson et al, 2010). A dramatic change in everyday life with experiences of feeling like a stranger, under attack and lonely are described (Darcy et al, 2014).…”

Skype Support for Preschool Children with Long-Term Illness—One Year Follow-Up

“…The children got tools to discuss matters of importance to them. Children like to share decision making in all situations, otherwise there is a risk of them losing control and their own integrity (Darcy, Knutsson, Huus, & Enskär, 2014). Arguments for taking the child's perspective need to be encouraged in healthcare (Nilsson et al, 2013).…”