The ethics of conducting a co‐operative inquiry with vulnerable people

Tee, Stephen; Lathlean, Judith

doi:10.1111/j.1365-2648.2004.03130.x

Cited by 50 publications

(52 citation statements)

References 20 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…This is more likely to occur in emergency situations, with participants in institutional settings or undergoing medical treatments, and with disadvantaged groups, such as the poor or socially excluded (Cain et al, 2003;Rogers). Examples of recent studies in which researchers defined their participants as vulnerable include mental health service users (Tee & Lathlean, 2004), Latino adolescents and their families (Zayas, 2009), Hispanic drug users (Singer et al, 2008), and families of children with life-limiting conditions (Stevens, Lord, Proctor, Nagy, & O'Riordan, 2010).…”

Section: Vulnerable Populations and Sensitive Issues Vulnerable Populmentioning

confidence: 96%

Utilizing Participants’ Strengths to Reduce Risk of Harm in a Study of Family Estrangement

Agllias

2011

Qual Health Res

View full text Add to dashboard Cite

In this article I examine some issues involved in researching vulnerable populations and sensitive issues, and the challenges and risks of researching issues of a deeply personal nature. Participants might have complex needs and vulnerabilities, but they also have many resources to ensure their own well-being. I ask researchers to move beyond the minimum standards espoused by human ethics committees, and utilize participant strengths to further reduce the risk of harm. My reflections on a study of older people who were experiencing family estrangement highlight some of the actions that participants used to increase their personal safety. I discuss the usefulness of "strengths" questions in assessing risk and facilitating participant strengths to minimize harm. Finally, I propose a three-way model for reducing risk that involves the "lessons learned" from ethics committees, researchers, and the participants themselves.

show abstract

Section: Vulnerable Populations and Sensitive Issues Vulnerable Populmentioning

confidence: 96%

Utilizing Participants’ Strengths to Reduce Risk of Harm in a Study of Family Estrangement

Agllias

2011

Qual Health Res

View full text Add to dashboard Cite

show abstract

“…The ability to form mutual relationships grounded in openness and trust using clinical skills has been cited as a factor enhancing qualitative data collection with vulnerable populations (Tee & Lathlean, 2004). Personal disclosure by the nurse-researchers has been suggested as a way to enhance the intimacy of the relationship and so enhance the quality of the data collected in interview studies (Dickson-Swift, 2006;Frank, 2005).…”

Section: Relationshipmentioning

confidence: 99%

Ethical Case Study of the Researcher–Participant Relationship in End-of-Life Research

2016

View full text Add to dashboard Cite

Nurse-researchers studying interventions for patients at the end-of-life may become close with participants due to the nature of interactions within the research protocol. In such studies, participants may request further interactions that would constitute clinical care beyond the scope of the protocol. Nurse-researchers may feel a conflict of values between their obligation to the research goals and their inclinations and obligations as nurses to care for their patients. Nurse-researchers in this situation aspire to honor the bonds developed through close contact and ensure participants receive standard of care while maintaining standards of research ethics. Analysis of a case and review of applicable concepts in research ethics, including ethical relationships, therapeutic misconception, equipoise, and population vulnerability, are used to develop recommendations regarding the decision parameters for similar cases.

show abstract

“…The argument that users are vulnerable and must be protected is a weighty one that should be taken seriously and an assessment must be performed for each individual user (Hummelvoll 2009;Tee and Lathlean 2004;Tew 2006). Assessments involve a difficult balance between autonomy and paternalism.…”

Section: Ethical Dilemmasmentioning

confidence: 99%

User involvement in practice research

Jenssen

2014

Nordic Social Work Research

View full text Add to dashboard Cite

Det samfunnsvitenskapelige fakultet, institutt for sosialfag, Universitetet i Stavanger, Stavanger, NorwayDiscussions of practice research have mainly been based on researcher's collaboration with practitioners. User involvement in practice research is described and analysed to a lesser degree. The basis of this article is a five-year-research project which aimed at developing new forms of collaboration between research, practice, education, and service users to build knowledge about improving the quality of social services. It is a government-funded research and development project in which user involvement was a prerequisite for funding. In this article, the different phases of user involvement in the research process are scrutinised and user involvement is analysed through the concepts of knowledge, equality and dialogue. IntroductionThis article discusses and analyses how user involvement in research is conducted in a research process. The basis for the article is a five-year-research project which aimed at developing new forms of collaboration between research, practice, education and service users to build knowledge about improving the quality of social services. It is a government-funded research and development project in which user involvement was a prerequisite for funding. Users were employed as research partners and equality and negotiations in decision-making were important parts of the research process. The challenges and ethical dilemmas that were met were many. In this article, the different phases of the research process are scrutinised and user involvement is analysed through the concepts of knowledge, equality and dialogue. A key perspective is the philosophy of Martin Buber, who believed that humans relate to the world either through an I-You relationship or an I-It relationship. The article draws on the experiences from the many subprojects in the overall project. It is based on my experiences as a long-term researcher in the project and builds on interviews with project participants and their written stories about their experiences (

show abstract

The ethics of conducting a co‐operative inquiry with vulnerable people

Cited by 50 publications

References 20 publications

Utilizing Participants’ Strengths to Reduce Risk of Harm in a Study of Family Estrangement

Utilizing Participants’ Strengths to Reduce Risk of Harm in a Study of Family Estrangement

Ethical Case Study of the Researcher–Participant Relationship in End-of-Life Research

User involvement in practice research

Contact Info

Product

Resources

About