The estimation of the functioning of families with ASD children

Abstract

BackgroundAutism Spectrum Disorder (ASD) is a disease described as a neurodevelopmental disorder as the impairment of social and communication functions. Life of the people with ASD depends on the early introduction of intensive therapeutic programmes, modifying the undesirable behaviours, and aimed at teaching social and communication skills.AimsThe goal of the present work is to estimation the functioning of families with an ASD child and compare it to the functioning of families with children not diagnosed with ASD.MethodsThe study was performed using Flexibility and Cohesion Evaluation Scales. The study included 70 parents of ASD children, and 70 parents with children without diagnosed ASD, as the control group.ResultsThe parents of children with autism achieve lower results in the Balanced Cohesion sub-scale than the control group. Also, the parents of ASD children obtained higher scores in the Disengaged sub-scale than the control group.ConclusionsThe results of this papers can suggesting the risk of the appearance of a disturbed family system, functioning in families with children with ASD, which should be a trigger for providing these families with early family functioning diagnosis and consequent support and therapy.

Levels of happiness and depression in parents of children with autism spectrum disorder in Poland

“…Moreover, the studied social group is also at greater risk of developing elements of stress, depression and insecurity compared with the parents of children with other disabilities (Abbeduto et al, 2004, Pisula, 2007, including intellectual disability (Firat et al, 2002). The results of this study are commensurate with the findings of other researchers (Brobst et al, 2009, Hoffman et al, 2009, Lee et al, 2009Kostiukow et al, 2019). The first hypothesis has been validated -that parents of children with ASD have a lower sense of happiness and a greater level of depression than parents of neurotypical children.…”

“…Undoubtedly, the daily stress related to raising a child with autism is associated with severe angst and depression (Bitsika et al, 2013). Despite prominent stress and depression, parents of such children are also characterized by a high level of insecurity compared with control groups of parents raising a typically developing child (Brobst et al, 2009;Hoffman et al, 2009;Lee et al, 2009;Kostiukow et al, 2019). Moreover, the studied social group is also at greater risk of developing elements of stress, depression and insecurity compared with the parents of children with other disabilities (Abbeduto et al, 2004, Pisula, 2007, including intellectual disability (Firat et al, 2002).…”

“…It creates a wide range of new challenges and assumes the fact that the parents (especially mothers) are usually the main caregivers of the child with ASD (Gray, 2003). After receiving the diagnosis, there is a common process of lowering the expectations towards the child and it usually leads to uncertainty about the future -not only the future of the child but of the whole family (Poslawsky et al, 2014;Kostiukow et al, 2019).…”

Utjecaj poremećaja iz spektra autizma na obitelj

“…Roditelji se trebaju naučiti nositi s odgovornošću koju sa sobom nosi odgoj djeteta koje je u velikoj mjeri ovisno o njima, trebaju se pobrinuti o adekvatnoj prehrani, sigurnosti, organizaciji odgojno-obrazovnog programa i programa rane intervencije te formiranju adekvatnih i ugodnih odnosa djeteta s članovima obitelji i drugim ljudima s kojima dijete dolazi u kontakt 8,20 . Roditelji djece s autizmom više brinu o tome hoće li njihovo dijete ikada imati život barem približan onome kakav imaju djeca normalnog razvoja, za razliku od roditelja koji imaju dijete s kroničnom tjelesnom bolešću 21 . Zanimljivo je kako unatoč tome roditelji koji imaju dijete s razvojnim poremećajem, imaju znatno pozitivnije viđenje toga koliko vremena i truda treba za brigu o djetetu u odnosu na skupinu roditelja s tjelesno bolesnim djetetom.…”

“…(2019.) navode da su članovi obitelji prisiljeni prihvatiti određeno rutinsko ponašanje kako bi zadovoljili stalne potrebe djeteta s autizmom 21 . Xue i sur.…”