The effects of informal carers’ characteristics on their information needs: The information needs state approach

Alzougool, Basil; Chang, Shanton

doi:10.1080/17538157.2016.1221409

Cited by 10 publications

(16 citation statements)

References 31 publications

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“…Informal carers have varied needs that can change over time [11,15]. Health and social care professionals can play an important role in assessing carers' needs, and in referring them to or providing them with support in undertaking their role.…”

Section: Introductionmentioning

confidence: 99%

A Cross-European Study of Informal Carers’ Needs in the Context of Caring for Older People, and their Experiences with Professionals Working in Integrated Care Settings

et al. 2021

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Introduction: Informal carers are increasingly relied on for support by older people and the health and social care systems that serve them. It is therefore important that health and social care professionals are knowledgeable about and responsive to informal carers' needs. This study explores informal carers' own needs within the context of caregiving; and examines, from the informal carers' perspective, the extent to which professionals assess, understand and are responsive to informal carers' needs. Methods:We interviewed (2016-2018) 47 informal carers of older people being served by 12 integrated care initiatives across seven countries in Europe. The interviews were thematically coded inductively and analysed.Results: Informal carers reported that professionals treated them with respect and made efforts to assess and respond to their needs. However, even though professionals encouraged informal carers to look after themselves, informal carers' needs (e.g., for respite, healthcare) were insufficiently addressed, and informal carers tended to prioritize older people's needs over their own. Discussion and conclusion: Informal carers need better support in caring for their own health. Health professionals should have regular contact with informal carers and proactively engage them in ongoing needs assessment, setting action plans for addressing their needs, and identifying/accessing appropriate support services. This will be important if informal carers are to continue their caregiving role without adverse effects to themselves.

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Section: Introductionmentioning

confidence: 99%

A Cross-European Study of Informal Carers’ Needs in the Context of Caring for Older People, and their Experiences with Professionals Working in Integrated Care Settings

et al. 2021

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“…Over time caregivers build up support networks to fulfil information needs, but this process is very personal and depending on available resources, individual preferences and support needs. Experiences differ, from caregivers feeling that their information needs are met to others describing a difficult and arduous process undertaken to fulfil them, some of which remain unmet, often due to lack of personalisation (Maneze et al , 2019; Alzougool et al , 2017). For all caregivers, there is a high emotional and physical cost to caring, as they seek to fulfil information needs while also negotiating the loss of their loved one and attempting to weigh their own needs against those of their relative.…”

Section: Discussionmentioning

confidence: 99%

The information trust formation process for informal caregivers of people with dementia: a qualitative study

Sbaffi

Hargreaves

2021

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PurposeThis paper provides new insights on trust formation during information-seeking processes of informal caregivers of people with dementia and identifies the sources of information deemed as trustworthy by caregivers.Design/methodology/approachThe study adopts a phenomenological qualitative approach in the form of in-depth, semi-structured interviews with a sample of 20 informal caregivers.FindingsCaregivers trust sources that are perceived as authoritative and particularly value the information and advice provided by other caregivers. Trust in information can be divided into subjective and objective, but both are important precursors to the actual use of the information. The information available to caregivers is sufficient in quantity but inadequate in terms of ease of use, clarity and usefulness. Often, some key information needs remain unsatisfied due to the lack of timeliness, relevance and personalisation of the information.Practical implicationsThis paper provides recommendations for information and healthcare providers on how to improve communication and information relevance for informal caregivers of people with dementia.Originality/valueThis paper contributes to a more comprehensive perspective on caregivers’ information trust formation processes, which takes into account both the characteristics of the information and caregivers’ individual factors.

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“…Whilst there have been studies of the information behaviour of carers, most research focuses on carers living with the cfp (e.g. Alzougool, Chang & Gray, 2017), leaving a research gap regarding the experience of those caring at a distance.…”

Section: Exploring the Information World Of Non-resident Informal Carers Sheila Webber And Pamela Mckinneymentioning

confidence: 99%

Four Passages to Information Use Related Phenomena in Bachelor Theses at the Finnish Universities of Applied Sciences

Kämäräinen¹,

Mönkkönen

Saarti

2019

Communications in Computer and Information Science

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This year the theme is information literacy and related phenomena in different arenas of people's everyday life. This is a research area whose body of studies is still quite limited. The presentations will increase our understanding of information literacy in terms of conceptual and methodological development and application in professional practice that aims to enhance learning, coaching, and teaching. They may inspire us towards novel approaches for getting hold of the phenomena in different everyday life environments and contexts. This year we had the total of 234 original initially submitted proposals, of which 180 were finally accepted for presentation and are thus included in this Book of Abstracts. The major part of the presentations is formed by papers, 98 in total. We have 38 presentations of best practices, seven workshops, 19 posters, 11 PechaKucha presentations, and three doctoral students' papers. We have three distinguished Keynote Speakers from the broad field of information sciences. Frans Mäyrä has investigated games and digital cultures for more than 20 years, Karen Fisher's research interests are in refugees' information behaviour and people's experiences of information in their everyday life, and Peter Bath is an expert of health informatics and sharing of information in online environments. Our Invited Speaker, Kristiina Kumpulainen from educational sciences, has studied young children's learning, development and wellbeing in formal education and beyond, as well as multiliteracies, dialogic learning, agency and identity, and teachers' professional development. All these 180 presentations of ECIL 2018 will provide us an opportunity to deepen our professional competence and widen our views of information literacy and related issues when the context is familiar to all of us, but the studies of these phenomena are rather rare.It is delightful to tell you that this year Finnish National Commission for UNESCO is a patron of ECIL along with IFLA's permanent patronage. ECIL's sponsors are the City of Oulu, the Finnish Library Association FLA, the Finnish Research Library Association, the AMKIT Universities of Applied Sciences Libraries in Finland, the Librarians' Foundation, and the Federation of Finnish Learned Societies. Furthermore, the Finnish Association for Information Studies is in charge of the Doctoral Forum that is organized with the support from the Finnish Association of Scholarly Publishing. Moreover, besides providing working hours, our Department of Information and Communication Studies has financially contributed in organizing ECIL 2018. We would like to thank all these bodies for their valuable support.Most of all, we are grateful to the initiators and pioneers of ECIL, Serap Kurbanoglu and Sonja Špiranec, for providing us this possibility to organize ECIL in Oulu. We also thank Joumana Boustany for her expertise with the finances and the conference management system, and Denis Kos for his support. In addition, ECIL would not take place without the Standing and Programme Committees' ...

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The effects of informal carers’ characteristics on their information needs: The information needs state approach

Cited by 10 publications

References 31 publications

A Cross-European Study of Informal Carers’ Needs in the Context of Caring for Older People, and their Experiences with Professionals Working in Integrated Care Settings

A Cross-European Study of Informal Carers’ Needs in the Context of Caring for Older People, and their Experiences with Professionals Working in Integrated Care Settings

The information trust formation process for informal caregivers of people with dementia: a qualitative study

Four Passages to Information Use Related Phenomena in Bachelor Theses at the Finnish Universities of Applied Sciences

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