The information trust formation process for informal caregivers of people with dementia: a qualitative study

Sbaffi, Laura; Hargreaves, Sarah

doi:10.1108/jd-01-2021-0014

Cited by 6 publications

(11 citation statements)

References 56 publications

(66 reference statements)

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“…Thus, the content and quality of information are the main criteria people consider when selecting information sources. Moreover, abundance (Gibson et al, 2017), volume, comprehensibility (Onal et al, 2021), accuracy (Majid and Kanagasabai, 2007) and comprehensiveness (Lin et al, 2014), objectivity (Lee, 2020) and personalization of information (Sbaffi and Hargreaves, 2022) are among the preference criteria for people in different contexts. However, the roles of these criteria vary across contexts.…”

Section: Context Of Information Source Preferences Researchmentioning

confidence: 99%

A systematic review of information source preference research

Zhong

Hansen

2023

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PurposeThis systematic literature review aims to elaborate on the research progress and features of information source preferences to help other researchers attain a more comprehensive understanding of the field.Design/methodology/approachFollowing a systematic review protocol, 139 research articles from 11 academic databases were analyzed.FindingsOverall, five separate results were obtained: first, information source horizon theory is the main theoretical foundation of information source preferences research, while other theories have been applied less. Second, information source preference research has strong context sensitivity and involves health, work, consumption, learning, survival and development and emergencies. Third, preference criteria can be summarized into three categories: information characteristics, user characteristics, needs characteristics and corresponding specific criteria. Fourth, information source preferences are influenced by both internal and external factors, including five specific aspects, namely demographics, the user's cognition, the user's affection, capital and contextual factors. Fifth, this field is dominated by quantitative methods and an information horizon mapping method could be applied more.Originality/valueThis study is the first to reveal the general picture of information source preferences. It also elaborates on the characteristics of this field and presents potential development directions.

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Section: Context Of Information Source Preferences Researchmentioning

confidence: 99%

A systematic review of information source preference research

Zhong

Hansen

2023

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“…Jean et al (2018), who define it as "an enduring unawareness that one has a particular information need" (p.307) and go on, within the context of people with type 2 diabetes, to propose strategies for overcoming it including talking with others in similar health situations. This need for personalised information has been long recognised by research (e.g., Washington et al, 2011) and goes together with addressing the importance that carers attribute to 'sense-making', that is the use of their own approaches and principles to make sense of different sources and typologies of information (Sbaffi and Hargreaves, 2022).…”

Section: Introductionmentioning

confidence: 99%

“…A previous paper (Sbaffi and Hargreaves, 2022) presented findings from a qualitative study of informal caregivers of people with dementia focussing on how they formed perceptions of the trustworthiness of information sources relevant to their caregiving role. This paper extends the analysis of data collected in this research to focus on perceived barriers to, and enablers of, their effective seeking and acquisition of relevant and trustworthy information, and the extent to which their information needs are, and are not being met.…”

Section: Introductionmentioning

confidence: 99%

“…However, as noted in Sbaffi and Hargreaves (2022), although an increasing number of sources of information relevant to caregivers is available, they still report many unmet needs when it comes to accessing and securing trustworthy information (e.g. Mason et al, 2020;Myrick, 2017) and they can feel inadequately informed and ill-prepared to fulfil their role (Allen et al, 2020).…”

Section: Introductionmentioning

confidence: 99%

“…This need for personalised information has been long recognised by research (e.g. Washington et al, 2011) and goes together with addressing the importance that carers attribute to "sense-making", that is the use of their own approaches and principles to make sense of different sources and typologies of information (Sbaffi and Hargreaves, 2022).…”

Section: Introductionmentioning

confidence: 99%

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Information seeking amongst informal caregivers of people with dementia: a qualitative study

Hargreaves

Sbaffi

Ford

2022

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PurposeThis paper both supports previous findings relating to, and presents new insights into: the information needs and the information seeking processes of a sample of informal caregivers of people with dementia (in relation to their own needs and the interrelated needs of the people they are caring for); the extent to which such information needs are and are not being met; and the factors facilitating and hindering access to the right information.Design/methodology/approachThe study adopted a qualitative approach in the form of a thematic analysis of in-depth, semi-structured interviews with a sample of 20 informal caregivers from a range of different age groups, genders and caring roles.FindingsThematic analysis identified significant informational challenges, with a common perception that information seeking was onerous, requiring a proactive approach. Further challenges arose from a perceived lack of focus on carer needs coming up against the boundaries of professional knowledge and inconsistent information provision across the sample. Distance carers faced specific issues. A second theme of negative impacts described burdens arising from: difficulties in accessing information from a complex array of support services closure or change in services and unfulfilled information needs. Participants employed strategies to enable access to information, for example, being open about their caring role; and building formal or informal support networks. It is important to address emotional as well as cognitive dimensions of information needs.Practical implicationsThis research highlights a need for health and social care, practice and policy to acknowledge and address information needs of this diverse population and build resilience. Above all, information seeking and sharing must be understood within the context of the emotional impact of caring, and recognition of these twin needs is crucial.Originality/valueWhilst previous research has focussed on identifying specific needs and knowledge acquisition at cross-sections, a more holistic understanding of experiences is underexplored. This approach is needed to take into account broader contexts, diversity of experiences and different caring roles, e.g. primary and secondary carers, and in situ and distance carers.

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Sense‐making, sensemaking and sense making—A systematic review and meta‐synthesis of literature in information science and education: An Annual Review of Information Science and Technology (ARIST) paper

Urquhart,

Cheuk,

Lam

et al. 2024

Asso for Info Science & Tech

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Sense‐making, sensemaking, and sense making are terms used in different disciplines. Similarities of usage seem unclear. (1) to examine the concepts used in different approaches to sense‐making/sensemaking/sense making; (2) to identify, classify and synthesize recent studies relevant to information science, as well as similar group on sensemaking in education research; (3) to reflect on future directions for sense‐making/sensemaking methodology in information science. The objectives were to retrieve, examine, classify and perform meta‐synthesis on sense‐making/sensemaking studies in both information science and education research. The review used systematic review principles, with selection criteria for case studies for examination in both information science and education sets. The final meta‐synthesis used a meta‐ethnographic approach, together with findings of recent overviews on organizational sensemaking, and other information science reviews. Qualitative sense‐making studies in information science often used Dervin's SMM (sense‐making methodology) and studies in organizations and education frequently used Weick's organizational sensemaking. Different mixed methods approaches were identified. Sense‐making is actively used in research and practice in information science and knowledge management. Using a coherent sense‐making methodology helps and dialogic principles are useful in planning, data collection and analysis. Individual and collective sense‐making are important to information science.

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The information trust formation process for informal caregivers of people with dementia: a qualitative study

Cited by 6 publications

References 56 publications

A systematic review of information source preference research

A systematic review of information source preference research

Information seeking amongst informal caregivers of people with dementia: a qualitative study

Sense‐making, sensemaking and sense making—A systematic review and meta‐synthesis of literature in information science and education: An Annual Review of Information Science and Technology (ARIST) paper

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