The Effects of a Special Computer Network on Caregivers of Persons with Alzheimer??s Disease

Brennan, Patrícia Flatley; Moore, Shirley M.; Smyth, Kathleen A.

doi:10.1097/00006199-199505000-00007

Cited by 197 publications

(181 citation statements)

References 0 publications

Supporting

Mentioning

174

Contrasting

Order By: Relevance

“…As documented in other studies, ease of use, quality of transmission, and convenience influence provider acceptance. 10 By moving information rather than the patient, telemedicine promises to enhance health care while dismantling the barrier of where and when genetics services are provided.…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Telegenetics in Maine: Successful clinical and educational service delivery model developed from a 3-year pilot project

Lea

Johnson

Ellingwood

et al. 2005

Genetics in Medicine

121

View full text Add to dashboard Cite

Purpose: The goal of this 3-year pilot project was to increase accessibility to genetics educational and clinical services in Maine. Methods: Southern Maine Genetics Services, Foundation for Blood Research in collaboration with Maine Telemedicine Services established telemedicine capacity to link with rural health care centers located in Northern, Central, and Southern Maine and public health nursing statewide for the provision of genetics clinical and educational services. Core partners included a rural family practice residency program, a rural pediatric practice in northern Maine, and public health nurses statewide. The telegenetics model created was based on development and implementation of a preventive and medical management technology solution, conducting a pilot study to collect data, and approaching insurance companies for reimbursement. Evaluation included surveys on the quality, acceptability, and usefulness of genetics services delivered via telemedicine, telephone interviews, and decision-making confidence evaluations. Results: During the project period, 24 rural clinical sites participated. In total, 93 presentations were given, and 125 patients were evaluated. Sixty-four percent of patients evaluated were pediatric. Despite site coordinator efforts to complete satisfaction surveys, the provider and patient response level was low (18% and 25%, respectively). Of those evaluations received, provider and patient response to telegenetics was positive. Decision-making confidence for genetics and neurology consultants was high. Our experience contributes to the development of telegenetics models that can be used in other rural states. Genet Med 2005: 7(1):21-27.

show abstract

Section: Discussionmentioning

confidence: 99%

“…A retrospective analysis of consultant decision-making confidence was also performed. For this analysis, decision-making confidence and satisfaction were measured using an investigatormodified decision confidence scale originally developed by Sanders and Courtney, 9 and later adapted by Brennan et al 10 and Young and Ireson. 11 …”

Section: Methodsmentioning

confidence: 99%

Telegenetics in Maine: Successful clinical and educational service delivery model developed from a 3-year pilot project

Lea

Johnson

Ellingwood

et al. 2005

Genetics in Medicine

121

View full text Add to dashboard Cite

show abstract

“…Examples include ComputerLink 13 , the REACH computer-integrated telephone system (CTIS 14 ); AlzOnline 15 , Caring for Others 16 and the DEM-DISC (DEMentia Digital Interactive Social Chart 17 ). These schemes usually include an online information resource related to dementia care and local services, which can be accessed using simple search tools [13][14][15]17 . Other schemes have used online question and answer forums or educational classes 13,15 .…”

Section: Abstract: Caregiver Dementia Technology Ict Grounded Thementioning

confidence: 99%

“…These schemes usually include an online information resource related to dementia care and local services, which can be accessed using simple search tools [13][14][15]17 . Other schemes have used online question and answer forums or educational classes 13,15 . Telephone conferencing has also been used to allow caregivers to discuss topics and share experiences 14,16 .…”

Section: Abstract: Caregiver Dementia Technology Ict Grounded Thementioning

confidence: 99%

Identifying opportunities for supporting caregivers of persons with dementia through information and communication technology

McHugh¹,

Wherton²,

Prendergast³

et al. 2013

Gerontechnology

View full text Add to dashboard Cite

“…A variety of services have been tested with family caregivers, including an intervention that has monthly telephone training sessions that focus on service use [31]; the Caregivers' Friend: Dealing with Dementia that provides web-based materials, written and video materials tailored to the individual [32] ; an Online Stress Management Training Program where caregivers exchange materials with each other, receive weekly psycho educational sessions, have access to online coaches and question-and-answer sessions at established times [33]. These technologically-based studies have had mixed findings, with some noting positive changes in decision-making confidence; improvement in health status, burden, mental health and depressive symptoms; well-being, confidence, self-efficacy, stress appraisal, selfcontrol and goal attainment [30].…”

Section: Technologically-based Caregiver Interventionsmentioning

confidence: 99%

An evidence-based technological caregiver skill building intervention for dementia family caregivers: pilot study

Farran¹,

Zurawski²,

Inventor³

et al. 2017

Alzheimers Dement Cogn Neurol

View full text Add to dashboard Cite

Family caregiving is a growing public health concern and caregivers of persons with Alzheimer's disease or other related dementias (ADRD) need appropriate, timely, and ongoing education and support to successfully meet their caregiving responsibilities. Well-designed interventions can significantly reduce risk concerning caregiver mental and physical health, and improve care recipient outcomes. Few interventions are translated into everyday practice; and most rely on in-person, professionally-led delivery methods, making them inaccessible to many family caregivers.The product developed and tested in this pilot study included six evidence-based Caregiver Skill Building Intervention (CSBI) modules, available via a web-based online format for ADRD caregivers. On-demand interactive training modules made up an integrated web-based product that taught family caregiver skills concerning how to care for their impaired family member. Product strengths include: a) an evidence-based intervention, developed from a prior group-based randomized clinical trial (RCT); b) a focus on caregiver management skill, rather than merely teaching facts; c) an interactive approach, enabling caregivers to apply information to realistic scenarios and receive immediate feedback to their responses; d) content which addresses key caregiving topics; and e) a convenient approach, available 24 hours/day/7 days/week from any location with internet access.The project enrolled 100 family caregivers and established feasibility of translating an RCT group intervention to an individualized web-based format. Caregivers positively evaluated this eLearning process (n=53); significantly increased caregiving skill at 6-and 12-weeks, (p=0.01 and 0.05, respectively); and improved caregiver depressive symptoms (p=0.01) and positive affect (p=0.05) at six weeks.

show abstract

The Effects of a Special Computer Network on Caregivers of Persons with Alzheimer??s Disease

Cited by 197 publications

References 0 publications

Telegenetics in Maine: Successful clinical and educational service delivery model developed from a 3-year pilot project

Telegenetics in Maine: Successful clinical and educational service delivery model developed from a 3-year pilot project

Identifying opportunities for supporting caregivers of persons with dementia through information and communication technology

An evidence-based technological caregiver skill building intervention for dementia family caregivers: pilot study

Contact Info

Product

Resources

About