Identifying opportunities for supporting caregivers of persons with dementia through information and communication technology

McHugh, Joanna E.; Wherton, Joseph; Prendergast, David; Lawlor, Brian A.

doi:10.4017/gt.2012.10.4.003.00

Cited by 27 publications

(44 citation statements)

References 38 publications

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“…Household work; 3(10%) Raivio et al, 2007;Wawrziczny et al, 2017;Zwaanswijk et al, 2013 c. Supervision/ support;6(19%) Galvin et al, 2011;Lai and Chung 2007;Landmark et al, 2013;Muangpaisan et al, 2010;Peeters et al, 2010;Wawrziczny et al, 2017 17(55%) Black et al, 2013;Lai and Chung, 2007;Czarnuch and Mihailidis, 2011;Gibson et al, 2014;Griffiths and Bunyarong, 2016;Hughes et al, 2014;Lawrence et al, 2008;Lilly et al, 2012;Millenaar et al, 2018;Muangpaisan et al, 2010;Raivio et al, 2007;Samia et al, 2012;Stirling et al, 2010;Vaingankar et al, 2013;Wawrziczny et al, 2017;Zwaanswijk et al, 2013 2. Relationship with Formal Service Providers 9(29%) Cascioli et al, 2008;Diehl-Schmid et al, 2013;Gibson et al, 2014;Lilly et al, 2012;McHugh et al, 2012;Millenaar et al, 2018;Samia et al, 2012;Vaingankar et al, 2013;Wawrziczny et al, 2017 3. Housing 3(10%) Vaingankar et al, 2013;Griffiths and Bunyarong, 2016;Muangpaisan et al, 2010 4.…”

Section: What Are the Defining Characteristics Of Studies Reporting Omentioning

confidence: 99%

“…16(52%) Black et al, 2013;Cascioli et al, 2008;Czarnuch and Mihailidis, 2011;Gratão et al, 2010;Hirakawa et al, 2011;Hughes et al, 2014;Kerpershoek et al, 2017;Lawrence et al, 2008;McHugh et al, 2012;Nichols et al, 2009;Nicolaou et al, 2010;Peterson et al, 2016;Rosa et al, 2010;Samia et al, 2012;Vaingankar et al, 2013;Zwaanswijk et al, 2013 Information about coping with behavioral problems and changes in PWD 15(48%) Boots et al, 2015;Cascioli et al, 2008;Gratão et al, 2010;Hirakawa et al, 2011;Jong and Boersma, 2009;Kerpershoek et al, 2017;Landmark et al, 2013;Lilly et al, 2012;McHugh et al, 2012;Nichols et al, 2009;Nicolaou et al, 2010;Peeters et al, 2010;Raivio et al, 2007;Rosa et al, 2010;Vaingankar et al, 2013 Information about dementia and dementia care 17(55%) Boots et al, 2015;Cascioli et al, 2008;Czarnuch and Mihailidis, 2011;Diehl-Schmid et al, 2013;Galvin et al, 2011;Hirakawa et al, 2011;Jong and Boersma, 2009;Kerpershoek et al, 2017;Lai and Chung, 2007;…”

Section: Education and Informationmentioning

confidence: 99%

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Understanding the needs of caregivers of persons with dementia: a scoping review

Queluz

Kervin

Wozney

et al. 2019

Int. Psychogeriatr.

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Background:The number of people living with dementia (PWD) is increasing worldwide, corresponding with an increasing number of caregivers for PWD. This study aims to identify and describe the literature surrounding the needs of caregivers of PWD and the solutions identified to meet these needs.Method:A literature search was performed in: PsycInfo, Medline, CINAHL, SCIELO and LILACS, January 2007–January 2018. Two independent reviewers evaluated 1,661 abstracts, and full-text screening was subsequently performed for 55 articles. The scoping review consisted of 31 studies, which were evaluated according to sociodemographic characteristics, methodological approach, and caregiver’s experiences, realities, and needs. To help extract and organize reported caregiver needs, we used the C.A.R.E. Tool as a guiding framework.Results:Thirty-one studies were identified. The most common needs were related to personal health (58% emotional health; 32% physical health) and receiving help from others (55%). Solutions from the articles reviewed primarily concerned information gaps (55%) and the education/learning needs of caregivers (52%).Conclusion:This review identified the needs of caregivers of PWD. Caregivers’ personal health emerged as a key area of need, while provision of information was identified as a key area of support. Future studies should explore the changes that occur in needs over the caregiving trajectory and consider comparing caregivers’ needs across different countries.

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Section: What Are the Defining Characteristics Of Studies Reporting Omentioning

confidence: 99%

Section: Education and Informationmentioning

confidence: 99%

Understanding the needs of caregivers of persons with dementia: a scoping review

Queluz

Kervin

Wozney

et al. 2019

Int. Psychogeriatr.

View full text Add to dashboard Cite

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“…Other studies have demonstrated the benefits of psychoeducational interventions for informal caregivers, which encompass a broad range of activities, such as counselling, advice about self‐care, and information about dementia, available services, and coping strategies . However, these interventions usually have time and place restrictions …”

Section: Introductionmentioning

confidence: 99%

“…8,9 However, these interventions usually have time and place restrictions. 10 Carer-held records (CHR) have been used in paediatric care to share information about a child's health condition and improve collaboration between carers (usually, the mother) and professionals. [11][12][13] Only two studies previously investigated the benefits of CHR for patients with dementia and their informal caregivers.…”

Section: Introductionmentioning

confidence: 99%

Usefulness of carer‐held records to support informal caregivers of patients with dementia who live at home

et al. 2018

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“…We previously interviewed participants on their needs in particular relation to social support. 26 Participants told us that they were primarily concerned with attaining educational and informational support, informal support (eg, having an emotional outlet), perceived social isolation, and with their spousal relationships.…”

Section: Introductionmentioning

confidence: 99%

Teleconferencing as a Source of Social Support for Older Spousal Caregivers

McHugh

Wherton

Prendergast

et al. 2012

Am J Alzheimers Dis Other Demen

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Teleconferencing is increasingly being used as a medium of delivering social support for dementia caregivers. Further direction is required from pilot studies before the optimal clinical service can be delivered. Following a 6-week pilot support group for spousal caregivers, delivered via teleconferencing software, we interviewed 8 participants for their feedback. Semi-structured interviews were conducted and analyzed using grounded theory analysis. Themes of "group processes" and "barriers," containing subcategories of "functions of the group," "responsibilities of facilitators," and "barriers to communication" were discussed. According to caregivers, successful teleconferencing support groups should acknowledge the caregiver as the dementia expert, allow participants to meet before the deployment of the support group, provide active facilitation and leadership via the researcher, employ user-friendly technologies, and facilitate for the group to self-maintain following the pilot deployment period. These issues should be taken into consideration when designing future teleconferencing applications for caregivers.

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Identifying opportunities for supporting caregivers of persons with dementia through information and communication technology

Cited by 27 publications

References 38 publications

Understanding the needs of caregivers of persons with dementia: a scoping review

Understanding the needs of caregivers of persons with dementia: a scoping review

Usefulness of carer‐held records to support informal caregivers of patients with dementia who live at home

Teleconferencing as a Source of Social Support for Older Spousal Caregivers

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