Usefulness of carer‐held records to support informal caregivers of patients with dementia who live at home

Sato, Shunsuke; Kazui, Hiroaki; Shimizu, Yoshiro; Yoshida, Tetsuhiko; Yoshiyama, Kenji; Kanemoto, Hideki; Suzuki, Yukiko; T, Morikami; Fujisue, H; Tanaka, Toshihisa; Ikeda, Manabu

doi:10.1111/psyg.12304

Cited by 4 publications

(2 citation statements)

References 22 publications

(45 reference statements)

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“…Enhanced collaboration between the physician and pharmacist may have improved the caregivers’ comprehension of dementia and reduced the caregivers’ sense of constraint due to the care provided. These findings were consistent with previous reports that have indicated that effective physician-pharmacist communication contributes to a better understanding of patient needs [ 36 ], while information sharing among families, physicians, care managers, and other professionals involved in care contributes to a reduction in the care burden [ 37 ].…”

Section: Discussionsupporting

confidence: 92%

Impact of interventions by a community pharmacist on care burden for people with dementia: development and randomized feasibility trial of an intervention protocol

Nanaumi

Yoshitani

Onda

2022

Pilot Feasibility Stud

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Background Traditionally, the role of pharmacists has been to manage and monitor pharmacotherapy for patients with dementia. However, additional intervention by community pharmacists to collect and share patient information with other professionals may help reduce the care burden among caregivers. The aims of this study were to examine (1) the feasibility of a designed community pharmacist working procedure in dementia care and (2) the expected impact of pharmacist intervention on care burden. Methods This was a randomized, open-label, parallel-group feasibility study, involving eight Nara City pharmaceutical association member pharmacies that provided consent to participate. These pharmacies were assigned to an intervention group or a control group at a 1:1 ratio. The subjects were patients with dementia and their primary caregivers that visited the participating pharmacies and provided consent to participate. Pharmacists in the intervention group actively collected information from the patients’ family physicians and care managers and intervened to address medication-related problems, while those in the control group only performed their normal duties. The primary endpoint was a change in the caregiver’s score on the Japanese version of Zarit Caregiver Burden interview (J-ZBI) from the baseline to after 5 months of follow-up. The changes in mean J-ZBI scores from the beginning to the end of the study period of the two groups were compared. Results Obtaining consent from caregivers was certainly difficult, but possible. Pharmacists managed to fill out the survey form while practising pharmaceutical care. Totally, nine patients and nine caregivers in the intervention group and nine patients and eight caregivers in the control group completed the study. The changes in J-ZBI scores could be calculated for seven cases in the intervention group and five cases in the control group. The J-ZBI scores were found to decrease by 1.0 in the intervention group and increase by 3.0 in the control group. Conclusions The protocol presented was considered feasible, but, the intervention process needs to be simplified in order to conduct a large study. Also, improvements are needed in the various survey forms and in the explanatory documents for caregivers. Although the sample size was small, the effect sizes suggested that community pharmacist interventions for patient with dementia may reduce the care burden for caregivers. Trial registration UMIN000039949 (registration date: 1 April 2020, retrospectively registered)

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Section: Discussionsupporting

confidence: 92%

Impact of interventions by a community pharmacist on care burden for people with dementia: development and randomized feasibility trial of an intervention protocol

Nanaumi

Yoshitani

Onda

2022

Pilot Feasibility Stud

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“…In Korea, the number of PwDs among adults aged ≥ 65 years in 2020 was 840,000 and is expected to exceed three million by 2050 (Ministry of Health and Welfare & Central Dementia Center, 2022). Dementia is a neurodegenerative disease associated with various problems, including cognitive decline, speech dysfunction, and behavioral and psychological symptoms (Cerejeira et al, 2012; Sato et al, 2018), that make it difficult for PwDs to perform independent activities of daily living and necessitate continuous nursing care (Khanassov et al, 2021; Prince et al, 2016). In general, family members are the primary source of care for PwDs, with many PwDs cared for at home (Andreakou et al, 2016).…”

Section: Introductionmentioning

confidence: 99%

Predictors of Sleep Quality in Spouse Caregivers of Community-Dwelling People With Dementia Using Propensity Score Matching Analysis

CHU,

JANG

2023

Journal of Nursing Research

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Background Many family caregivers of people with dementia (PwDs) have sleep problems and poor sleep quality. Sleep may be negatively affected by caring for a family member with dementia, especially a spouse. Purpose This study was designed to assess sleep quality in spouse caregivers of PwDs and determine the impact of care provision on their sleep quality. Methods A secondary analysis of 58,050 participants in the 2018 Korea Community Health Survey was conducted. To prevent selection bias, a propensity score matching analysis was performed. Multiple logistic regression analysis was conducted to investigate the predictors of sleep quality. Results After obtaining a propensity score matching threshold of 3:1, the percentage of poor sleepers was 24.2% in the control group and 33.3% in the spouse-caregiver group, which indicates a significant difference (χ2 = 11.79, p = .001). After adjusting for depressive symptoms in the multiple logistic analyses, no intergroup difference was found in terms of risk of poor sleep quality (odds ratio = 1.12, 95% CI [0.90, 1.61]). Conclusions/Implications for Practice The findings of this study support that spouse caregivers of PwDs have poorer sleep quality than their nonspouse peers and that management of depressive symptoms is important to improving the sleep quality of spouses providing care to PwDs. Nursing interventions such as light therapy and exposure to sunlight during daytime hours to both improve sleep quality and reduce depressive symptoms can improve sleep quality in this vulnerable caregiver group.

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Family-Centered Primary Care for Older Adults with Cognitive Impairment

et al. 2021

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Usefulness of carer‐held records to support informal caregivers of patients with dementia who live at home

Abstract: CHR were useful for informal caregivers of patients with dementia. However, care managers need to teach informal caregivers how to properly use CHR.

Cited by 4 publications

References 22 publications

Impact of interventions by a community pharmacist on care burden for people with dementia: development and randomized feasibility trial of an intervention protocol

Impact of interventions by a community pharmacist on care burden for people with dementia: development and randomized feasibility trial of an intervention protocol

Predictors of Sleep Quality in Spouse Caregivers of Community-Dwelling People With Dementia Using Propensity Score Matching Analysis

Family-Centered Primary Care for Older Adults with Cognitive Impairment

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