The Effect of Spiritual Self-Care Education on the Care Burden of Mothers With Children Hospitalized in Intensive Care Units for Open Heart Surgery

Abstract

Objective: Spiritual health of caregivers has association with the patients’ health, but less attention has been paid to spiritual self-care education in health programs. This study aimed to assess the effect of spiritual self-care education on the care burden of mothers with children in hospitalized in Intensive Care Units (ICUs) for open heart surgery. Methods: This quasi-experimental study was conducted on 60 mothers of children hospitalized in ICUs of Shahid Modarres Hospital in Tehran, Iran. They were selected randomly from among those gave informed consent to participate in the study. The data collection tools were a demographic form and Zarit Burden Interview which were completed before and after intervention. The spiritual self-care education was presented using the teaching aids in four 45-min sessions, twice a week. Collected data were analyzed in SPSS V. 24 software using descriptive (frequency, percentage) and inferential (paired t-test) statistics at a significance level of P<0.05. Results: Before the intervention, 72.3% of the samples had a severe care burden and 24.5% had a very severe care burden, which decreased after the intervention such that only 32.7% had a severe care burden. The mean and standard deviation of mothers’ care burden also decreased after the educational intervention (from 62.3±7.6 to 42.1±3.8). The results of paired t-test showed that this difference was statistically significant (P<0.001). Conclusion: Spiritual self-care education can reduce the care burden of children’ caregivers; hence, planning and implementing appropriate programs to increase self-care knowledge of caregivers (especially the mothers of children with heart problems) and medical staff and paying more attention to mothers’ education are recommended.

Investigating the effectiveness of the supportive-educational program, based on COPE model, on the quality of life and caregiver burden of family caregivers of heart failure patients: A randomized clinical trial study

“…In a study on the effect of group training on the caregiver burden of caregivers of cancer children, Ali Akbarian et al ( 2019) reported that group training empowers parents to take care of their children, which in turn reduces the caregiver burden of these caregivers (14). In a study of the effect of spiritual self-care training on the caregiver burden of mothers of children undergoing heart surgery in pediatric cardiac intensive care unit, Delir et al ( 2019) showed that spiritual self-care training reduces the caregiver burden in mothers of children undergoing heart surgery (15), and both studies are consistent with the present study. In a study of the perceived stress and caregiver burden in elderly caregivers: the moderating role of resilience, Jafari et al (2022) showed that elderly caregivers experience a moderate to high caregiver burden (35).…”

“…Pressure or caregiver burden describes the physical, psychological, socioeconomic reactions that are imposed on the caregiver during the care of the patient (14). In fact, caregiver burden is a type of continuous tension or negative experience caused by patient care, which causes a decrease in the physical and mental health of the caregiver (14,15). The increased caregiver burden in caregivers causes changes in their lifestyle and subsequent consequences such as inadequate patient care, patient abandonment, family isolation, weaker performance, decreased well-being, decreased self-control, more psycho-social stress, being frustrated from social support, disrupted family relationships, all of which reduce the quality of life of caregivers and even patients themselves (16,17).…”

The Effect of the Extended Parallel Process Model on Self-efficacy of Spouses of Veterans with Post-traumatic Stress Disorder

“…The results of some similar studies align with the present study's findings. Dalir et al examined the effect of spiritual self-care training on the care burden of mothers with children hospitalized in intensive care units for open heart surgery (21). The amount of care burden on caregivers was high.…”

“…The amount of care burden on caregivers was high. After training in spiritual self-care, the care burden of caregivers decreased to a moderate level (21). Bamari et al evaluated caregivers' burden of patients with type 2 diabetes referred to a diabetes clinic in Zabol, Iran.…”

Effect of Educational Intervention Based on Self-Efficacy Theory on The Caring Behavior of Mothers Having Children with Cancer

“…The data analysis results also con rmed such a relationship. On the other hand, the high number of chemotherapy sessions can be attributed to the severity of the disease and that the mother would be able to accompany the child to perform chemotherapy with more ability due to understanding the severity of the disease [42,43].…”