The effect of parental participation in the care of hospitalized children on parent satisfaction and parent and child anxiety: Randomized controlled trial

Abstract

Background Child hospitalization is a stressful experience for both children and their parents. Parents should establish effective communication with healthcare professionals to be able to participate in the care of their children in the hospital environment. Aims and Objectives The purpose of the study was to determine the effect of parental participation in the care of hospitalized children on parent satisfaction and parent and child anxiety. Design The design used for this study was randomized controlled trial. Methods The study data were collected between 1 February and 31 May 2016. Frequency, percentage, paired t test, Mann–Whitney U and Wilcoxon were used to analyse the data. Results The study compared the parents' pretest and posttest scores on the anxiety and found that there was a statistically significant difference between the posttest scores of intervention and control groups. There was also a statistically significant difference parental participation and overall satisfaction subscales of the parent satisfaction as well as their total scores and mean scores. Comparison of the children's posttest scores on the anxiety inventory also found a statistically significant difference. Conclusion The study concluded that parental participation in the care of hospitalized children increases parent satisfaction with healthcare, and reduces anxiety of both parents and children.

Perception of family members and health professionals about institutional violence against hospitalized children

“…Thus, when considering the condition of vulnerability of the child, due to the immaturity of their neurocognitive and motor systems, the experience of IV in this age group can have even more serious consequences, affecting child development. Corroborating this statement, research confirms that hospitalized children are more likely to develop psychiatric disorders in the medium and long term, such as anxiety, depression, obesity and other chronic diseases (7)(8) .…”

“…The lack of information and the loss of the child's autonomy are also strongly related to the behavior of prejudice and discrimination, which can constitute psychological violence. Psychological violence against children, despite being much tolerated by society, includes any action and omission that results in damage to the self-esteem, identity and development of the individual, since its victims remain subject to the power of adults who coerce them to exercise their interests (4)(5)(6)(7)(8)(9)(10)(11)(12)(13)(14)(15)(16) .…”

“…For the contemporary philosopher Michel Foucault, the hospital, since its origin, has been a disciplinary place, established by the medical order, evolving towards the depersonalization of the hospitalized patient (9) . In this space, the body of individuals is considered both a target of care and an object of power (1)(2)(3)(4)(5)(6)(7)(8)(9) . The professional controls, prescribes and monitors behaviors, often through punishment, threats, screams and anger.…”

Parental engagement practices with young children during hospitalization: a cross-sectional survey from Pakistan

“…However, professional support during hospitalization for the paediatric patient alone may be insu cient especially if parents lack appropriate skills, as healthcare providers usually spend minimal/nominal time with the patient and their family [6]. The few studies that include parents in interventions indicate that parental stress continues despite professionally delivered interventions for children [7,8,9] as parents may not be given su cient opportunity to actively participate in decision-making around their child's recovery, well-being, and development. There are additional challenges for delivery in low to middle-income countries (LMIC) due to human and nancial resource constraints [10], and professional time spent counselling and training parents to develop coping and interactive skills for the child's recovery is even lower/minimal [11].…”

“…Two arguments can be conceptualized for parental role in intervention for care of children who are unwell in such contexts. Firstly, parental involvement in their child's care is a core component of family-centred care since parental stress and coping skills in uence the child's healing and developmental outcomes [7,13]. Parental expectation to be involved in childcare is a consistent theme in the healthcare literature which adds to overall satisfaction with the services [12, 14 -19].…”