The effect of education and group interaction on the family burden and support in the mothers of intellectually disabled children

Çalışkan, Zehra; Bayat, Meral

doi:10.5455/apd.184412

Cited by 11 publications

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“…4 It is emphasized that this situation, which is difficult to get used to, affects parents' close environment economically, socially, and psychologically. 2,3,5 In addition, disability in children affects the emotional burden in the family, the social support for families is low, 6 and the physical and mental health of mothers, especially, is negatively affected due to their higher responsibility for these children. 7 Families need help and support in dealing with the stressful and long-term changes required to care for a child with disabilities.…”

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confidence: 99%

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Determination of burnout, life satisfaction, and stress coping styles of parents with disabled children

Çalışkan

Evgi̇n

Caner

et al. 2021

Perspect Psychiatr Care

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and coping strategies of families who had a disabled child and the relationships between them.Design and Methods: This descriptive and cross-sectional study conducted with 191 parents of children with disabilities.Findings: As the life satisfaction of childcare providers increased, their emotional exhaustion decreased and sense of personal accomplishment increased (p < 0.05).Practice Implications: It is necessary that nurses and health team members should provide regular and continuous education for burnout, life satisfaction, family stress and coping styles to parents of disabled children using interactive education techniques and group interactions.burnout, coping with stress, disabled child, life satisfaction parent | INTRODUCTIONHaving a child with a disability is a crisis situation that can affect the quality of life of family members, the gender roles of parents, their economic expenses, their working status, their health, stress situations, their decision to maintain a marriage, and their decision to give birth to a new child. 1 The presence of a disabled person in the family generates ongoing problems in every period of life. Living with a disabled individual requires adaptation and causes some limitations in the lives of family members. 2,3 The birth of the disabled child or the subsequent disability situation causes difficulties and changes as the family members adapt to the new conditions, family structure, and relationships with each other and their inner worlds. 4 It is emphasized that this situation, which is difficult to get used to, affects parents' close environment economically, socially, and psychologically. 2,3,5 In addition, disability in children affects the emotional burden in the family, the social support for families is low, 6 and the physical and mental health of mothers, especially, is negatively affected due to their higher responsibility for these children. 7 Families need help and support in dealing with the stressful and long-term changes required to care for a child with disabilities. Therefore, it is important for nurses who care for children with disabilities and their families to know these families, to know their lives, and to plan family-centered nursing care. The nurse should make a holistic and family-centered care plan using many roles and independent functions such as educator, counselor, advocate, decision maker, and caregiver while carrying out her studies in this field. 8,9 Research indicates that the gathering of families with similar problems has positive effects, professional support services for families reduces stress, family burdens, 6 and burnouts, and increase their satisfaction. 10,11 Nurses, who have a responsibility to provide This study was presented as an oral presentation in the 1st International 2nd National Public Health Nursing Congress, April 23-26, 2018, Ankara.holistic care to families, should advise these families on coping with stress and take initiatives to increase their social support. 10,12,31 Despite descriptive studies in the literature rega...

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“…The researchers developed this based on the literature reviewed. 6,[19][20][21] The information form gathered the socio-demographic characteristics of the child with disabilities and their parents. Questions regarding the difficulties experienced by the parents in their individual and family life due to the disability in their children were included.…”

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Determination of burnout, life satisfaction, and stress coping styles of parents with disabled children

Çalışkan

Evgi̇n

Caner

et al. 2021

Perspect Psychiatr Care

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“…Bu yük diğer aile üyelerinin annenin bu sorumluluğuna ortak olmaları hâ-linde bir ölçüde hafifletilebilir. [8] Ailede zihinsel engelli bir çocuğun varlığı birçok duygusal problemi de meydana getirir. Çoğu aile çocuğun engelli olduğunu akrabalarına ve arkadaşlarına açıklamakta güçlük çeker.…”

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“…[16] Bu araştırmaya katılan annelerin çoğu AY-DÖ'den 97 üstü bir puan almıştır. Caliskan ve Bayat'ın [8] (2016) araştırmasında, engelli çocuğu olan annelerin aile yükü puanının 97 üzeri olduğu bulunmuştur. Bu ağır düzeyde bir yük anlamına gelmekte olup geçmiş araştırmaların bulgularını desteklemektedir.…”

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“…Ayrıca sosyal çevrelerinin küçülmesi ve yaşam tarzlarında ciddi değişiklikler gibi birçok sıkıntıyı da beraberinde getirmektedir. [7,8] Aileler çocuklarının zihinsel engelli olduğunu öğrendiklerinde belirsizlik, şok, inkâr, suçluluk, kızgınlık, depresyon evrelerinden geçer ve ardından bu durumu kabullenirler. Ebeveynler sıklıkla bu evreler arasında gidip gelebilir veya bir evreye takılıp kalabilirler.…”

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Determining The Difficulties Faced By Families With Intellectual Disability Children And The Burden On The Family

Balcı¹,

Kızıl²,

Şavaşer³

et al. 2018

Psi Hem Derg

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The effect of a training program on family stress and life satisfaction: A randomized controlled study of mothers of children with disabilities

Çalışkan,

Özyurt,

Evgin

et al. 2024

Archives of Psychiatric Nursing

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The effect of education and group interaction on the family burden and support in the mothers of intellectually disabled children

Cited by 11 publications

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Determination of burnout, life satisfaction, and stress coping styles of parents with disabled children

Determination of burnout, life satisfaction, and stress coping styles of parents with disabled children

Determining The Difficulties Faced By Families With Intellectual Disability Children And The Burden On The Family

The effect of a training program on family stress and life satisfaction: A randomized controlled study of mothers of children with disabilities

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