The Economic Impact on Australian Patients with Neuroendocrine Tumours

Patient-Reported Financial Distress in Cancer: A Systematic Review of Risk Factors in Universal Healthcare Systems

“…The operationalisation of subjective financial distress, however, differed across studies regarding (1) instruments, (2) domains and (3) statistical approaches. In most studies ( n = 28), financial distress was assessed by a subscale of a patient-reported outcome measure with a different focus (often HRQoL), whereas six studies [ 7 , 43 , 49 , 50 , 51 , 52 ] used specific instruments for financial distress. The majority of instruments assess financial distress through questions regarding material conditions, especially when applying validated instruments ( n = 21).…”

“…Eleven studies applied non-validated subscales, often incorporated within self-designed instruments and mainly measuring objective financial burden (e.g., OOP costs). Psychosocial responses were relatively more integrated in non-validated subscales, either complementary [ 38 , 50 ] or substitutive [ 46 , 54 , 55 , 56 , 57 , 58 ] to material components. Behavioural aspects were less often considered, except for [ 7 , 38 , 50 , 59 ].…”

“…Psychosocial responses were relatively more integrated in non-validated subscales, either complementary [ 38 , 50 ] or substitutive [ 46 , 54 , 55 , 56 , 57 , 58 ] to material components. Behavioural aspects were less often considered, except for [ 7 , 38 , 50 , 59 ].…”

“…In order to assess the impact of potential risk factors on financial distress, different approaches are pursued in quantitative studies. Some studies report the measured frequencies of identified prevalent risk factors [ 16 , 32 , 38 , 50 ], while others tested for differences between groups or time points using null-hypothesis significance testing [ 27 , 28 , 31 , 54 , 60 , 61 , 62 ]. Most studies ( n = 20) controlled for potential confounders and evaluated predictors for financial distress through regression models or analyses of variance.…”

Real‐world management and patient perspectives on QOL with neuroendocrine tumors: An ANZ perspective

“…The eventual delivery of the diagnosis frequently results in patients having to deal with a myriad of emotions. In addition, medical tests, travel‐related expenses, and specialist visits are common cost burdens, 27 and patients with NETs may also experience job loss or early retirement due to their disease.…”