The Economic Costs of Autism Spectrum Disorder: A Literature Review

Rogge, Nicky; Janssen, Juliette

doi:10.1007/s10803-019-04014-z

Cited by 229 publications

(162 citation statements)

References 71 publications

(9 reference statements)

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“…Short bouts of therapy, waitlists, and aging-out before accessing services were key areas of concerns, especially for those who were not in the financial situation to fund private therapies. Consistent with numerous reports indicating the costs associated with raising a child with ASD (e.g., Cidav et al, 2012;Rogge and Janssen, 2019), caregivers expressed the need for additional resources and services to introduce new activities, encourage increased participation, and ultimately contribute to improved social and motor skills.…”

Section: Participation Levels Of Children With Asd Are Context Specificmentioning

confidence: 56%

Exploring Caregiver Perspectives of Social and Motor Skills in Children With Autism Spectrum Disorder and the Impact on Participation

Rios

Benson

2020

Front. Psychol.

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Participation is a key aspect of quality of life and is essential for children's well-being, yet children with disabilities are at risk for lower participation in social activities. For children with autism spectrum disorder (ASD), social skills may present a significant obstacle for participation in activities of daily life; however, motor skill development may also serve an important contributing factor. Nevertheless, the link between social and motor skills in children with ASD is not fully understood. The current research implemented semistructured interviews to garner descriptive insights from caregivers (N = 17) into the social and motor skills of 5-to 9-year-old children with ASD and the impact on participation in social activities. A constant comparative method was used to generate a coherent and thematic representation of caregivers' experiences. Thematic analysis revealed core consistencies in three areas: (1) caregivers viewed participation differently than their children; (2) participation levels of children with ASD are context specific; (3) challenges with social skills were perceived to present a greater obstacle to participation than motor skills. Overall, the notion that ASD is a heterogeneous disorder was made very apparent. Although caregivers believe there to be immense value in current treatment and intervention options, the availability and access to such options was a major barrier. The effectiveness of intervention programming designed to increase participation is contingent on understanding factors that affect participation. Implications concerning caregivers' perspectives are discussed.

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Section: Participation Levels Of Children With Asd Are Context Specificmentioning

confidence: 56%

Exploring Caregiver Perspectives of Social and Motor Skills in Children With Autism Spectrum Disorder and the Impact on Participation

Rios

Benson

2020

Front. Psychol.

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“…Empirical investigations of the impact of these diverse influences on intra‐country variations will be very challenging and would ultimately necessitate a close study of assessment and intervention practices within schools as well as more detail on pupil and family characteristics. Yet intra‐country variations must be addressed, especially for the economic consequences that arise, such as the equitable funding of support services to pupils and families, of which education is the most costly (Rogge and Janssen, 2019). The value of the present data is that it widens the context within which research questions.…”

Section: Discussionmentioning

confidence: 99%

The rise in the numbers of pupils identified by schools with autism spectrum disorder (ASD): a comparison of the four countries in the United Kingdom

McConkey¹

2020

Support for Learning

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An annual school census is held in the four countries of the UK in which pupils with ASD are identified. This longitudinal study of the total UK school population compares increases in prevalence rates for pupils with ASD over a nine‐year period from 2010/11. Northern Ireland had the highest prevalence throughout, reaching 3.20% by 2018/19 compared to 1.92% in Wales. The prevalence rates were higher in secondary than in primary schools. The increases in prevalence and intra‐country variations may be linked to a greater appreciation of ASD occurring alongside other developmental difficulties. Greater reliance on school rather than statutory assessments may also contribute to increases in pupils with ASD. More in‐depth research is needed to establish the reason for the variations across years and countries.

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“…The ASD management cost was predicted to rise up to USD461 billion in 2025, and it would then also exceed the costs of diabetes and ADHD management. Globally, the financial burden of families affected by ASD is enormous (Rogge & Janssen 2019). In Malaysia, it is estimated that each family is spending around RM25000 -RM35000 annual for the remediation, education, treatment and living costs of a child with ASD (Kamaralzaman et al 2018;Najib & Juni 2019).…”

Section: Introductionmentioning

confidence: 99%

A Survey of Lay Knowledge of Autism Spectrum Disorder in Malaysia

Low

2021

JSKM

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Today, increasingly more people worldwide are aware about Autism Spectrum Disorder (ASD). However, their actual understanding about ASD is yet unknown. In this study, the lay knowledge on the social communication and language deficits of ASD was investigated using a brief survey involving an elite sample in Malaysia. The survey findings revealed that the vast majority of the respondents had superficial understanding about the social communication and language deficits of ASD. In general, they could relate to ASD as a type of learning disability, but they were less familiar with the diagnostic features and remedial needs of ASD. Another key finding was that the respondents reported different sources of obtaining ASD knowledge according to their demographic profiles (namely age, gender, education and occupation), which correspondingly led to variability in the type of knowledge they obtained. Together, the findings implied that content-specific ASD awareness programs through the right channels are warranted for optimizing efficacy in knowledge transfer and minimizing redundancy in existing ASD awareness campaigns. Increased lay knowledge on ASD will provide a public guardian ground for children with ASD to ensure that the challenges faced by them can be identified at an early age for optimizing the remedial outcomes.

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The Economic Costs of Autism Spectrum Disorder: A Literature Review

Cited by 229 publications

References 71 publications

Exploring Caregiver Perspectives of Social and Motor Skills in Children With Autism Spectrum Disorder and the Impact on Participation

Exploring Caregiver Perspectives of Social and Motor Skills in Children With Autism Spectrum Disorder and the Impact on Participation

The rise in the numbers of pupils identified by schools with autism spectrum disorder (ASD): a comparison of the four countries in the United Kingdom

A Survey of Lay Knowledge of Autism Spectrum Disorder in Malaysia

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