The Challenge of Quality Cancer Care for Family Caregivers

Abstract

Nurses must take a leadership role to provide standards, guidelines, and best practices for support of the caregiver.

Perfil Nutricional E Qualidade De Vida De Cuidadores De Crianças E Adolescentes Com Câncer

“…Na avaliação da QV, o único domínio em que houve variação significativa foi o de vitalidade, com uma queda no índice de 66,3 para 58,9 (T0 para T2) (p < 0,042). Nos demais domínios, os valores no T0 foram similares aos escores observados em outros estudos de metodologia transversal que compararam a QV de cuidadores ou pais de crianças com câncer com cuidadores ou pais de crianças saudáveis 7,8,[22][23][24] . Esses dados sugerem que, já no momento do diagnóstico, existe um impacto nos domínios de QV, e não somente depois de instituído o tratamento, como sugerido por Klassen et al 9 .…”

Efficacy and cost-effectiveness of an outcall program to reduce carer burden and depression among carers of cancer patients [PROTECT]: rationale and design of a randomized controlled trial

“…Recent reviews of cancer carer studies found that carer interventions tended to address the patient’s care rather than dealing with carers’ unique needs [3,13,27,28]. Based on these findings, several areas were identified as being in need of further research; a) the identification of carers at higher risk of poor outcomes, so that interventions can be targeted to them; b) address socioeconomic differences; c) an economic evaluation, to understand the relationships between intervention delivery costs, health care utilization and intervention effectiveness, and d) the use of innovative technologies to deliver effective interventions.…”

The experiences of caregivers providing home care for terminally ill family members at the end of life: A phenomenological study in Bahrain

“…[14,15] As a consequence, family caregivers develop physical and psychological illnesses during caregiving. [6,7,[14][15][16] In addition, they report unmet needs. [16][17][18][19] Background Systematic reviews of qualitative and quantitative literature concerning relatives requirements caring for family members at the end of life care, Funk et al [11] and Stajduhar et al [13] documented that relatives have complex needs different from the people they are caring for, and should be treated as individuals with unique needs.…”

“…[6,7,[14][15][16] In addition, they report unmet needs. [16][17][18][19] Background Systematic reviews of qualitative and quantitative literature concerning relatives requirements caring for family members at the end of life care, Funk et al [11] and Stajduhar et al [13] documented that relatives have complex needs different from the people they are caring for, and should be treated as individuals with unique needs. [17][18][19] Frequently caregivers experience giving care as a burden because of the responsibilities involved in helping the patient survive the journey of cancer, or alternatively to have a peaceful death.…”

“…It is imperative for nurses to assess the needs of the patient's family prior to discharge to ensure effective care provision at home that will alleviate patient as well as family suffering. [5,16] Interestingly, international studies reported unmet needs despite the availability of home nursing care and hospice services. [15][16][17][18][19]21] Through professional interactions with the family members caring for terminal cancer relatives, the first author became aware of the difficulties relatives experienced in providing home care for terminally ill relatives.…”