The Cardiff Acne Disability Index (CADI): linguistic and cultural validation in Serbian

Janković, Slavenka; Vukičević, Jelica; Djordjević, Sanja; Janković, Janko; Marinković, Jelena; Basra, M. K. A.

doi:10.1007/s11136-012-0136-4

Cited by 21 publications

(19 citation statements)

References 17 publications

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“…15 There are two types of criterion validity: concurrent and predictive. 15 Three studies demonstrated concurrent validity, two between CDLQI and Cardiff Acne Disability Index (CADI) 5,14 and one between CDLQI and Childhood Atopic Dermatitis Impact Scale (CADIS). 15 The assessment of predictive validity involves giving the patient a new instrument at baseline and the gold standard later on.…”

Section: Criterion Validitymentioning

confidence: 99%

“…15 The assessment of predictive validity involves giving the patient a new instrument at baseline and the gold standard later on. 15 Three studies demonstrated concurrent validity, two between CDLQI and Cardiff Acne Disability Index (CADI) 5,14 and one between CDLQI and Childhood Atopic Dermatitis Impact Scale (CADIS). 25 Ramirez-Anaya et al 26 reported the concurrent validity of CDLQI by examining its correlation with the Dartmouth Cooperative Functional Assessment Chart (Dartmouth-COOP) and the Scoring Atopic Dermatitis (SCORAD) tool.…”

Section: Criterion Validitymentioning

confidence: 99%

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Clinical experience and psychometric properties of the Children's Dermatology Life Quality Index (CDLQI), 1995-2012

et al. 2013

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The Children's Dermatology Life Quality Index (CDLQI) is a widely used questionnaire to measure the quality of life of children aged from 4 to 16 years. The purpose of this review is to summarize all published data regarding the clinical experience of the CDLQI and its psychometric properties as a single reference source for potential users. A literature search was carried out to identify all articles describing the use of the CDLQI from 1995 to November 2012. One hundred and six articles were identified, with four excluded. The CDLQI has been used in 28 countries in 102 clinical studies and is available in 44 languages, including six cultural adaptations; a cartoon version is available in 10 languages. It has been used in 14 skin conditions and used in the assessment of 11 topical drugs, nine systemic drugs, 13 therapeutic interventions and two epidemiological and other studies. There is evidence of high internal consistency, test-retest reliability, responsiveness to change, and significant correlation with other subjective and objective measures. Rasch analysis has not been carried out and more information is needed concerning minimal clinically important difference; these are areas requiring further study.

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Section: Criterion Validitymentioning

confidence: 99%

Section: Criterion Validitymentioning

confidence: 99%

Clinical experience and psychometric properties of the Children's Dermatology Life Quality Index (CDLQI), 1995-2012

et al. 2013

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“…Changes in CAR were not statistically significant [t=1.08 (12), p=0.30] (see Table 5). Interestingly, at baseline CAR values were minimal and diminished even further at follow-up for both men and women[31]. …”

Section: Resultsmentioning

confidence: 99%

“…However, these findings should be interpreted with caution as statistical power was low given the sample size and inability to adjust for multiple comparisons or potential covariate factors. Cortisol data, similarly limited by sample size, showed no significant change over time but was notably low compared to values observed among healthy adults[31]. This may reflect chronic dysregulation of cortisol and be more strongly tied to fatigue.…”

Section: Discussionmentioning

confidence: 99%

“…Cortisol awakening response (CAR) is the change between first waking and 30 minutes after waking[30]. Under natural conditions in healthy adults, increases in CAR vary but have been found to average 50% (equivalent to a mean CAR of 0.28 ug/dL) with a minimum CAR of 0.09 ug/dL for identification as a CAR[31]. However, substantially larger increases in CAR have been positively associated with levels of daily stress [32].…”

Section: Methodsmentioning

confidence: 99%

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Design, development, and feasibility of a spanish-language cancer survivor support group

Ceballos

Molina

Malen

et al. 2015

Support Care Cancer

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Purpose Latino cancer survivors experience lower psychosocial well-being compared to Non-Latino Whites. This study describes the development of a culturally-appropriate support group and reports on feasibility of implementation and preliminary outcomes. Methods Promotores (lay health workers) conducted all aspects of data collection and program implementation. Participants were 29 Spanish-speaking Latino cancer survivors (n=12 men, 17 women) who took part in one of three study phases. Phase 1 included one-on-one interviews and focus groups (n=14) to investigate psychosocial needs of survivors. During Phase 2, a 10-week program was developed that integrated data from Phase 1 and culturally-relevant concepts. Session topics included stress, nutrition, physical activity, body image, sexuality, medical advocacy and social support. In Phase 3, the program was implemented within gender-specific groups (n=15). Within-group pre-post comparisons of distress (distress thermometer, salivary cortisol) and quality of life (FACIT) were conducted. Follow-up focus groups assessed participant experience Results Phase 1 activities identified survivor needs and interests (e.g., isolation, family and spirituality, supporting other Latinos with cancer). Evidence of program feasibility was demonstrated (e.g., 90%–100% attendance, 100% data completion). While interpretation of significance is limited due to sample size, improvements in quality of life [functional (p=0.05), social (p=0.02), and meaning/purpose (p=0.05)] were observed among women but not men. Qualitative follow-up revealed high satisfaction with group participation, but discomfort with the topic of sexuality in women. Conclusions This project demonstrates development and feasibility outcomes for providing culturally-appropriate psychosocial support to Latino cancer survivors. Limitations, including lack of control group, and future directions are discussed.

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Patient-Reported Outcome Measures for Health-Related Quality of Life in Patients With Acne Vulgaris

et al. 2022

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ImportanceMultiple patient-reported outcome measures (PROMs) for health-related quality of life (HRQoL) exist for patients with acne. However, little is known about the content validity and other measurement properties of these PROMs.ObjectiveTo systematically review PROMs for HRQoL in adults or adolescents with acne.Data SourcesEligible studies were extracted from PubMed and Embase (OVID).Study SelectionFull-text articles published in English or Spanish on development, pilot, or validation studies for acne-specific, dermatology-specific, or generic HRQoL PROMs were included. Development studies included original development studies, even if not studied in acne patients per Consensus-Based Standards for the Selection of Health Measurement Instruments (COSMIN) recommendations. If a study included several diagnoses, the majority (ie, over 50%) of patients must have acne or acne-specific subgroup analyses must be available. Abstract and full-text screening was performed by 2 independent reviewers.Data Extraction and SynthesisTwo independent reviewers assessed study quality applying the COSMIN checklist and extracted and analyzed the data. For each distinctive PROM, quality of evidence was graded by measurement property.Main Outcomes and MeasuresPROM properties (target population, domains, recall period, development language), PROM development and pilot studies, content validity (relevance, comprehensiveness, comprehensibility), and remaining measurement properties (structural validity, internal consistency, cross-cultural validity, reliability, measurement error, criterion validity, construct validity, and responsiveness). Quality of evidence was assigned for each measurement property of included PROMs. An overall recommendation level was assigned based on content validity and quality of the evidence of measurement properties.ResultsWe identified 54 acne PROM development or validation studies for 10 acne-specific PROMs, 6 dermatology-specific PROMs, and 5 generic PROMs. Few PROMs had studies for responsiveness. The only acne-specific PROMs with sufficient evidence for content validity were the CompAQ and Acne-Q. Based on available evidence, the Acne-Q and CompAQ can be recommended for use in acne clinical studies.Conclusions and RelevanceTwo PROMs can currently be recommended for use in acne clinical studies: the Acne-Q and CompAQ. Evidence on content validity and other measurement properties were lacking for all PROMs; further research investigating the quality of remaining acne-specific, dermatology-specific, and generic HRQoL PROMs is required to recommend their use.

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The Cardiff Acne Disability Index (CADI): linguistic and cultural validation in Serbian

Abstract: The Serbian version of the CADI is a reliable, valid, and valuable tool for assessing the impact of acne on the quality of life of Serbian-speaking patients.

Cited by 21 publications

References 17 publications

Clinical experience and psychometric properties of the Children's Dermatology Life Quality Index (CDLQI), 1995-2012

Clinical experience and psychometric properties of the Children's Dermatology Life Quality Index (CDLQI), 1995-2012

Design, development, and feasibility of a spanish-language cancer survivor support group

Patient-Reported Outcome Measures for Health-Related Quality of Life in Patients With Acne Vulgaris

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