The Cancer Information Service: Using CBPR in Building Community Capacity

Davis, Starkey D.; Cassel, Kevin; Moseley, Michelle Axel; Mesia, Rachel J.; Herrera, Paula Amezola de; Kornfeld, Julie; Perocchia, Rosemarie Slevin

doi:10.1007/s13187-010-0159-x

Cited by 4 publications

(3 citation statements)

References 7 publications

(7 reference statements)

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“…CAB members had the most experience and comfort in activities such as promotion of smoking cessation or cancer screening among their clients. Within cancer, prevention and education are often starting points in early CBPR work (Davis et al, 2011). Aligned with calls for a new paradigm to address the broader health concerns of an aging HIV+ population (Justice, 2010), CAB members expressed the need to address cancer risk and comorbid cancer.…”

Section: Discussionmentioning

confidence: 99%

At the Intersection of HIV/AIDS and Cancer

et al. 2012

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Due to advances in treatment, persons living with human immunodeficiency virus (HIV) or acquired immunodeficiency syndrome (AIDS) are living longer, but with aging, immune deficits, and lifestyle factors, they are at increased risk for cancer. This challenges community-based AIDS service organizations (ASOs) to address the growing cancer needs of persons living with HIV/AIDS (PLWHA). Community-based participatory research was applied to engage ASOs in exploring their capacities and needs for integrating cancer-focused programming into their services. Focus groups were conducted with a community advisory board (CAB) representing 10 community-based organizations serving PLWHA. Three 90-minute, serial focus groups were conducted with a mean number of seven participants. Topics explored CAB members’ organizational capacities and needs in cancer prevention, detection, treatment, and survivorship. Transcript analyses identified six themes: (a) agencies have limited experience with cancer-focused programs, which were not framed as cancer specific; (b) agencies need resources and collaborative partnerships to effectively incorporate cancer services; (c) staff and clients must be educated about the relevance of cancer to HIV/AIDS; (d) agencies want to know about linkages between HIV/AIDS and cancer; (e) cancer care providers should be culturally competent; and (f) agencies see opportunities to improve their services through research participation but are wary. Agency capacities were strong in relationships with clients and cultural competency, a holistic view of PLWHA health, expertise in prevention activities, and eagerness to be on the cutting edge of knowledge. Cancer education and prevention were of greatest interest and considered most feasible, suggesting that future projects develop accordingly. These findings suggest a high level of receptivity to expanding or initiating cancer-focused activities but with a clear need for education and awareness building. Qualitative findings will inform a large quantitative survey to validate identified themes, which will be applied in developing interventions to assist ASOs in adopting or expanding cancer-focused activities.

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Section: Discussionmentioning

confidence: 99%

At the Intersection of HIV/AIDS and Cancer

et al. 2012

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“…Over the years, CBPR has become valued as an effective research strategy for improving community health and reducing health disparities ( 24 – 32 ). Community engagement can contribute to a more nuanced understanding of health problems, increasing the relevance of problems examined ( 33 – 35 ), improving the quality and outcomes of health promotion activities, disease prevention initiatives, and research studies ( 10 , 31 , 36 ).…”

Section: Background and Rationalementioning

confidence: 99%

Quantitative Evaluation of the Community Research Fellows Training Program

McGowan

Stafford

Thompson

et al. 2015

Front. Public Health

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ContextThe community research fellows training (CRFT) program is a community-based participatory research (CBPR) initiative for the St. Louis area. This 15-week program, based on a Master in Public Health curriculum, was implemented by the Division of Public Health Sciences at Washington University School of Medicine and the Siteman Cancer Center.ObjectivesWe measure the knowledge gained by participants and evaluate participant and faculty satisfaction of the CRFT program both in terms of meeting learning objectives and actively engaging the community in the research process.ParticipantsWe conducted analyses on 44 community members who participated in the CRFT program and completed the baseline and follow-up knowledge assessments.Main outcome measuresKnowledge gain is measured by a baseline and follow-up assessment given at the first and final session. Additionally, pre- and post-tests are given after the first 12 sessions. To measure satisfaction, program evaluations are completed by both the participants and faculty after each topic. Mid-way through the program, a mid-term evaluation was administered to assess the program’s community engagement. We analyzed the results from the assessments, pre- and post-tests, and evaluations.ResultsThe CRFT participants’ knowledge increased at follow-up as compared with baseline on average by a 16.5 point difference (p < 0.0001). Post-test scores were higher than pre-test scores for 11 of the 12 sessions. Both participants and faculty enjoyed the training and rated all session well.ConclusionThe CRFT program was successful in increasing community knowledge, participant satisfaction, and faculty satisfaction. This success has enhanced the infrastructure for CBPR as well as led to CBPR pilot projects that address health disparities in the St. Louis Greater Metropolitan Area.

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“…It is important to translate research programs and findings into practice, which requires interventions that are relevant to the lives of the target community or population. Community-engaged research (CER) has emerged as an evidence-based approach to conducting research that uses community-academic partnerships to better address the complex issues that affect the health of marginalized populations (Davis et al, 2011;Israel et al, 2010;Jagosh et al, 2012;Salimi et al, 2012). CER is an umbrella term for the many forms of research (e.g., community-based participatory research, participatory action research, patient-centered research, community-academic partnerships) that have community engagement as a core principle.…”

Section: Introductionmentioning

confidence: 99%

Evaluating Community Engagement in Research: Quantitative Measure Development

Goodman¹,

Thompson

Arroyo³

et al. 2016

Journal Community Psychology

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Although the importance of community engagement in research has been previously established, there are few evidence-based approaches for measuring the level of community engagement in research projects. A quantitative community engagement measure was developed, aligned with 11 engagement principles (EPs) previously established in the literature. The measure has 96 Likert response items; 3–5 quality items and 3–5 quantity items measure each EP. Cronbach’s alpha is used to examine the internal consistency of items that measure a single EP. Every EP item group had a Cronbach’s alpha > .85, which indicates strong internal consistency for all question groups across both scales (quality and quantity). This information determines the level of community engagement, which can be correlated with other research outcomes.

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The Cancer Information Service: Using CBPR in Building Community Capacity

Cited by 4 publications

References 7 publications

At the Intersection of HIV/AIDS and Cancer

At the Intersection of HIV/AIDS and Cancer

Quantitative Evaluation of the Community Research Fellows Training Program

Evaluating Community Engagement in Research: Quantitative Measure Development

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