The adolescent with cancer — at the edge of no-man's land

Hollis, Rachel; Morgan, Sue

doi:10.1016/s1470-2045(00)00195-9

Cited by 73 publications

(44 citation statements)

References 21 publications

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“…AYA autonomy and the development of identity in general depends largely on peer acceptance and relationships 26. Not unexpectedly, studies have shown that support from other AYA patients with cancer is incredibly important for this age group in helping them to cope with their disease 27. In addition, AYA patients want to provide support to their own family and friends to create a sense of self‐worth; however, this contribution is not always possible during their disease trajectory due to the effects of cancer and its treatment 28.…”

Section: Discussionmentioning

confidence: 99%

Empowerment in adolescents and young adults with cancer: Relationship with health‐related quality of life

Kaal

Husson

Duivenboden³

et al. 2017

Cancer

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BACKGROUNDThe difficulties adolescents and young adults (AYAs) encounter during a cancer experience may result in a reduction in or absence of empowerment. The aims of the current study were to assess levels of empowerment and associated (demographic, clinical, or psychological) factors and examine the association between empowerment and health‐related quality of life (HRQOL) among AYA patients with cancer.METHODSPatients aged 18 to 35 years at time of cancer diagnosis and who were seen by 1 of the members of the specialized multidisciplinary AYA team of the Radboud University Medical Center were invited to complete questionnaires regarding empowerment; HRQOL; and sociodemographic, clinical, and psychological characteristics (autonomy, coping, unmet social support needs, and psychological distress).RESULTSA total of 83 AYA patients completed the questionnaires. The mean age of the participants at the time of diagnosis was 27.5 years. The vast majority had been treated with chemotherapy (86%), had a more advanced stage of disease, and had completed treatment at the time of participation (74%). The mean empowerment level was 154.1 (standard deviation, 17.8) with a range of 114 to 200. Multivariate analysis demonstrated that the autonomy subscales of self‐awareness (β = .35), capacity for managing new situations (β = .19), and social support (β = .35) were found to be positively associated with empowerment. Coping difficulties (β = ‐.19) were found to be negatively associated with empowerment. Empowerment was independently associated with physical (β = .31), psychological (β = .50), social (β = .39), religious (β = .33), and total HRQOL (β = .52; all P<.01).CONCLUSIONSLow levels of empowerment were associated with low levels of autonomy and social support, female sex, and coping difficulties among AYA patients with cancer. Recognizing these patients as candidates for empowerment interventions ultimately could help to improve HRQOL in late adolescence and young adulthood. Cancer 2017;123:4039‐47. © 2017 The Authors. Cancer published by Wiley Periodicals, Inc. on behalf of American Cancer Society. This is an open access article under the terms of the Creative Commons Attribution‐NonCommercial License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.

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Section: Discussionmentioning

confidence: 99%

Empowerment in adolescents and young adults with cancer: Relationship with health‐related quality of life

Kaal

Husson

Duivenboden³

et al. 2017

Cancer

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“…This result suggests that perhaps specialized units of care may be needed to address the needs specific to adolescents. In fact, dedicated adolescent units or places where adolescents with other medical problems such as cancer, for example, are grouped and can interact and support each other have been found to provide better and more adapted care [43][44][45]. Some professionals argue that grouping adolescents in the acute phase or promoting the contact with others in the post-acute phase may actually reinforce the presence of problems rather than help in decreasing anxiety and in providing appropriate support [46].…”

Section: Discussionmentioning

confidence: 99%

Perspectives of adolescents and their parents regarding service needs following a mild traumatic brain injury

Gagnon¹,

Swaine²,

Champagne³

et al. 2008

Brain Injury

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“…However, there is a lack of evidence, certainly in the UK context, concerning the needs of adolescents and the appropriateness of available services (Kelly et al, 2002;Hollis and Morgan, 2001).…”

Section: Introductionmentioning

confidence: 99%

‘Being in the same boat’: ethnographic insights into an adolescent cancer unit

Kelly

Pearce

Mulhall³

2004

International Journal of Nursing Studies

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Cancer may be considered a particularly challenging diagnosis for adolescents. Treatment for adolescents in the United Kingdom may be provided in paediatric or adult settings or, more rarely, in specialist adolescent cancer units. An ethnographic approach was adopted to gather 'insiders' views of one such unit using in-depth interviews with patients, parents and professionals, as well as non-participant observation of key events. Two data themes 'cancer and the cancer unit' and 'changes over time' are discussed in this paper. Benefits of the unit included shared understandings and the manner in which the privations of adolescent cancer were contained and managed by those involved. r

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The adolescent with cancer — at the edge of no-man's land

Cited by 73 publications

References 21 publications

Empowerment in adolescents and young adults with cancer: Relationship with health‐related quality of life

Empowerment in adolescents and young adults with cancer: Relationship with health‐related quality of life

Perspectives of adolescents and their parents regarding service needs following a mild traumatic brain injury

‘Being in the same boat’: ethnographic insights into an adolescent cancer unit

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