The adolescent with a chronic condition. Part II: healthcare provision

Michaud, Pierre; Jc, Suris; Viner, Russell

doi:10.1136/adc.2003.045377

Cited by 191 publications

(230 citation statements)

References 89 publications

(46 reference statements)

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“…Mortality rates of children and adolescents suffering from chronic disorders have decreased over the past few decades, with 90% of adolescents suffering from chronic disorders previously resulting in a lethal outcome reaching adulthood nowadays [1,14]. For an increasing number of young people with pediatric chronic disorders, a transfer to adult health care (AHC) is required for ongoing proficient health care management during adulthood.…”

Section: Ahc Adult Health Carementioning

confidence: 99%

Transition from pediatric to adult health care: expectations of adolescents with chronic disorders and their parents

2010

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The aim of this study was to assess the expectations of adolescents with chronic disorders with regard to transition from pediatric to adult health care and to compare them with the expectations of their parents. A cross-sectional study was carried out including 283 adolescents with chronic disorders, aged 14-25 years (median age, 16.0 years), and not yet transferred to adult health care, and their 318 parents from two university children's hospitals. The majority of adolescents and parents (64%/70%) perceived the ages of 18-19 years and older as the best time to transfer to adult health care. Chronological age and feeling too old to see a pediatrician were reported as the most important decision factors for the transfer while the severity of the disease was not considered important. The most relevant barriers were feeling at ease with the pediatrician (45%/38%), anxiety (20%/24%), and lack of information about the adult specialist and health care (18%/27%). Of the 51% of adolescents with whom the pediatric specialist had spoken about the transfer, 53% of adolescents and 69% of parents preferred a joint transfer meeting with the pediatric and adult specialist, and 24% of these adolescents declared that their health professional had offered this option. In summary, the age preference for adolescents with chronic disorders and their parents to transfer to adult health care was higher than the upper age limits for admission to pediatric health care in many European countries. Anxiety and a lack of information of both adolescents and their parents were among the most important barriers for a smooth and timely transfer according to adolescents and parents. Abstract The aim of this study was to assess the expectations of adolescents with chronic disorders with regard to transition from pediatric to adult health care and to compare them with the expectations of their parents. A cross-sectional study was carried out including 283 adolescents with chronic disorders, aged 14-25 years (median age, 16.0 years), and not yet transferred to adult health care, and their 318 parents from two university children's hospitals. The majority of adolescents and parents (64%/70%) perceived the ages of 18-19 years and older as the best time to transfer to adult health care. Chronological age and feeling too old to see a pediatrician were reported as the most important decision factors for the transfer while the severity of the disease was not considered important. The most relevant barriers were feeling at ease with the pediatrician (45%/38%), anxiety (20%/24%), and lack of information about the adult specialist and health care (18%/ 27%). Of the 51% of adolescents with whom the pediatric specialist had spoken about the transfer, 53% of adolescents and 69% of parents preferred a joint transfer meeting with the pediatric and adult specialist, and 24% of these adolescents declared that their health professional had offered this option. In summary, the age preference for adolescents with chronic disorders and their parents to tra...

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Section: Ahc Adult Health Carementioning

confidence: 99%

Transition from pediatric to adult health care: expectations of adolescents with chronic disorders and their parents

2010

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“…Most of the serious diseases of adulthood have their roots during adolescence. 5 The targets set by WHO for reducing the prevalence of non-communicable diseases are a 30% relative reduction in mean population intake of salt/sodium and the prevalence of current tobacco use, at least 10% relative reduction in the harmful use of alcohol and in prevalence of insufficient physical activity and a 25% relative reduction in the prevalence of raised blood pressure. 6 `With freedom comes the responsibility`.…”

Section: Introductionmentioning

confidence: 99%

A study to assess the prevalence of behavioral risk factors for lifestyle diseases among late adolescents in Chennai, Tamil Nadu

Mary

Seenivasan

Shibiyeswanth

et al. 2017

Int J Community Med Public Health

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Background: Lifestyle diseases are now the major causes of premature morbidity, mortality, and economic loss in developed and developing countries, including the younger age groups.The four major preventable behavioral risk factors are tobacco use, unhealthy diet, physical inactivity and harmful use of alcohol. Life of adolescents is a transitional period, offering them good opportunities for establishing health-promoting lifestyles. This study is done to assess the prevalence of behavioral risk factors for lifestyle diseases of college going adolescents of Chennai. Methods: This cross-sectional study was conducted among 483 randomly selected undergraduate students from randomly selected colleges in Chennai between March and September 2016 by two stage stratified sampling method using a semi-structured questionnaire. Data was fed into excel sheet and Descriptive and inferential statistical analysis was done using SPSS v.21 package. Results: The participants were between 17 and 20 years. They belonged to professional and non professional colleges. 78% students had unhealthy lifestyle habits. All the participants had at least one risk factor in them. The awareness on the risk factors was significantly less among non professional students, but they had significantly better behavioural habits than the professional students. Boys had significantly better habits than girls and students who were overweight significantly had unhealthy lifestyle habits. Conclusions: The study reflects the poor lifestyle habits of all college-aged individuals, which can be effectively improved by health education and behaviour change communication.

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“…Previous research has pointed to differences in young people's and their parents' perceptions of living with NF1; parents have been found to be more pessimistic on measures such as social inclusion (Sebold et al 2004;Wolkenstein et al 2008), and whilst parents play a crucial role in supporting young people to develop the skills needed to positively manage chronic health conditions as they transition from childhood to adulthood (Michaud et al 2004;WHO 2013), and play a central role in young people's adjustment to visible difference (Prior and O'Dell 2009;Williamson et al 2010), there has been a lack of research specifically into their experiences of caring for a child or young person with NF1 and their own support needs. We therefore set out to address this gap in the literature, in order to inform the provision of support and care for young people and their parents.…”

Section: Introductionmentioning

confidence: 99%

Parents’ experiences of caring for a young person with neurofibromatosis type 1 (NF1): a qualitative study

2015

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Neurofibromatosis type 1 (NF1) is a variable and unpredictable genetic condition that can lead to changes to an individual's appearance. Research has started to explore children's and young people's experiences of living with the condition; however, there is a lack of research with parents. This exploratory qualitative study set out to examine parents' experiences of caring for a young person with NF1. Seven parents took part in semi structured interviews which were subjected to a thematic analysis. Three key themes were identified which related to managing the uncertainty of the condition, the impact of an altered appearance, and others' awareness and understanding of NF1. Parents felt that understanding NF1 themselves in order to support their child was beneficial whilst a perceived lack of understanding by others was cited as a significant challenge. Parents require trustworthy information and also more widely call for greater understanding and awareness of the condition.

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The adolescent with a chronic condition. Part II: healthcare provision

Cited by 191 publications

References 89 publications

Transition from pediatric to adult health care: expectations of adolescents with chronic disorders and their parents

Transition from pediatric to adult health care: expectations of adolescents with chronic disorders and their parents

A study to assess the prevalence of behavioral risk factors for lifestyle diseases among late adolescents in Chennai, Tamil Nadu

Parents’ experiences of caring for a young person with neurofibromatosis type 1 (NF1): a qualitative study

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