The adolescent cancer experience: loss of control and benefit finding

Abstract

Developmental goals of adolescence include attaining confidence in independent decision making and a positive image of the self, others and surrounding world. A diagnosis of cancer during adolescence has the potential to impact on successful achievement of these goals. This study examined the 'adolescent cancer experience' from the perspective of young people. In-depth semi-structured interviews were conducted with 10 young people (16-22 years old) who had been diagnosed with cancer during adolescence. Thematic analysis of interview transcripts revealed two latent themes: loss of control and benefit finding. Adolescents reported that feelings of loss of control resulted in a sense of frustration, feelings of inadequacy and anger, and non-compliance with treatment. Perceived benefits of cancer experiences included improved personal attributes, strengthened relationships and material gains. These themes have not previously been well described in this population. The findings underline the need for effective communication, ongoing psychological support and service flexibility when providing care for adolescents with cancer.

Adolescents’ and Young Adults’ Experiences of Childhood Cancer

“…A clear majority of the young survivors seemed to get along well in spite of major or minor complications from their disease and treatment, which confirms findings from previous studies 21,29 . However, a small group of the young survivors (7%) experienced influence from major complications that were difficult for them to handle.…”

Effects of educational versus peer discussion interventions on perceived competence in adolescents with medulloblastoma

“…24 Consistent with Helgeson's report, educational intervention improved psychological functioning mainly by augmenting self-perceptions, and implanting a positive body image. 10 Obtaining information about one's illness and possible ways to handle it may make adolescents feel better about themselves in general and about their bodies.…”

“…Understanding these themes may assist healthcare professionals provide age-appropriate information and support services that help young people deal with the impact of cancer on daily life. 24 Moreover, people who know that they are being filmed are susceptible to act and talk in a socially desirable way. This phenomenon may have influenced patients and nurses.…”

Malignant fungating wounds – The meaning of living in an unbounded body

“…The loss of control by cancer patients has been reported in the literature as one of the highest concerns and may affect the willingness to adopt positive health behaviours (Enskar, et al,1997;McCaffrey, 2006). Wicks and Mitchell (2010) found in their study with ten cancer patients that there was a loss of control throughout the cancer treatment process resulting in a sense of frustration and anger.…”