Termination of pregnancy following a Down Syndrome diagnosis: decision-making process and influential factors in a Muslim but secular country, Turkey

Adiyaman, Duygu; Atakul, Bahar Konuralp; Kuyucu, Melda; Yıldırım, Alkım Gülşah Şahingöz; Pala, Halil Gürsoy

doi:10.1515/jpm-2020-0147

Cited by 3 publications

(1 citation statement)

References 27 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The more the women are educated, the more they comprehend the circumstances of the disease or a child with Down syndrome and this might be an important factor on decision-making processes. Likewise employed women more likely chose the invasive tests since a child with Down syndrome would need more care, time and energy spent by parents 21 . However it would be hard for a working mother to sufficiently take care of an unhealthy child.…”

Section: Discussionmentioning

confidence: 99%

Mizaç özelliklerinin invaziv karyotip testlerini seçme kararları üzerine olan etkisi

Arslan

Küçükbaş

Akçabay

et al. 2021

Cukurova Medical Journal

View full text Add to dashboard Cite

The aim of this study was to evaluate the relationship between patient temperament and preference for invasive prenatal tests. Materials and Methods: This was a prospective study of 337 pregnant women who had increased risk of having a fetus with Down syndrome. Their temperament profile was determined by using the temperament evaluation of TEMPS-A. Women were grouped as accepting (study) or declining (control) to perform an invasive test. Results: 284 pregnancies were included in the final analyzes. The study group had more likely employed and had a higher level of education level. There was no predominant temperament in 247 (87%) women. Hyperthymic temperament had the highest scores (11.2 ± 4.1) among other four temperament types. Study group patients had lower scores for anxious and depressive temperaments compared with control groups. Conclusion: Women who had a less anxious or depressive personality were more likely to prefer an invasive prenatal test. In addition, employment and higher educational status were correlated with undergoing invasive prenatal testing.Amaç: Bu çalışmanın amacı gebelerin mizaç özellikleri ile invaziv testi tercih etmeleri arasındaki ilişkinin değerlendirilmesi. amaçlanmıştır. Gereç ve Yöntem: Mevcut çalışma fetüste Down sendromu açısından artmış riske sahip 337 gebeliğin prospektif değerlendirilmesini içermektedir. Hastaların mizaç özellikleri TEMPS-A skalası aracılığıyla belirlenmeye çalışılmıştır. Gebeler invaziv test yapılmasını kabul edenler (çalışma) ve etmeyenler (kontrol) şeklinde iki gruba ayrılmıştır. Bulgular: Nihai analizler 284 gebe üzerinden yapılmıştır. Çalışma grubundaki hastalarda düzenli bir işte çalışma oranı ve eğitim seviyesi kontrol grubuna göre daha yüksek bulunmuştur. Hastaların 247'sinde (%87) baskın bir mizaç saptanmadı. Bununla birlikte en yüksek skor hipertimik mizaca (11.2 ± 4.1) ait olarak bulundu. Çalışma grubundaki hastalar daha düşük anksiyetik (ve depresif (mizaç skorlarına sahiplerdi. Sonuç: Daha düşük anksiyöz ya da depresif mizaç özelliklerine sahip hastalar invaziv tanı testlerini daha yüksek oranda tercih etmektedirler. Buna ek olarak düzenli bir işte çalışma ve daha yüksek eğitim durumu da invaziv prenatal testi yaptırmayla ilişkilidir.

show abstract

Section: Discussionmentioning

confidence: 99%

Mizaç özelliklerinin invaziv karyotip testlerini seçme kararları üzerine olan etkisi

Arslan

Küçükbaş

Akçabay

et al. 2021

Cukurova Medical Journal

View full text Add to dashboard Cite

show abstract

Sociodemographic profile associated with congenital heart disease among infants <1 year old

Tran,

Miner,

Merkel

et al. 2023

Journal of Pediatric Nursing

View full text Add to dashboard Cite

Sociodemographic Profile Associated with Congenital Heart Disease among Infants Less than 1 Year Old

Tran

Miner

Merkel

et al. 2023

Preprint

View full text Add to dashboard Cite

Background: Congenital heart disease (CHD) affects thousands of newborns each year in the United States (US). Infants born with CHD have an increased risk of adverse health outcomes compared to healthy infants. These outcomes include, but are not limited to, neurodevelopmental, surgical, and mortality-related outcomes. Previous US-based research has explored how sociodemographic factors may impact these health outcomes in infants with CHD; however, their impact on the risk of CHD is unclear. This study aims to explore the sociodemographic profile related to CHD to help address health disparities that arise from race and social determinants of health. Defining the sociodemographic factors associated with CHD will encourage policy change and the implementation of preventative measures. Methods: This study is a secondary analysis of longitudinally collected data. We compared infants with CHD and healthy controls. We used a questionnaire to collect sociodemographic data. Pearson’s chi-square test/Fisher’s exact tests analyzed the associations among different sociodemographic factors between infants with CHD and healthy controls. Results: We obtained sociodemographic factors from 30 healthy control infants and 39 infants with CHD. We found a statistically significant difference in maternal education between our 2 groups of infants (p=0.004). Conclusion: Maternal education is associated with CHD. Future studies are needed to further characterize sociodemographic factors that may predict and impact the risk of CHD and to determine possible interventions that may help decrease health disparities regarding the risk of CHD.

show abstract

Termination of pregnancy following a Down Syndrome diagnosis: decision-making process and influential factors in a Muslim but secular country, Turkey

Cited by 3 publications

References 27 publications

Mizaç özelliklerinin invaziv karyotip testlerini seçme kararları üzerine olan etkisi

Mizaç özelliklerinin invaziv karyotip testlerini seçme kararları üzerine olan etkisi

Sociodemographic profile associated with congenital heart disease among infants <1 year old

Sociodemographic Profile Associated with Congenital Heart Disease among Infants Less than 1 Year Old

Contact Info

Product

Resources

About