Telehealth for Amyotrophic Lateral Sclerosis and Multiple Sclerosis

Howard, Ileana M.; Burgess, Kathleen A.

doi:10.1016/j.pmr.2020.12.003

Cited by 6 publications

(3 citation statements)

References 58 publications

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“…Considerando que a insuficiência respiratória crônica é uma consequência comum e uma causa significativa de mortalidade em pacientes com ELA, é crucial levar em conta as dificuldades enfrentadas por esses pacientes, seus familiares ou cuidadores ao acessar esses locais e serviços de saúde. Essas dificuldades são decorrentes das limitações físicas e funcionais que esses indivíduos enfrentam, bem como da quantidade de equipamentos que geralmente precisam transportar consigo (CAPOZZO et al, 2020;HOWARD;BURGESS, 2021).…”

Section: Projeto: Construção Do Protótipounclassified

Protótipo de aplicativo centrado no usuário para gestão do autocuidado em esclerose lateral amiotrófica

De Carvalho,

Nascimento,

De Lima

et al. 2023

CLCS

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Descrever a construção de um protótipo de aplicativo centrado no usuário para gestão do autocuidado em esclerose amiotrófica lateral. Trata-se de um estudo metodológico realizado por meio do Design Centrado no Usuário (DCU), sendo realizadas as etapas de análise e projeto. Na primeira etapa, uma revisão de escopo, desenvolvida em três fases e oito fontes de dados, objetivou traçar as principais manifestações de autocuidado de pacientes com a doença. Na segunda, o projeto foi desenvolvido com base nos dados coletados primariamente e com o auxílio de uma plataforma de design gráfico. Os resultados da revisão demonstraram que as manifestações de autocuidado consistem fundamentalmente em aspectos físicos, respiratórios e psicológicos. A interface do protótipo foi criada com o “Canva Pro”, possuindo nove layouts na versão do usuário (login e cadastro, tela inicial, cadastro, prontuário, autocuidado, teleatendimento, terapia medicamentosa, educação em saúde e consultas) e sete layouts na versão para profissionais. Espera-se que o aplicativo proveniente deste protótipo promova a autonomia do paciente, diminua a sobrecarga dos familiares e cuidadores, e permita um cuidado integral da equipe de enfermagem e multidisciplinar.

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Section: Projeto: Construção Do Protótipounclassified

Protótipo de aplicativo centrado no usuário para gestão do autocuidado em esclerose lateral amiotrófica

De Carvalho,

Nascimento,

De Lima

et al. 2023

CLCS

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“…As a result, there is a gradual loss of functionality in voluntary movements, respiratory function, and communication [ 1 , 2 , 3 , 4 , 5 ]. For people with ALS, having access to an ecosystem that integrates multi-professional assistance and assistive technologies, particularly Augmentative and Alternative Communication resources, has been shown to be essential to preserving communication and interaction skills and enhancing quality of life and survival as the disease advances [ 6 , 7 , 8 , 9 , 10 , 11 ].…”

Section: Introductionmentioning

confidence: 99%

Digital Alternative Communication for Individuals with Amyotrophic Lateral Sclerosis: What We Have

Fernandes

Júnior

Alves

et al. 2023

JCM

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Amyotrophic Lateral Sclerosis is a disease that compromises the motor system and the functional abilities of the person in an irreversible way, causing the progressive loss of the ability to communicate. Tools based on Augmentative and Alternative Communication are essential for promoting autonomy and improving communication, life quality, and survival. This Systematic Literature Review aimed to provide evidence on eye-image-based Human–Computer Interaction approaches for the Augmentative and Alternative Communication of people with Amyotrophic Lateral Sclerosis. The Systematic Literature Review was conducted and guided following a protocol consisting of search questions, inclusion and exclusion criteria, and quality assessment, to select primary studies published between 2010 and 2021 in six repositories: Science Direct, Web of Science, Springer, IEEE Xplore, ACM Digital Library, and PubMed. After the screening, 25 primary studies were evaluated. These studies showcased four low-cost, non-invasive Human–Computer Interaction strategies employed for Augmentative and Alternative Communication in people with Amyotrophic Lateral Sclerosis. The strategies included Eye-Gaze, which featured in 36% of the studies; Eye-Blink and Eye-Tracking, each accounting for 28% of the approaches; and the Hybrid strategy, employed in 8% of the studies. For these approaches, several computational techniques were identified. For a better understanding, a workflow containing the development phases and the respective methods used by each strategy was generated. The results indicate the possibility and feasibility of developing Human–Computer Interaction resources based on eye images for Augmentative and Alternative Communication in a control group. The absence of experimental testing in people with Amyotrophic Lateral Sclerosis reiterates the challenges related to the scalability, efficiency, and usability of these technologies for people with the disease. Although challenges still exist, the findings represent important advances in the fields of health sciences and technology, promoting a promising future with possibilities for better life quality.

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“…In addition, an Android app is presented that can administer a series of questions about their condition to the patient [22]. Neurological examinations, which represent the other important tool for assessing the progression of the disease, have been proposed via videoconferencing and have shown promising results and satisfaction on the part of the patients [23][24][25]. However, they have some limitations because it is difficult for the doctor to assess muscle tone, for example.…”

Section: Introductionmentioning

confidence: 99%

SIMpLE: A Mobile Cloud-Based System for Health Monitoring of People with ALS

Palumbo

Ielpo

Calabrese

et al. 2021

Sensors

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Adopting telemonitoring services during the pandemic for people affected by chronic disease is fundamental to ensure access to health care services avoiding the risk of COVID-19 infection. Among chronic diseases, Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease, is a progressive neurodegenerative disease of adulthood, caused by the loss of spinal, bulbar and cortical motor neurons, which leads to paralysis of the voluntary muscles and, also, involves respiratory ones. Therefore, remote monitoring and teleconsulting are essential services for ALS patients with limited mobility, as the disease progresses, and for those living far from ALS centres and hospitals. In addition, the COVID 19 pandemic has increased the need to remotely provide the best care to patients, avoiding infection during ALS centre visits. The paper illustrates an innovative, secure medical monitoring and teleconsultation mobile cloud-based system for disabled people, such as those with ALS (Amyotrophic Lateral Sclerosis). The design aims to remotely monitor biosignals, such as ECG (electrocardiographic) and EMG (electromyographic) signals of ALS patients in order to prevent complications related to the pathology.

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Telehealth for Amyotrophic Lateral Sclerosis and Multiple Sclerosis

Cited by 6 publications

References 58 publications

Protótipo de aplicativo centrado no usuário para gestão do autocuidado em esclerose lateral amiotrófica

Protótipo de aplicativo centrado no usuário para gestão do autocuidado em esclerose lateral amiotrófica

Digital Alternative Communication for Individuals with Amyotrophic Lateral Sclerosis: What We Have

SIMpLE: A Mobile Cloud-Based System for Health Monitoring of People with ALS

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