Talking About the Unthinkable: Perinatal/Neonatal Communication Issues and Procedures

Fox, Susan; Platt, Frederic W.; White, Maysel Kemp; Hulac, Peter

doi:10.1016/j.clp.2004.11.011

Cited by 17 publications

(15 citation statements)

References 40 publications

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“…Studies of FCC stress the high importance of healthcare professionals fostering parental role alteration through welcoming, empowering and involving behaviour [20,22,23] as well as educational support to guide them from the position of outsiders to partners in the care of their child [24][25][26][27][28]. Therefore, the importance of giving appropriate and timely [29] information and communicating empathetically [30,31] is highlighted in the current literature on FCC. Empathetic communication in clinical settings comprises four components.…”

Section: Introductionmentioning

confidence: 98%

Communicating with parents in neonatal intensive care units: The impact on parental stress

Enke

Hausmann

Miedaner

et al. 2017

Patient Education and Counseling

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Section: Introductionmentioning

confidence: 98%

Communicating with parents in neonatal intensive care units: The impact on parental stress

Enke

Hausmann

Miedaner

et al. 2017

Patient Education and Counseling

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“…[11][12][13][14] In 2002, the Institute for Professionalism and Ethical Practice at Children's Hospital Boston launched the Program to Enhance Relational and Communication Skills (PERCS), to reflect on and practice difficult conversations in an interdisciplinary learning environment. 15,16 At the request of neonatal practitioners, a customized PERCS-NICU program was developed.…”

Section: Introductionmentioning

confidence: 99%

An interdisciplinary, family-focused approach to relational learning in neonatal intensive care

et al. 2010

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Objective: The aim of this study is to show the efficacy of the Program to Enhance Relational and Communication Skills-Neonatal Intensive Care Unit (PERCS-NICU).Study Design: In this study, 74 practitioners attended workshops and completed baseline, post-training and follow-up questionnaires.Result: On yes/no questions, 93 to 100% reported improved preparation, communication skills and confidence post-training and follow-up. A total of 94 and 83% improved their ability to establish relationships, and 76 and 83% reported reduced anxiety post-training and follow-up, respectively. On Likert items, 59 and 64% improved preparation, 45 and 60% improved communication skills and confidence, 25 and 53% decreased anxiety and 16 and 32% improved relationships post-training and follow-up, respectively. Qualitative themes included integrating new communication and relational abilities, honoring the family perspective, appreciating interdisciplinary collaboration, personal/human connection and valuing the learning. In total, 93% applied skills learned, threequarters transformed practice and 100% recommended PERCS-NICU. Conclusion:After PERCS-NICU, clinicians improved preparation, communication and relational abilities, confidence and reduced anxiety when holding difficult neonatal conversations.

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“…[3][4][5][6][7][8][9] Yet, for any given family, we still need to ask so that we can customize our supportive interventions and make happen what matters most to the family before us. [10][11][12][13] For staff members, it is useful to know in general what matters to families, yet we can never presume to know what any given family needs or wishes. That would be to cruelly minimize the patient and family's uniqueness, and to rob them of the power and complexity of their own experience.…”

Section: Lessons Learnedmentioning

confidence: 99%

Four wishes for Aubrey

Carter

Brown

et al. 2011

J Perinatol

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In the critical care environment, what begins as cure-oriented and lifeextending treatment may become unsuccessful in overcoming the patient's increasingly complex pathophysiology. A case from the neonatal intensive care unit is presented and used to elaborate upon care transitions toward palliative and supportive care that can be rendered in the hospital, at home or in a hospice facility. Successful transitions may rest upon anticipatory guidance by the primary physician and team, or a consultant, to facilitate and enable parents and team members alike in addressing the hard realities that cure, or even successful ICU discharge, is unlikely. A simple mechanism of addressing and accommodating a family's wishes is provided.

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Talking About the Unthinkable: Perinatal/Neonatal Communication Issues and Procedures

Cited by 17 publications

References 40 publications

Communicating with parents in neonatal intensive care units: The impact on parental stress

Communicating with parents in neonatal intensive care units: The impact on parental stress

An interdisciplinary, family-focused approach to relational learning in neonatal intensive care

Four wishes for Aubrey

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