Four wishes for Aubrey

Carter, B S; Brown, Jean; Brown, Stacy L.; Meyer, Elaine C.

doi:10.1038/jp.2011.171

Cited by 18 publications

(2 citation statements)

References 13 publications

(11 reference statements)

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“…They appreciate being part of the care discussions, having their voices heard, acknowledgment of their difficult situation, and ongoing support (30,71). They rely on providers to encourage them to express their hopes, fears, and goals (78). Providers and parents collaborate to make decisions and plans, balancing autonomy and parental authority with medical recommendations and prognosis (79).…”

Section: Exploring Goals Of Care During Perinatal Palliative Care Conmentioning

confidence: 99%

Perinatal Palliative Care Birth Planning as Advance Care Planning

2020

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Purpose of Review: A significant number of pregnancies are complicated by a fetus with a life-limiting diagnosis. As diagnoses are made earlier in the pregnancy, families experience anticipatory grief and are faced with navigating goals of care for a baby that has yet to be born. With the support of the care team, families can begin to grieve, plan, and make meaningful memories during the duration of the pregnancy, the birth of their baby, and life of the child. Creating a palliative care birth plan, which expands beyond the traditional concept for delivery planning to include prenatal, perinatal, and neonatal care has become an important method for parents to process the diagnosis, for parents to document their wishes, and for members of the care team to communicate with the goal of supporting and enhancing the experience of the family. This articles reviews recent and relevant literature on the importance of birth planning and the role of perinatal palliative care when a life-limiting fetal diagnosis is made. Recent Findings: The process of birth planning is an important component of perinatal palliative care. Through this process, families can express their fears, values, hopes, and wishes. It also offers an opportunity for providers to communicate these wishes for the remainder of the pregnancy, the delivery, birth, and time afterwards. This has been demonstrated to decrease maternal stress and promote family centered care. Summary: Perinatal birth planning is an important component of perinatal palliative care when a fetus has a life-limiting diagnosis. The process of birth planning can be supportive and therapeutic as well as an important communication tool. With multiple practices and designs of perinatal palliative care programs, there are no standard tools even though important components have been identified. Ultimately, the strategies outlined here can be used as advance care planning tools.

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Section: Exploring Goals Of Care During Perinatal Palliative Care Conmentioning

confidence: 99%

Perinatal Palliative Care Birth Planning as Advance Care Planning

2020

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show abstract

“…Anticipatory guidance for parents allows time to plan for a gradual move to more purely palliative and supportive care modalities. For example, in a recent article addressing parents’ wishes for their dying infants, four simple requests emerged: (a) no restriction for the number of visitors, (b) providing a bed that the mother can lie in beside her child, (c) arranging for the parents to take their infants outside to experience the sensation of the sun and the breeze, and (d) opportunities for special family photos (Carter, Brown, Brown, & Meyer, ). These simple yet meaningful wishes can be honored.…”

mentioning

confidence: 99%