One Facility's Experience in Reframing Nonfeeding into a Comprehensive Palliative Care Model

Vesely, Claire; Beach, Barbara

doi:10.1111/1552-6909.12027

Cited by 6 publications

(1 citation statement)

References 21 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…17,44,45 The decisions to withhold and withdraw hydration or nutrition must take into account the newborn's comfort and palliative care principles. This is true in general as there are few articles on this matter.…”

Section: Withholding and Withdrawing Hydration Or Nutritionmentioning

confidence: 99%

Neonatal Palliative Care

Mendes

Silva²

2013

Advances in Neonatal Care

View full text Add to dashboard Cite

Pediatric palliative care in Portugal is improving, but there is still additional work to do concerning programs or guidelines for this subject. In Portugal, physicians are the stakeholders in the decision-making process with reference to the transition to palliative care in the neonatal intensive care unit, and it was considered very important to raise their awareness and motivation about neonatal palliative care. Our research was based on Catlin and Carter's protocol from 2002 and the main goal was to assess neonatologists' willingness to build a palliative care and end-of-life protocol that could be acceptable nationwide. The survey used the Delphi technique and was developed in 3 rounds. The expert panel was composed of 57 participants who represented 41% of the Portuguese neonatologists. The study was conducted via the Internet, based in a researcher-created private Web site, and e-mail was used for data collection and feedback. Neonatologists agreed on 7 areas: (1) planning (medical education, resources, and local), (2) prenatal palliative care, (3) neonatal palliative care criteria, (4) the parents (presenting neonatal palliative care to parents, including then in the daily care of newborns and in family-centered care), (5) physicians' needs, (6) pain and symptom management, and (7) end-of-life care (withholding/withdrawing ventilation and hydration/nutrition).

show abstract

Section: Withholding and Withdrawing Hydration Or Nutritionmentioning

confidence: 99%