Systematic Review of Patients’ and Parents’ Preferences for ADHD Treatment Options and Processes of Care

Abstract

Potential outcomes of various treatments play a proximal role in patients' and families' decisions for ADHD treatment. Because the majority of studies focus on medication treatments for children with ADHD, more research is necessary to understand preferences related to behavioral and other psychosocial treatments both as stand-alone interventions and used in combination with medication. Additional research is also needed to assess the treatment preferences of adults with ADHD. In general, DCE, BWS, and SGI methods allow measurement of patient preferences in a manner that approximates the uncertainty and trade-offs inherent in real-world treatment decision making and provides valuable information to inform patient-centered and family-centered treatment.

Parental Preferences for Early Intervention Programming Examined Using Best–Worst Scaling Methodology

“…Researchers have conducted a series of studies that have used this innovative approach to investigate the best way to provide information to parents of children with mental health problems (Cunningham et al 2009), determine the preferences of parents seeking services in a mental health clinic (Cunningham et al 2008;Cunningham et al 2013), and identify the preferences of teachers with respect to bullying prevention efforts in schools (Cunningham et al 2009) or parents regarding treatments for attention-deficit/hyperactivity disorder (Ross et al 2015;Schatz et al 2015). These studies illustrate the utility of this approach for learning about the various preferences of consumers overall as well as within sub-populations, which directly inform the development of palatable, preferable, and useful intervention approaches.…”

Methods to perform systematic reviews of patient preferences: a literature survey

“…2009Mansfield [27]2016Stated preference for cancer screening:a systematic review of the literature,1990–2013“We reviewed stated-preference studies for breast, cervical, & colorectal cancer screening to identify the types of attributes included, the use of questions to assess uptake, & whether gaps exist in these areas.”July 2013Phillips [28]2006A review of studies examining statedpreferences for cancer screening“To conduct a systematic review of stated preference studies for cancer screening, identify gaps in the literature, & determine which types of research should be conducted in the future.”May 2005Purnell [29]2014Patient preferences for noninsulin diabetes medications: a systematic review“To systematically review patient preferences for noninsulin diabetes medications in adults with type 2 diabetes.”Jan. 2013Sadique [30]2011Women’s preferences regarding optionsfor management of atypical, borderlineor low-grade cervical cytological abnormalities: a review of the evidence“To identify empirical studies evaluating women’s preferences regarding alternative management pathways & to compare the impact of alternative elicitation methods on results.”March 2009Schatz [31]2015Systematic review of patients’ & parents’ preferences for ADHD treatment options& processes of care“To synthesize reports across existing DCE, BWS, TTO, & SGI studies to assess which aspects of ADHD treatment are most studied as well as most preferred & influential in treatment decisions.”Oct. 2014Schmidt [32]2016Preferences of lung cancer patients for treatment & decision-making: asystematic literature review“To identify the preferences of lung cancer patients with regard to their treatment & involvement in the decision-making process.”Sept.…”

New Insights into the Pathogenesis and Pharmacogenomics of Attention Deficit Hyperactivity Disorder

“…Some studies indicate that parents of children with ADHD prefer to avoid stimulant medications in favor of behavioral or psychosocial interventions, while others report that parents see medication as a preferred treatment [40]. In general, only 50% of patients with ADHD receive pharmacological treatment [2].…”