Methods to perform systematic reviews of patient preferences: a literature survey

Yu, Tsung; Enkh-Amgalan, Nomin; Zorigt, Ganchimeg

doi:10.1186/s12874-017-0448-8

Cited by 19 publications

(11 citation statements)

References 37 publications

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“…Owing to a lack of definite guidance on how to perform an appropriate quality assessment for preference-based studies, 28 the methodological quality of the included studies was evaluated by adapting four criteria from two previously published instruments for patient preference studies. 29,30 Two reviewers (AE, AR) independently assessed whether (1) there was a well-defined question in relation to preferences, (2) the characteristics of the participants were clearly described, (3) the respective methods to assess preferences were clearly explained, and (4) the authors reported quality criteria in relation to the elicitation methods used.…”

Section: Quality Assessmentmentioning

confidence: 99%

<p>Methods to Assess Patient Preferences in Old Age Pharmacotherapy – A Systematic Review</p>

Eidam¹,

Roth²,

Lacroix³

et al. 2020

PPA

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Purpose: The aim of this systematic review was to identify methods used to assess medication preferences in older adults and evaluate their advantages and disadvantages with respect to their applicability to the context of multimorbidity and polypharmacy. Material and Methods: Three electronic databases (PubMed, Web of Science, PsycINFO) were searched. Eligible studies elicited individual treatment or outcome preferences in a context that involved long-term pharmacological treatment options. We included studies with a study population aged ≥ 65 years and/or with a mean or median age of ≥ 75 years. Qualitative studies, studies assessing preferences for only two different treatments, and studies targeting preferences for life-sustaining treatments were excluded. The identified preference measurement methods were evaluated based on four criteria (time budget, cognitive demand, variety of pharmacological aspects, and link with treatment strategies) judged to be relevant for the elicitation of patient preferences in polypharmacy. Results: Sixty articles met the eligibility criteria and were included in the narrative synthesis. Fifty-five different instruments to assess patient preferences, based on 24 different elicitation methods, were identified. The most commonly applied preference measurement techniques were "medication willingness" (description of a specific medication with inquiry of the participant's willingness to take it), discrete choice experiments, Likert scale-based questionnaires, and rank prioritization. The majority of the instruments were created for disease-specific or context-specific settings. Only three instruments (Outcome Prioritization Tool, a complex intervention, "MediMol" questionnaire) dealt with the broader issue of geriatric multimorbidity. Only seven of the identified tools showed somewhat favorable characteristics for a potential use of the respective method in the context of polypharmacy. Conclusion: Up to now, few instruments have been specifically designed for the assessment of medication preferences in older patients with multimorbidity. To facilitate valid preference elicitation in the context of geriatric polypharmacy, future research should focus on suitable characteristics of existing techniques to develop new measurement approaches for this increasingly relevant population.

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Section: Quality Assessmentmentioning

confidence: 99%

<p>Methods to Assess Patient Preferences in Old Age Pharmacotherapy – A Systematic Review</p>

Eidam¹,

Roth²,

Lacroix³

et al. 2020

PPA

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“…In the last decade, systematic reviews of qualitative and mixed-method research synthesis have provided a more detailed understanding of the complexity of chronic diseases and their treatment from the perspective of patients and their caregivers [ 12 , 13 ]. More recently, there is a growing interest in assessing patients’ preferences and developing systematic reviews of quantitative preferences studies [ 14 ]. However, to date, no systematic analysis has been undertaken of quantitative and qualitative evidence focused on patients’ and caregivers’ preferences for and experiences with SM.…”

Section: Introductionmentioning

confidence: 99%

The Perspectives of Patients with Chronic Diseases and Their Caregivers on Self-Management Interventions: A Scoping Review of Reviews

Guzmán

García

Orrego

et al. 2021

Patient

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Background Self-management (SM) interventions are supportive interventions systematically provided by healthcare professionals, peers, or laypersons to increase the skills and confidence of patients in their ability to manage chronic diseases. We had two objectives: (1) to summarise the preferences and experiences of patients and their caregivers (informal caregivers and healthcare professionals) with SM in four chronic diseases and (2) to identify and describe the relevant outcomes for SM interventions from these perspectives. Methods We conducted a mixed-methods scoping review of reviews. We searched three databases until December 2020 for quantitative, qualitative, or mixed-methods reviews exploring patients' and caregivers' preferences or experiences with SM in type 2 diabetes mellitus (T2DM), obesity, chronic obstructive pulmonary disease (COPD), and heart failure (HF). Quantitative data were narratively synthesised, and qualitative data followed a three-step descriptive thematic synthesis. Identified themes were categorised into outcomes or modifiable factors of SM interventions. Results We included 148 reviews covering T2DM (n = 53 [35.8%]), obesity (n = 20 [13.5%]), COPD (n = 32 [21.6%]), HF (n = 38 [25.7%]), and those with more than one disease (n = 5 [3.4%]). We identified 12 main themes. Eight described the process of SM (disease progression, SM behaviours, social support, interaction with healthcare professionals, access to healthcare, costs for patients, culturally defined roles and perceptions, and health knowledge), and four described their experiences with SM interventions (the perceived benefit of the intervention, individualised care, sense of community with peers, and usability of equipment). Most themes and subthemes were categorised as outcomes of SM interventions. Conclusion The process of SM shaped the perspectives of patients and their caregivers on SM interventions. Their perspectives were influenced by the perceived benefit of the intervention, the sense of community with peers, the intervention's usability, and the level of individualised care. Our findings can inform the selection of patient-important outcomes, decisionmaking processes, including the formulation of recommendations, and the design and implementation of SM interventions.

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“…In addition to the methodological limitations of the quantification of patients' preferences, the dependence of the sample size and the setting where preferences were elicited, this review revealed that preferences were not stable over time, e.g., before and after a disease-specific intervention or adverse life event [37]. Yu et al highlighted the tremendous heterogeneity in the revealed preferences across different studies, demonstrating that preferences depend on the eliciting methods used [38]. Therefore, further research is needed to assess patient preferences in dementia diseases capturing several domains of diagnostics, treatment, care, and support as well as patient-and caregiver-related outcomes.…”

Section: Discussionmentioning

confidence: 99%

Preferences of Cognitively Impaired Patients and Patients Living with Dementia: A Systematic Review of Quantitative Patient Preference Studies

Lepper

Rädke

Wehrmann

et al. 2020

JAD

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Background: Treatment decisions based on guidelines rather than patients’ preferences determine adherence to and compliance with treatment, which, in turn, could improve health-related outcomes. Objectives: To summarize the stated treatment and care preferences of people with dementia (PwD). Methods: A systematic review was conducted to assess the stated preferences of PwD. The inclusion criterion was the use of quantitative methods to elicit stated preferences, enabling a ranking of preferences. Results: Eleven studies revealed preferences for diagnostics, treatment decisions, patient-related outcomes, care services, end-of-life care, leisure activities, and digital life story work. PwDs prefer accurate, pain-free, and comfortable diagnostic procedures without radioactive markers as well as being accompanied by a caregiver. PwD’s quality of life (QoL), self-efficacy, and depression were equally most important for PwD and caregivers. However, PwD memory was only important for caregivers but not for PwD, and caregiver QoL was moderately important for PwD but least important for caregivers. Additionally, comfort and family involvement were most important for patients’ end-of-life care, whereas caregivers most preferred good communication and pain management. Also, preferences depend on the living situation: Patients living not alone prefer a regular care provider most, whereas those living alone only want to live nearby the caregiver. Preferences for leisure activities did not differ between past and present ratings, indicating that PwD prefer activities that have always been carried out. Conclusion: Only a few studies have applied quantitative methods to elicit the preferences of PwD. More research is needed to capture the stated preferences for the treatment, care, and support of PwD to improve health-related outcomes and the allocation of healthcare resources.

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Methods to perform systematic reviews of patient preferences: a literature survey

Cited by 19 publications

References 37 publications

<p>Methods to Assess Patient Preferences in Old Age Pharmacotherapy – A Systematic Review</p>

<p>Methods to Assess Patient Preferences in Old Age Pharmacotherapy – A Systematic Review</p>

The Perspectives of Patients with Chronic Diseases and Their Caregivers on Self-Management Interventions: A Scoping Review of Reviews

Preferences of Cognitively Impaired Patients and Patients Living with Dementia: A Systematic Review of Quantitative Patient Preference Studies

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