Swimming Against the Current: A Qualitative Review of the Work Experiences and Adaptations Made by Employees With Arthritis

Purc-Stephenson, Rebecca J.; Dostie, Jessica; Smith, Hailey

doi:10.1002/acr.23528

Cited by 6 publications

(5 citation statements)

References 45 publications

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“…Our observations are consistent with those of Purc-Stephenson et al [ 21 ], who conducted a systematic review of 17 qualitative studies involving 873 workers with chronic inflammatory arthritis. Their study revealed 11 themes reported by employees with IA.…”

Section: Discussionsupporting

confidence: 93%

“Without Them, I Would Never Have Been Able to Carry on” Levers for the Sustained Employment of Patients with Chronic Inflammatory Arthritis: A French Qualitative Study

Louati

Mouelhi

Kabuth

et al. 2022

IJERPH

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Background. Chronic inflammatory arthritis (IA) is known to be involved in declining work outcomes and increased risk of experiencing unemployment. The aim of this study is to qualitatively identify the levers for the employment of patients with IA and AI-like conditions. Methods. To accomplish this task, a multi-centered, exploratory qualitative design involving one-on-one semi-directed interviews and a focus group was performed among 18 IA French patients to deepen our understanding of what enables patients to maintain employment despite the limiting, chronic, and expanding nature of their symptoms. Results. Analysis revealed five clusters of levers for the employment of chronic IA patients: The first cluster of levers was based on a set of verbatim records mentioning an overall improvement in the management of the disease. The second cluster of levers was based on a set of verbatim records mentioning the perceived added value of one’s occupation at a personal, familial, or societal scale. The third cluster of levers was based on a set of verbatim records mentioning the perceived interpersonal supportiveness of the professional sphere. The fourth cluster of levers was based on a set of verbatim records mentioning the micro-, meso-, and macro-characteristics of the working environment. The fifth cluster of levers was based on a set of verbatim records mentioning intrapersonal attributes. Conclusions. This study deepens and updates the current knowledge on what empowers patients dealing with chronic AI. These results provide valuable insights for stakeholders involved in designing or deploying employment initiatives for patients with AI.

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Section: Discussionsupporting

confidence: 93%

“Without Them, I Would Never Have Been Able to Carry on” Levers for the Sustained Employment of Patients with Chronic Inflammatory Arthritis: A French Qualitative Study

Louati

Mouelhi

Kabuth

et al. 2022

IJERPH

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“…Important factors in disclosure include the need for an accommodation and having a supportive supervisor relationship (Munir et al, 2005;Schrader et al, 2014). However, other factors, such as knowing that an employer has made an effort to create a disability-friendly workplace, knowing that an employer was actively recruiting people with disabilities, knowing of employees who had disclosed and were successful, inclusion of disability in the diversity statement, knowing that disclosure could potentially pave the way to new opportunities for promotion or training, seeing a message of disability inclusiveness on the company's materials, seeing employees with disabilities at recruitment events, and employers having a disability-focused employee resource group (ERG), can also play a role in an individual's willingness to disclose and seek accommodations (Purc-Stephenson, Dostie, & Smith, 2018;Schrader et al, 2014).…”

Section: Stigma Identity and Disclosurementioning

confidence: 99%

“…The Job Sustainability Model, proposed for employees with arthritis, is organized in terms of three main aspects: personal factors, self-assessment and information gathering, and job sustainability strategies (Purc-Stephenson et al, 2018). In this model, an individual experiences a trigger event that causes them to engage in self-assessment and information gathering.…”

Section: Conceptual Modelsmentioning

confidence: 99%

“…The Job Sustainability Model (Purc-Stephenson et al, 2018) effectively depicts the process that an individual might experience as they deal with difficulties in their work lives. In addition, the model notes that information gathering facilitates the enactment of work sustainability strategies, thus highlighting the importance of information.…”

Section: Conceptual Modelsmentioning

confidence: 99%

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Work Experiences, Accommodations, and Information in the Context of Fibromyalgia: A Literature Review and Conceptual Synthesis

Chen

Carpenter

Flaherty

2019

IJIDI

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This paper explores the challenges that individuals with fibromyalgia may experience in navigating the workplace. Fibromyalgia is a syndrome characterized by chronic widespread pain, stiffness, sleep disruption, and other symptoms, without a well-defined underlying disease. At work, patients can struggle with various problems, including fluctuating symptoms, exhaustion, skepticism, questions about whether to disclose, and finding ways to adjust work situations. Individuals often lack information concerning how to manage their health, as well as different aspects of their lives, including work. Work accommodations such as extended health benefits, modified schedules, and work-at-home arrangements could help. However, individuals may need to learn how to advocate for themselves, which can include finding information on legal rights and accommodation options. Differences in information awareness and seeking skills can lead to inequities in the management of chronic health conditions in the workplace. We explore extant literature in three parts. First, we review research on the experience of work among individuals with fibromyalgia, and to a lesser extent, other conditions and disabilities. Then, we consider work accommodations, and third, we conclude with a conceptual synthesis. In our analysis, we first identify a need for clearer conceptualization of the role of information to facilitate workplace self-advocacy. Then, we identify gaps in the literature concerning information and information behavior related to work accommodations. Last, we emphasize the need for involvement of stakeholders over time. This paper may be of interest to researchers, health care providers, library and information science professionals, and health policy researchers striving to achieve health equity.

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“…Other factors not observed in this study such as having more seniority/job tenure could also provide the individual with a greater level of credibility, which in turn would make disclosure easier. However, disclosure is also an issue reported by adults who develop arthritis whilst employed [27], [28], [29], [30]. Prospective studies to further understand career trajectories of young people with arthritis will be of interest.…”

Section: Discussionmentioning

confidence: 99%

The impact of arthritis on the educational and early work experiences of young people: a qualitative secondary analysis

Farré

Ryan

McNiven

et al. 2019

International Journal of Adolescent Medicine and Health

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Introduction Young people’s transition into adulthood is intertwined with the worlds of education and work. Poor health in adolescence has been associated with poorer education and employment outcomes in adulthood. This paper explores the impact of arthritis on the educational and early work experiences of young people with arthritis. Methods We undertook a supplementary secondary analysis of a qualitative dataset comprising narrative and semi-structured interviews of 39 young people who had been diagnosed with arthritis in childhood, adolescence or young adulthood. Results Our findings illustrate how young people living with arthritis are faced with a range of added disruptions and challenges in their educational/vocational lives. There is an important element of resilience associated with the process of making a career choice and acting upon personal aspirations. Appropriate support and flexibility in the workplace/educational setting can enable successful outcomes, but disclosure is not a straightforward process for young people living with arthritis. Conclusions It is paramount that health providers consistently and effectively address self-advocacy skills with the young person, particularly during educational and vocational transitions. Alongside this, there is the need to further strengthen the health-school/work interface to ensure that young people living with chronic illness can meet their full potential in adulthood.

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Swimming Against the Current: A Qualitative Review of the Work Experiences and Adaptations Made by Employees With Arthritis

Cited by 6 publications

References 45 publications

“Without Them, I Would Never Have Been Able to Carry on” Levers for the Sustained Employment of Patients with Chronic Inflammatory Arthritis: A French Qualitative Study

“Without Them, I Would Never Have Been Able to Carry on” Levers for the Sustained Employment of Patients with Chronic Inflammatory Arthritis: A French Qualitative Study

Work Experiences, Accommodations, and Information in the Context of Fibromyalgia: A Literature Review and Conceptual Synthesis

The impact of arthritis on the educational and early work experiences of young people: a qualitative secondary analysis

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