Work Experiences, Accommodations, and Information in the Context of Fibromyalgia: A Literature Review and Conceptual Synthesis

Abstract

This paper explores the challenges that individuals with fibromyalgia may experience in navigating the workplace. Fibromyalgia is a syndrome characterized by chronic widespread pain, stiffness, sleep disruption, and other symptoms, without a well-defined underlying disease. At work, patients can struggle with various problems, including fluctuating symptoms, exhaustion, skepticism, questions about whether to disclose, and finding ways to adjust work situations. Individuals often lack information concerning how to manage their health, as well as different aspects of their lives, including work. Work accommodations such as extended health benefits, modified schedules, and work-at-home arrangements could help. However, individuals may need to learn how to advocate for themselves, which can include finding information on legal rights and accommodation options. Differences in information awareness and seeking skills can lead to inequities in the management of chronic health conditions in the workplace. We explore extant literature in three parts. First, we review research on the experience of work among individuals with fibromyalgia, and to a lesser extent, other conditions and disabilities. Then, we consider work accommodations, and third, we conclude with a conceptual synthesis. In our analysis, we first identify a need for clearer conceptualization of the role of information to facilitate workplace self-advocacy. Then, we identify gaps in the literature concerning information and information behavior related to work accommodations. Last, we emphasize the need for involvement of stakeholders over time. This paper may be of interest to researchers, health care providers, library and information science professionals, and health policy researchers striving to achieve health equity.

Fibromyalgia among patients presenting to a rheumatology clinic: prevalence and diagnosis

“…Although the primary etiology of FM syndrome is still unknown, and predisposing factors are a topic of debate, the disease has been generally diagnosed, treated, and cared for by rheumatologists (20,21). In our study, the overall prevalence rate of FM in the participants was approximately 35% by clinicians' (4,23,24). However, as demonstrated by our study and the existing literature, there are still obscurities in the diagnosis of patients with FM, decreasing the rate of agreement between criteria and physician's judgment (25,26).…”

Psychometric testing of the Rheumatoid Arthritis Work Instability Scale in employed people with fibromyalgia

“…However, research also identifies other factors not captured in the RA‐WIS impacting work instability in FM. These include the negative impact of FM on occupational identity (Chen et al., 2019; Depelteau et al., 2021; Mukhida et al., 2020); motivation at work (Arnold et al., 2008); reduced social support from friends, and strained relationships at work (Depelteau et al., 2021; Mukhida et al., 2020); as well as concerns about disclosing their condition at work and social stigma associated with FM from colleagues and supervisors (Mukhida et al., 2020). A recent study identified that FM‐related sick leave was not directly related to the condition itself, but rather issues such as commute time, repetitive work movements, work difficulties, job stress, noisy workplaces, limited career progression, and lack of recognition or understanding of FM by managers and co‐workers (Laroche et al., 2019).…”