Support Groups for Patients with Genetic Disorders and Their Families

Weiss, Joan O.

doi:10.1016/s0031-3955(16)38260-8

Cited by 9 publications

(2 citation statements)

References 10 publications

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“…Another goal of these groups relates to the unique psychosocial issues associated with specific genetic diseases among affected individuals and their families (Black & Weiss, 1989 research has examined the differences between group participants and nonparticipants or the potential psychological and physiological benefits of genetic support groups. Anecdotal and qualitative research has, however, focused on the role that groups can have on reducing isolation, helping individuals adjust to genetic conditions, and sharing information (Weiss, 1992;Weiss & Mackta, 1996).…”

Section: Genetics Support Groupsmentioning

confidence: 99%

Interest in a Support Group Among Individuals Tested for a BRCA1 Gene Mutation

Hamann

Croyle

Smith

et al. 2000

Journal of Psychosocial Oncology

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This article explores interest in a support group among 218 individuals tested for a mutation in BRCA1, a breast and ovarian cancer susceptibility gene. When queried 4 to 7 months after receiving the BRCA1 test results, approximately one-fourth of the participants expressed interest in a hypothetical support group. A mixed-carrier status and multiple family group was preferred over a carrier-only and single-Ms. Hamann is a Doctoral Student,

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Section: Genetics Support Groupsmentioning

confidence: 99%

Interest in a Support Group Among Individuals Tested for a BRCA1 Gene Mutation

Hamann

Croyle

Smith

et al. 2000

Journal of Psychosocial Oncology

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“…Support groups create a natural atmosphere for empowerment and for the giving and receiving of support (Borman, 1992;Katz, 1992). For people with chronic conditions, support groups can play an important part of comprehensive treatment programs (Black & Weiss, 1990;Weiss, 1992). Support groups can teach and promote healthy behavioral change through direct and vicarious learning (Hedrick, Isenberg, & Martini, 1992).…”

mentioning

confidence: 99%

African American Adolescents with Sickle Cell Disease: Support Groups and Psychological Well-Being

Telfair

Gardner

1999

Journal of Black Psychology

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There has been little systematic study of the impact of support groups on the psychological well-being (PWB) of adolescents with sickle cell disease (SCD). Questionnaires, administered by group leaders of 12 SCD support groups, were completed and returned from 79 (80%) of the 99 African American adolescent SCD support group members recruited into this study. Multiple regression analysis revealed that PWB was best predicted by fewer physical symptoms and greater satisfaction with the group. To test a buffering hypothesis of social support, two 2 · 2 analyses of variance (ANOVAs) were computed to test the interaction of group satisfaction and (a) physical symptoms and (b) pain on PWB.Group satisfaction showed a main effect for each ANOVA. An interaction effect between pain and group satisfaction was detected, supporting a buffering hypothesis. This suggests that adolescents with SCD associate pain, but not physical symptoms, as high stressors. Professionals can enhance their effectiveness as providers of social and mental health services by understanding the role support groups play in the overall well-being of adolescents with SCD.

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Caregiver Support Groups: Led by Peers, Professional, or Both

Maas

Specht²

2011

Education and Support Programs for Caregivers

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Support Groups for Patients with Genetic Disorders and Their Families

Cited by 9 publications

References 10 publications

Interest in a Support Group Among Individuals Tested for a BRCA1 Gene Mutation

Interest in a Support Group Among Individuals Tested for a BRCA1 Gene Mutation

African American Adolescents with Sickle Cell Disease: Support Groups and Psychological Well-Being

Caregiver Support Groups: Led by Peers, Professional, or Both

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