Interest in a Support Group Among Individuals Tested for a BRCA1 Gene Mutation

Hamann, Heidi; Croyle, Robert T.; Smith, Ken R.; Quan, Barbara N M; McCance, Kathryn L.; Botkin, Jeffrey R.

doi:10.1300/j077v18n04_02

Cited by 10 publications

(7 citation statements)

References 51 publications

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“…Support groups are created as individuals seek out others who are similar to them in order to understand social reality (McGovern et al, 2002). These groups can provide an environment and a forum where individuals can have access to medical information, psychologi-cal information and education, and emotional support (Hamann et al, 2000). Mutual feelings and commonalties about long-term effects of HCT can be shared in a support group.…”

Section: Support Groupsmentioning

confidence: 99%

Dialogue Among Survivors of Hematopoietic Cell Transplantation

Sherman

Cooke

Grant

2005

Journal of Psychosocial Oncology

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Many survivors of hematopoietic cell transplantation (HCT) are challenged by physical, psychological, and social complications throughout the months and years post-transplant, as uncovered by many researchers during the past few years. The literature on the use of support groups for improving quality of life has mostly included studies of participants with solid tumor cancers. There is a paucity of literature describing the use of support groups with HCT survivors. The purpose of the present study is to describe the various issues that are discussed by participants in a monthly post-HCT support group. These issues have been described and grouped into themes by the authors. The results can provide a foundation about long-term effects of HCT that future research can investigate more closely, followed by research that can study interventions to assist in improving quality of life of HCT survivors. Recommendations for applying findings to current clinical practice using support groups are identified.

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Section: Support Groupsmentioning

confidence: 99%

Dialogue Among Survivors of Hematopoietic Cell Transplantation

Sherman

Cooke

Grant

2005

Journal of Psychosocial Oncology

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“…Later, Pascoe, Edelman, and Kidman (2000) found that only 16% of a sample of oncology outpatients had attended a support group. Even among women who had undergone genetic testing for the BCRA1 mutation, only one-fourth expressed interest in attending a hypothetical support group (Hamann et al, 2000).…”

Section: Review Of the Literaturementioning

confidence: 99%

Attitudes of Patients with Breast Cancer Toward Support Groups

Winefield

Coventry

Lewis

et al. 2003

Journal of Psychosocial Oncology

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“…Contradictory findings appeared concerning social support: some studies found that those who participated in support groups experienced less social support in their social environment than nonparticipants [8-10], while others found no differences [6,11,12]. In general, participants seemed to be more anxious about their illness and had greater emotional problems than did nonparticipants [9,13].…”

Section: Introductionmentioning

confidence: 99%

“…Such group participation can offer emotional support, confidence, and strength [ 1 ]; can foster hope [ 2 ]; and can lead to improved coping [ 3 ], less distress [ 4 ], and an improved quality of life for the participant [ 5 ]. Despite these empowering outcomes of engagement in peer support, studies have shown that many face-to-face peer support groups have only small numbers of participants [ 6 , 7 ].…”

Section: Introductionmentioning

confidence: 99%

“…People who engage in face-to-face peer support groups are more likely than nonparticipants to be female, younger, more highly educated, and of a higher economic status [ 8 - 10 ]. Contradictory findings appeared concerning social support: some studies found that those who participated in support groups experienced less social support in their social environment than nonparticipants [ 8 - 10 ], while others found no differences [ 6 , 11 , 12 ]. In general, participants seemed to be more anxious about their illness and had greater emotional problems than did nonparticipants [ 9 , 13 ].…”

Section: Introductionmentioning

confidence: 99%

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Determinants of Engagement in Face-to-Face and Online Patient Support Groups

Uden–Kraan¹,

Drossaert²,

Taal³

et al. 2011

J Med Internet Res

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BackgroundAlthough peer-to-peer contact might empower patients in various ways, studies show that only a few patients actually engage in support groups.ObjectiveThe objective of our study was to explore factors that facilitate or impede engagement in face-to-face and online peer support, using the Theory of Planned Behavior.MethodsA questionnaire was completed by 679 patients being treated for arthritis, breast cancer, or fibromyalgia at two Dutch regional hospitals.ResultsOur results showed that only a minority of the patients engaged in organized forms of peer support. In total 10% (65/679) of the respondents had engaged in face-to-face meetings for patients in the past year. Only 4% (30/679) of the respondents had contact with peers via the Internet in the past year. Patients were more positive about face-to-face peer support than about online peer support (P < .001). In accordance with the Theory of Planned Behavior, having a more positive attitude (P < .01) and feeling more supported by people in the social environment (P < .001) increased the intention to participate in both kinds of peer support. In addition, perceived behavioral control (P = .01) influenced the intention to participate in online peer support. Nevertheless, the intention to engage in face-to-face and online peer support was only modestly predicted by the Theory of Planned Behavior variables (R 2 = .33 for face-to-face contact and R 2 = .26 for online contact).ConclusionAlthough Health 2.0 Internet technology has significantly increased opportunities for having contact with fellow patients, only a minority seem to be interested in organized forms of peer contact (either online or face-to-face). Patients seem somewhat more positive about face-to-face contact than about online contact.

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Interest in a Support Group Among Individuals Tested for a BRCA1 Gene Mutation

Cited by 10 publications

References 51 publications

Dialogue Among Survivors of Hematopoietic Cell Transplantation

Dialogue Among Survivors of Hematopoietic Cell Transplantation

Attitudes of Patients with Breast Cancer Toward Support Groups

Determinants of Engagement in Face-to-Face and Online Patient Support Groups

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