Support groups for caregivers of Alzheimer patients: A historical review

Hornillos, Carlos; Crespo, María

doi:10.1177/1471301211421258

Cited by 24 publications

(17 citation statements)

References 69 publications

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“…Supporting caregivers' entails providing coping assistance, or involving significant others in an individual's stress-management efforts (Hornillos & Crespo, 2011;Thoits, 1986). Turner and Street (1999) asserted that support could be through instrumental aid (actions or materials provided to ensure attainment of role responsibilities), socioemotional aid (infer the assertions or demonstrations of love, caring, esteem, sympathy, and group belonging), and informational aid (communications of information that makes life challenges easier).…”

Section: Caregiving and Supportmentioning

confidence: 99%

Assessing Women Caregiving Role to People Living With HIV/AIDS in Nigeria, West Africa

2017

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HIV/AIDS scourge remains high in most countries of sub-Saharan Africa such as Nigeria, which is home to about 3.3 million HIV positive individuals and represents the second largest burden of HIV/AIDS care, treatment and demand worldwide after South Africa. Anti-retroviral treatment options though a welcome development, has increased the number of people living with this chronic illness, and most of them depend on family members for physical and emotional support. Traditional gender norms in Nigeria ensure that legitimately, women and girls are the first options for caregiving roles. This mandatory role has in turn imposed psychosocial disruption in the lives of female family members in Calabar, Nigeria. This descriptive study utilized convenient sampling technique, Zarit Burden Interview scale and semistructured questionnaires for data collection (260 respondents), and data analyses were achieved using SPSS16.0. The study showed that a significant (p < .05) proportion of women (91%) were involved in providing care, including children from 10 years and above. Caregivers had minimal social support which increased the burden they experienced. The need for policy that recognizes and supports female caregivers ("silent cornerstone") to reduce burden and ensure high quality care of people living with HIV/AIDS (PLWHA) in Nigeria is advocated.Keywords female caregivers, PLWHA, burden of caregiving, Nigeria 2 SAGE Open consequences from physically and emotionally demanding work of caregiving. The physical tasks performed by the caregivers transcend minor to complex tasks, which is similar to those carried out by paid health or social service providers. These impart a great degree of burden on the caregivers especially, as they combine the caregiving services with their official roles in the society. Caregiving has increased the burden of care on many households particularly the females, by worsening their economic status and subjecting them to imminent poverty. The need for heal thcare system and government to promulgate policies that will support female caregivers and also enhance quality of care to PLWHA in Nigeria becomes imperative. This study therefore highlights the extent of burden experienced by female caregivers compared to male counterparts and the support available to all caregivers of PLWHA in Calabar Municipality, Nigeria. Women and Burden of CareWomen constitute about 50% of the people living with HIV today worldwide (WHO, 2013). In 2007, the prevalence of HIV infection had been on men than women (UNAIDS, 2008), but with the turn of events women now bear the burden of this devastating disease more than men (WHO/ UNICEF/ UNFPA/World Bank, 2010). In sub-Saharan Africa, women constitute 60% of people living with HIV and the proportion of women living with HIV has been increasing in the last 10 years (WHO, 2013). These figures vindicate the words of Lewis (2005) that HIV/AIDS in Africa has a "female face." Apart from biological vulnerability of women to HIV, the African traditional gender norms stipula...

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Section: Caregiving and Supportmentioning

confidence: 99%

Assessing Women Caregiving Role to People Living With HIV/AIDS in Nigeria, West Africa

2017

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“…A VCoP of caregivers can accomplish three objectives that would make them superior to face to face support groups. 11 First, a VCoP of caregivers would be a long-term group, which was open to new members and could be led by fellow caregivers instead of professionals. Secondly, it is an intervention focused on the personal objectives for the caregiver regarding themselves and the relative they take care of.…”

Section: Resultsmentioning

confidence: 99%

“…10 The most common intervention for caregivers is the face to face support group. 11 Support groups focus on building sympathetic relations among participants to discuss problems and feelings regarding care giving. 12 The well recognized value of this intervention is the emotional support, the useful information obtained from others and its social aspects.…”

Section: Introductionmentioning

confidence: 99%

Designing virtual communities of practice for informal caregivers of Alzheimer’s patients: An integrative review

Romero-Mas

Gómez-Zúñiga

Cox

et al. 2020

Health Informatics J

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The main aim of this study is to review the literature to show how ideas around virtual communities of practice (VCoP) offer a model for supporting informal caregivers of Alzheimer’s patients (caregivers) to learn how to deal with caregiving demands. Caregivers are individuals who have a significant personal relationship with and provide a broad range of unpaid assistance to an older person or an adult with a chronic or disabling condition outside of a professional or formal framework. This review will examine the current evidence on the needs of caregivers, identify dimensions to be considered in VCoP design and suggest further directions of research. The investigation is an integrative review that builds a bridge between different areas of work. The outcome is eleven dimensions for the design of successful VCoPs for caregivers: Network Structure, Technology, Moderator, Scale, Alignment, Community Design, Sense of Trust, Knowledge Sharing, Sustainability, Ethics and Evaluation. In addition, we propose a Tree Metaphor to present our research results. Well-designed interventions based on VCoP principles have the potential of addressing caregivers’ needs.

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“…NCDFs take place in secure surroundings, are led by nursing or health care professionals and offer space for mutual exchange among caregivers, provide emotional support, information and counseling [16] and require experienced and highly-skilled group leaders in order to be able to sufficiently deal with particular caregiving situations [18]. Moreover, NCDFs helps to build communities among caregivers [16].…”

Section: Nursing Care Discussion Forums As a Support Measure For Infomentioning

confidence: 99%

“…Thus far, the efficiency of professionally-led support groups or NCDFs and their added value for psychological well-being and health of caregivers of cared-for elder persons of different clinical pictures is discussed controversially [16][17][18][19][20][21][22], while the issue of demand and location planning as well as the design of health promotion and public health measures-in comparison to local caregiving relatives [14,[23][24][25][26][27][28]-are disregarded. It is precisely the latter aspect that needs attention regarding a considerable proportion of informal caregivers whose amount will increase in the future [25,29], namely long-distance caregivers.…”

Section: Introductionmentioning

confidence: 99%

On the Suitability and Potential of Nursing Care Discussion Forums as a Health Promotion Measure for Long-Distance Caregiving Relatives: Evidence from Upper Austria

Fischer

Jobst

2019

Healthcare

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Background: The number of persons who have to overcome extensive geographical distances for caring for their older parent(s), hereinafter referred to as long-distance caregiving relatives (LDCs), is rising. However, in the non-English-speaking Global North, little is known about the LDCs’ health literacy and the design of tailor-made health promotion measures for this target-group. Using the example of nursing care discussion forums (NCDF), this paper reflects the requirements and (future) potential of professionally-lead support groups for LDCs on the case-study example of Upper Austria. Methods: In order to approach this unexplored topic considering spatial-related aspects, a qualitative-explorative study design was chosen, focusing on the providers’ perspective. A written survey among all NCDF-group leaders was carried out. Results: LDCs do not make use of NCDFs at present. It is considered that this is above all for time constraints, lack of information and location-based problems of fit. This applies for urban as well as rural contexts. Conclusions: LDCs need more attention in public health. Suitable NCDFs have to be located in the LCDs’ residential municipalities and have to fulfill different requirements from those of local caregiving relatives, particularly with regard to purpose and scope.

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Support groups for caregivers of Alzheimer patients: A historical review

Cited by 24 publications

References 69 publications

Assessing Women Caregiving Role to People Living With HIV/AIDS in Nigeria, West Africa

Assessing Women Caregiving Role to People Living With HIV/AIDS in Nigeria, West Africa

Designing virtual communities of practice for informal caregivers of Alzheimer’s patients: An integrative review

On the Suitability and Potential of Nursing Care Discussion Forums as a Health Promotion Measure for Long-Distance Caregiving Relatives: Evidence from Upper Austria

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