Suffering from dementia – the patient's perspective: a review of the literature

Boer, M.E. de; Hertogh, Cees M.P.M.; Dröes, Rose-Marie; Riphagen, Ingrid I.; Jonker, Cees; Eefsting, Jan A.

doi:10.1017/s1041610207005765

Cited by 188 publications

(211 citation statements)

References 65 publications

Supporting

Mentioning

180

Contrasting

Unclassified

Order By: Relevance

“…Normalization of life for people with dementia has been shown to be an important strategy in maintaining a positive mood and enhancing coping strategies (De Boer et al, 2007).…”

Section: (Bob Person With Early Onset Dementia)mentioning

confidence: 99%

Football and dementia: A qualitative investigation of a community based sports group for men with early onset dementia

2016

View full text Add to dashboard Cite

(2016) Football and dementia: A qualitative investigation of a community based sports group for men with early onset dementia. Dementia, 15 (6 A note on versions:The version presented here may differ from the published version or from the version of record. If you wish to cite this item you are advised to consult the publisher's version. Please see the repository url above for details on accessing the published version and note that access may require a subscription. AbstractThis study investigates the impact of a weekly group providing sport and physical activities for men with early onset dementia established by Notts County Football in the Community (NCFC). There were three aims:investigate the effect of early onset dementia on individuals with the condition and their carers; examine perceptions of current levels of service provision for people with early onset dementia; and analyse the impact of the group. Men with dementia (n=5) attending the sessions, their carers (n=5), NCFC coaching staff (n=5) and people organising/facilitating the sessions (n=5), were interviewed. Semi-structured interviews explored the participants' experiences of dementia, their opinions on current service provisions and on the sessions.Data were analysed using thematic analysis. Four main themes were found: loss related to the condition of dementia and its impact on relationships ('Loss'); lack of age-appropriate services for people with early onset dementia ('Lack of Resources'); enjoyment and positive anticipation related to the group for all involved ('Enjoyment and Anticipation'); and 'the Notts County Effect' which attributed the success of the sessions to the strong brand of the football club, and to personalised service in a "dementia-free" environment. The NCFC sessions provided a safe low-cost intervention with positive effects upon quality of life for both people with early onset dementia, their carers and the staff involved. This suggests that the service may be valuable to a wider range of people living in different areas KeywordsDementia; early onset dementia; football; men; quality of life; sporting activities.

show abstract

“…Normalization of life for people with dementia has been shown to be an important strategy in maintaining a positive mood and enhancing coping strategies (De Boer et al, 2007).…”

Section: (Bob Person With Early Onset Dementia)mentioning

confidence: 99%

Football and dementia: A qualitative investigation of a community based sports group for men with early onset dementia

2016

View full text Add to dashboard Cite

show abstract

“…5,[10][11][12][13][14][15][16][17] Het betreft onder meer problemen op de volgende aanpassingsterreinen:…”

Section: Inleidingunclassified

“…Denk aan ontkennen, vermijden van sociale contacten, confabuleren, een façade ophouden, externe attributie van problemen en gebruik van humor. 5,12,14,15,[18][19][20] Belangrijke vragen vanuit het psychosociale behandelperspectief zijn hoe mensen hun ziekte beleven en daarmee omgaan en hoe psychologische (persoonlijkheid, levensgeschiedenis), ziektegerelateerde, sociale en materiële omgevingsfactoren daarop van invloed zijn. Behandeling en begeleiding vanuit dit perspectief richten zich op het bijstaan van mensen met dementie en hun omgeving bij het omgaan met de gevolgen van dementie met als doel verbetering van hun kwaliteit van leven en voorkoming c.q.…”

Section: Inleidingunclassified

Meer kwaliteit van leven

Lange¹,

Dröes²,

Scheltens³

et al. 2018

View full text Add to dashboard Cite

show abstract

“…This prevailing model of positive psychology and dementia is not supported within the qualitative literature (see Wolverson, Clarke, & MonizCook, 2015 for a review) and this should be reflected in future outcome measure development or adaptation. By reducing positive psychology to coping or as a means of denial (de Boer, Hertogh, Dröes, Riphagen, Jonker, & Eefsting, 2007), potentially valuable positive characteristics are at risk of being not investigated properly. Future researchers should be wary of assuming that content validity remains the same, POSITIVE OUTCOMES AND DEMENTIA despite using measures with populations they were not designed for.…”

Section: Future Researchmentioning

confidence: 99%

The development of positive psychology outcome measures and their uses in dementia research: A systematic review

et al. 2017

View full text Add to dashboard Cite

Positive psychology is gaining credence within dementia research but currently there is a lack of outcome measures within this area developed specifically for people with dementia. Authors have begun adopting positive psychology measures developed with other populations but there is no consensus around which are more appropriate or psychometrically robust. A systematic search identified measures used between 1998-2017 and an appraisal of the development procedure was undertaken using standardised criteria enabling the awarding of scores based on reporting of psychometric information. Twelve measures within the constructs of identity, hope, religiosity/ spirituality, life valuation, self-efficacy, community and wellbeing were identified as being used within 17 dementia studies. Development procedures were variable and scores on development criterion reflected this variability. Of the measures included, the Herth Hope Index, Systems of Belief Inventory and Psychological Well-being Scale appeared to be the most robustly developed and appropriate for people with dementia.

show abstract

Suffering from dementia – the patient's perspective: a review of the literature

Abstract: The overview provides a good starting point for improving the adjustment of care to the experience and wishes of people with dementia.

Cited by 188 publications

References 65 publications

Football and dementia: A qualitative investigation of a community based sports group for men with early onset dementia

Football and dementia: A qualitative investigation of a community based sports group for men with early onset dementia

Meer kwaliteit van leven

The development of positive psychology outcome measures and their uses in dementia research: A systematic review

Contact Info

Product

Resources

About