Suffering Assessment: A Review of Available Instruments for Use in Palliative Care

Krikorian, Alicia; Limonero, Joaquín T.; Corey, Matthew T

doi:10.1089/jpm.2012.0370

Cited by 58 publications

(56 citation statements)

References 74 publications

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“…34 In fact, in our previous studies most patients with endstage dementia had a high suffering level upon their demise. 35 The suffering assessment [36][37][38][39][40] and quality of dying evaluation [41][42][43] are important in advanced dementia. Some available instruments developed for suffering assessment are Initial assessment of suffering, 44 Pictorial Representation of Illness and Self Measure, 45 Suffering Assessment Tool, 46 State of Suffering-V, 47 The Suffering scales, 48 and Structured Interview for Symptoms and Concerns scale.…”

Section: Discussionmentioning

confidence: 99%

Prognosis of Short Survival in Patients With Advanced Dementia as Diagnosed by Aminoff Suffering Syndrome

Aminoff

2014

Am J Alzheimers Dis Other Demen

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On the first few days after admission to the Geriatric-Internal Medicine department, the suffering level of patients with advanced dementia (Mini-Mental State Examination 0 of 30) was evaluated according to the Mini-Suffering State Examination (MSSE). During hospitalization, 14.8% (27 of 183) of patients with advanced dementia were died with a mean survival rate of 19.86 ± 26.9 days. The MSSE scale score of died patients was 7.56 ± 1.71 during the first few days of admission which indicates high suffering levels. The MSSE scale score of survived patients with advanced dementia was 3.99 ± 2.10 which confirms their low level of suffering. There was a significant difference (P < .001) between the groups. Patients with dementia who died and were diagnosed as having Aminoff suffering syndrome during the first few days of admission had a high suffering level and short-survival time.

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Section: Discussionmentioning

confidence: 99%

Prognosis of Short Survival in Patients With Advanced Dementia as Diagnosed by Aminoff Suffering Syndrome

Aminoff

2014

Am J Alzheimers Dis Other Demen

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“…Studies and systematic reviews have shown that the use of such standardized quality of life assessment instruments, including patient‐reported outcome measures (PROMs) and patient‐reported experience measures (PREMs), can enable professionals to efficiently assess and address fluctuations in patients' various concerns. Providing clinicians with quality of life information can improve clinician‐patient communication, raise awareness of problems that would otherwise be overlooked, improve care plans and enhance multidisciplinary collaboration (Antunes, Harding, & Higginson, ; Catania et al., ; Krikorian et al., ).…”

Section: Dialectics Between Individualization and Standardizationmentioning

confidence: 99%

“…In most palliative literature, the notion of person-centred care is implicit, with sparse explications of person-centred approaches to palliative care. Moreover, conceptualizations in the literature tend to portray the patient with suffering detached from capability and agency (e.g., Kamal, Gradison, Maguire, Taylor, & Abernethy, 2014;Krikorian, Limonero, & Corey, 2013).…”

Section: Positioning Person-centred Carementioning

confidence: 99%

Person‐centred care dialectics—Inquired in the context of palliative care

et al. 2017

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Although a widely used concept in health care, person-centred care remains somewhat ambiguous. In the field of palliative care, person-centred care is considered a historically distinct ideal and yet there continues to be a dearth of conceptual clarity. Person-centred care is also challenged by the pull of standardization that characterizes much of health service delivery. The conceptual ambiguity becomes especially problematic in contemporary pluralistic societies, particularly in the light of continued inequities in healthcare access and disparities in health outcomes. Our aim was to explicate premises and underlying assumptions regarding person-centred care in the context of palliative care with an attempt to bridge the apparently competing agendas of individualization versus standardization, and individuals versus populations. By positioning person-centredness in relation to the hermeneutics of the self according to Paul Ricœur, dialectics between individualization and standardization, and between individuals and populations were constructed. The competing agendas were related in a dialectic manner in the way that population health is of importance for the individual, and standardization is of importance for the population. The analysis suggests that person-centred care is an ethical stance, which gives prominence to both suffering and capability of the individual as a person. The dialectic analysis points towards the importance of extending person-centred care to encompass population and societal perspectives and thereby avoiding a problematic tendency of affiliating person-centred care with exclusively individualistic perspectives. Considerations for person-centred palliative care on micro-, meso- and macrolevels conclude the paper.

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“…According to a recent review [32], there are 10 instruments available for assessing suffering for both research and clinical purposes. Among all the examined instruments, Pictorial Representation of Illness and Self-Measure (PRISM) showed the best psychometric properties, such as construct validity and test-retest reliability, and exhibits ease of readability and comprehension, as well as sensitivity to change.…”

Section: Introductionmentioning

confidence: 99%

“…Previous studies indicate that PRISM does indeed measure suffering [33]. So far, it has been validated for use with a number of patient populations, including patients with systemic lupus, vitiligo, obesity, lung disease, psoriasis, chronic noncancer pain, diabetes, fertility problems, and breast cancer [32, 34]. To date however, PRISM has not been used for assessing suffering in IBS patients.…”

Section: Introductionmentioning

confidence: 99%

A Measure of Suffering in relation to Anxiety and Quality of Life in IBS Patients: Preliminary Results

Tončić

Tkalčić

2017

BioMed Research International

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Irritable bowel syndrome (IBS) is a chronic gastrointestinal (GI) disorder with a severe impact on quality of life (QoL). We explored the relationship of a visual measure of suffering, the PRISM-RII, with quality of life (QoL) and anxiety measures in IBS patients. Participants were 44 IBS patients who completed several questionnaires and kept a symptom diary for two weeks. The measures used were PRISM-RII (self-illness separation (SIS); illness perception measure (IPM)); IBS-36 (IBS health related QoL); SF-36 (physical and mental health related QoL); State-Trait Anxiety Inventory (STAI-T); Visceral Sensitivity Index (VSI; GI-specific anxiety); and a symptom diary. SIS was negatively correlated to VSI, while IPM was negatively correlated to SIS and the physical component of SF-36 and positively to VSI and symptom severity. We found significant differences between participants who perceive their illness as small and those who perceive it as medium in SIS, symptom severity, VSI, and the mental component of SF-36. Participants, who perceived their illness as small, represented their illness as more distant, showed lower average symptom severity, and had lower GI-specific anxiety and higher QoL. The results indicate that IPM and SIS can be useful in discriminating patients with more prominent psychological difficulties and QoL impairment.

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Suffering Assessment: A Review of Available Instruments for Use in Palliative Care

Cited by 58 publications

References 74 publications

Prognosis of Short Survival in Patients With Advanced Dementia as Diagnosed by Aminoff Suffering Syndrome

Prognosis of Short Survival in Patients With Advanced Dementia as Diagnosed by Aminoff Suffering Syndrome

Person‐centred care dialectics—Inquired in the context of palliative care

A Measure of Suffering in relation to Anxiety and Quality of Life in IBS Patients: Preliminary Results

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