Prognosis of Short Survival in Patients With Advanced Dementia as Diagnosed by Aminoff Suffering Syndrome

Aminoff, Bechor Zvi

doi:10.1177/1533317514539543

Cited by 14 publications

(26 citation statements)

References 39 publications

(40 reference statements)

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“…The terms ‘advanced dementia’ (Aminoff, 2014; Nourhashemi et al., 2012), ‘severe dementia’ (Nourhashemi et al., 2012; Sampson, 2010) and ‘end stage of dementia’ (Aminoff, 2014; Potter, Fernando, & Humpel, 2013) were all used within the literature. However, they were used sparingly and mainly in the title and/or as a key word.…”

Section: Resultsmentioning

confidence: 99%

“…Definitions of end of life were often imprecise (Nourhashemi et al., 2012). The end stage of dementia was associated with high levels of suffering (Aminoff, 2014) and increased mortality and morbidity (Potter et al., 2013). There were descriptions related to moving into the dying phase and dying, which included the challenge of predicting survival time (Rexach, 2012).…”

Section: Resultsmentioning

confidence: 99%

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The extended palliative phase of dementia – An integrative literature review

et al. 2016

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This article presents an integrative literature review of the experience of dementia care associated with the extended palliative phase of dementia. The aim was to highlight how dementia is defined in the literature and describe what is known about the symptomatology and management of advanced dementia regarding the needs and preferences of the person with dementia and their family carer/s. There was no consistent definition of advanced dementia. The extended palliative phase was generally synonymous with end-of-life care. Advanced care planning is purported to enable professionals to work together with people with dementia and their families. A lack of understanding of palliative care among frontline practitioners was related to a dearth of educational opportunities in advanced dementia care. There are few robust concepts and theories that embrace living the best life possible during the later stages of dementia. These findings informed our subsequent work around the concept, 'Dementia Palliare'.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

The extended palliative phase of dementia – An integrative literature review

et al. 2016

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“…62,63 Diagnosis of Aminoff suffering syndrome could prove beneficial in the prognosis of short survival in advanced dementia. 64 The first description of advanced dementia by Dr Alois Alzheimer is a reminder of the reality of the torment and anguish of these patients. 65 The medical, functional, cognitive and emotional condition of Mrs Auguste Dfeterg during her last months and days are characteristic of Aminoff suffering syndrome.…”

Section: Discussionmentioning

confidence: 99%

Not Calm and Aminoff Suffering Syndrome in Advanced Alzheimer’s Disease

Aminoff

2015

Am J Alzheimers Dis Other Demen

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We studied 183 patients with advanced dementia who had been admitted to the Geriatric-Internal Medicine Department of a general hospital, with a 1 year follow-up evaluated by Mini-Suffering State Examination (MSSE) scores on first days after admission. The not calm compared to calm patients with advanced dementia had a high suffering level (6.12 ± 2.16 versus 3.21 ± 1.71) with a statistically significant difference (P = 0.001). The not calm patients were sicker, a higher percentage had fever (P = 0.005), elevated levels of white blood cells WBC (P = 0.003) and C-reactive protein (CRP) (P = 0.020). The Kaplan-Meier function analysis showed a shorter survival of not calm versus calm advanced dementia patients, with a statistically significant difference (Log Rank [Mantel-Cox] P = 0.002). Not calm in advanced dementia patients is the first item of the MSSE and is a very important symptom of Aminoff Suffering Syndrome.

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“…Late stage dementia can also be called "advanced dementia" (Aminoff, 2014;Tolson et al, 2017), "severe dementia" (Sampson, 2010), or "end stage of dementia" (Potter, Fernando, & Humpel, 2013). The care provided in the later stages of dementia is often fragmented and people may die because of unrecognised and untreated symptoms and needs, thereby experiencing considerable apathy and suffering (Jones et al, 2016).…”

Section: Introductionmentioning

confidence: 99%

The relationship between frailty, functional dependence, and healthcare needs among community‐dwelling people with moderate to severe dementia

Abreu

Tolson

Jackson

et al. 2018

Health Soc Care Community

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This paper examines the healthcare needs of community‐dwelling older people living in Porto, Portugal, diagnosed with moderate or severe dementia, linked to functional dependency, cognitive decline, limitations in the activities of daily life, and frailty levels. A sample of 83 participants was recruited. Data were collected between 2013 and 2017. A sociodemographic questionnaire, the Clinical Dementia Rating (CDR), the Barthel Index (BI), the Lawton and Brody Instrumental Activities of Daily Living (IADL) Scale, and the Edmonton Frail Scale (EFS) were used. A set of 26 healthcare needs was defined to support the assessment. The Pearson chi‐square or Fisher's exact test (as appropriate) was used to examine the association of the needs (unmet and met) with the levels of dementia and frailty. Participants were diagnosed previously with moderate or severe dementia and benefited from a structured home‐care program. There was a high number rated as “severe dementia,” “fully dependent,” “severely or fully dependent in the activities of daily living (ADL),” and “severe frailty.” There were statistically significant differences among needs identified in people with moderate or severe dementia and moderate or severe frailty. The most prevalent healthcare needs in the sample were food preparation, medication/taking pills, looking after their home, toilet use, sensory problems, communication/interaction, bladder, bowels, eating and drinking, memory, sleeping, and falls prevention. In particular, the study identifies a set of needs that are present simultaneously in both frailty and dementia stages. This study underlines that despite well‐structured home‐care programs for people with dementia, unmet health needs remain. Timely healthcare needs assessment may help professionals to avoid fragmented care and to tailor quality‐integrated interventions, including the emotional and psychological balance of the caregiver.

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Prognosis of Short Survival in Patients With Advanced Dementia as Diagnosed by Aminoff Suffering Syndrome

Cited by 14 publications

References 39 publications

The extended palliative phase of dementia – An integrative literature review

The extended palliative phase of dementia – An integrative literature review

Not Calm and Aminoff Suffering Syndrome in Advanced Alzheimer’s Disease

The relationship between frailty, functional dependence, and healthcare needs among community‐dwelling people with moderate to severe dementia

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