Subjective and Objective Caregiver Burden in Parkinson's Disease

Kim, Keum Soon; Kim, Bog Ja; Kim, Kyung Hee; Choe, Myoung Ae; Yi, Myungsun; Hah, Yang Sook; Chung, Sun Ju; Kwon, So Hi

doi:10.4040/jkan.2007.37.2.242

Cited by 25 publications

(28 citation statements)

References 14 publications

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“…Additionally, results suggest that duration of caring and carer age are significant factors, with older carers experiencing inferior QoL. Previous studies have also identified increasing age as a significant factor [13, 30, 31], and the current study suggests that this is particularly evident in relation to engagement in social and personal activities and mental health. The importance of maintaining an active social and personal life with regard to healthy ageing is well documented [32], and maintenance of this should be of significant concern in the caregiver population.…”

Section: Discussionsupporting

confidence: 48%

Factors Influencing Quality of Life in Caregivers of People with Parkinson's Disease and Implications for Clinical Guidelines

Morley

Dummett

Peters

et al. 2012

Parkinson's Disease

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The quality of life (QoL) of informal caregivers can be adversely affected by a number of factors. This issue, however, has not been well explored for carers of people with Parkinson's (PwP), with research largely restricted to the assessment of caregiver burden and caregiver strain. This study aims to determine the main influences on carer QoL in this population and consider results in the context of current clinical guidelines for the management of Parkinson's disease (PD). Carers completed the newly validated PDQ-Carer, and PwP completed the PDQ-39. The sample comprised 238 carers (mean age 68.20 years) and 238 PwP (mean age 71.64). Results suggest multiple influences on caregiver QoL. These include carer age, gender, health status, and duration of the caregiving role. PwP levels of mobility and cognitive impairment are also significant influences on carer QoL. Not only should practitioners and service providers be particularly aware of the heightened impact of PD on carers over time and as PwP symptoms deteriorate, but this should also be reflected in clinical guidelines for the management of PD.

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Section: Discussionsupporting

confidence: 48%

Factors Influencing Quality of Life in Caregivers of People with Parkinson's Disease and Implications for Clinical Guidelines

Morley

Dummett

Peters

et al. 2012

Parkinson's Disease

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“…Over the course of caregiving, younger caregivers often experienced an increase in the intensity of caregiving and were forced to reduce the time spent on social activities and skip opportunities to enroll in the work force. This was unlike the South Korean study, where Kim et al found that the caregivers aged 40 and under who were caring for patients’ with Parkinson disease reported a significantly lower subjective burden than those of aged 41 and above. As literature on younger caregivers’ burden is scant, more research is recommended to explore the cause of younger caregivers’ burden.…”

Section: Discussionmentioning

confidence: 57%

Psychological distress and perceived burden in caregivers of persons with autism spectrum disorder

Alnazly

Abojedi

2019

Perspect Psychiatr Care

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Purpose To investigate psychological distress among parents of children with autism spectrum disorder and the associated sociodemographic factors influencing parents’ distress. Design and Methods A cross‐sectional design with a sample of 123 Jordanian parents providing care to children with autism spectrum disorder was used. A sociodemographic questionnaire, the Oberst Caregiving Burden Scale, the Bakas Caregiving Outcomes Scale, and the Hospital Anxiety and Depression Scale were utilized for data collection. Findings Parents reported moderate levels of burden, negative life changes, and borderline depression and anxiety. The perceived burden related to caregiving task difficulty positively correlated with that related to time spent on tasks and negatively correlated with caregivers’ caregiving‐related outcomes. The perceived burden of caregiving tasks was negatively correlated with depression and anxiety and anxiety levels were positively correlated with depression (P < 0.001). Practice Implication Healthcare providers, advanced practice nurses, and policy makers should be aware of the burden, anxiety, and depression experienced by caregivers of children with autism spectrum disorder.

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“…Parkinsonism significantly reduces the quality of life of patients, family members, and caregivers [12,[34][35][36][37][38] Several studies have documented the increased direct costs of PD using different models, e.g., quality-of-life estimates [27,30,39] or model estimates [40,41], whereas others have evaluated the effect of pharmacological treatment [29,31,[42][43][44][45][46] or subthalamic stimulation [28,[47][48][49][50]. Still other studies have addressed management issues related to the care of patients with AP and PD, including the effect on caregivers and families [36,[51][52][53][54][55][56] and the influence on economic and other costs.…”

Section: Discussionmentioning

confidence: 99%

The health-related, social, and economic consequences of parkinsonism: a controlled national study

et al. 2011

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Parkinson's disease (PD) and atypical parkinsonism (AP) cause a significant socioeconomic burden, but there is insufficient information about the total disease burden at a national level. Thus, the goal of this study was to estimate the excess direct and indirect costs of PD and AP in a national sample. Using records from the Danish National Patient Registry (1997-2007), 13,400 PD and 647 AP patients were identified and compared with, respectively, 53,600 and 2,588 control cases randomly selected with respect to age, gender, civil status, and geographic location. Direct costs including frequencies of primary and sector contacts and procedures, and medication from primary and secondary sectors were obtained from the Danish Ministry of Health, the Danish Medicines Agency, and the National Health Security. Indirect costs, which included labor supply and social transfer payments, were based on income data derived from the Coherent Social Statistics. Patients with PD and AP had significantly higher rates of health-related contact and medication use and a higher socioeconomic cost. Furthermore, they had very low employment rates, and those in employment had a lower income level than employed control subjects. The annual mean excess health-related cost was 6,500 ($8,975/£5,543) and 9,771 ($13,491/£8,332) for each patient with PD and AP, respectively. In addition, the patients with PD and AP received an annual mean excess social transfer income of 324 (£276/$447) and 844 (£719/$1,165), respectively. The employment- and health-related consequences could be identified up to 8 years before the first diagnosis and increased with disease advancement. PD and AP have major socioeconomic consequences for patients and society. The health effects are present for up to more than 8 years before a diagnosis of PD/AP.

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Subjective and Objective Caregiver Burden in Parkinson's Disease

Cited by 25 publications

References 14 publications

Factors Influencing Quality of Life in Caregivers of People with Parkinson's Disease and Implications for Clinical Guidelines

Factors Influencing Quality of Life in Caregivers of People with Parkinson's Disease and Implications for Clinical Guidelines

Psychological distress and perceived burden in caregivers of persons with autism spectrum disorder

The health-related, social, and economic consequences of parkinsonism: a controlled national study

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