Studying communication about end-of-life care during the ICU family conference: Development of a framework

Curtis, J. Randall; Engelberg, Ruth A.; Wenrich, Marjorie D.; Nielsen, Elizabeth; Shannon, Sarah E.; Treece, Patsy D.; Tonelli, Mark R.; Patrick, Donald L.; Robins, Lynne; McGrath, Barbara Burns; Rubenfeld, Gordon D.

doi:10.1053/jcrc.2002.35929

Cited by 184 publications

(132 citation statements)

References 28 publications

Supporting

Mentioning

130

Contrasting

Unclassified

Order By: Relevance

“…However, another plausible hypothesis is that providers are more likely to recommend earlier of-life care. Although the majority of time spent communicating with the families of dying patients involves discussions leading up to a decision about whether to forego life-sustaining therapy, 42 highquality end-of-life communication requires informing patients and families about the typical events that occur after support is withdrawn, 6,43,44 yet many families report receiving limited information about what to expect during the dying process or are not informed about the uncertainty in the timing of death after withdrawal. 14,45 Lack of information about withdrawal in women.…”

Section: Discussionmentioning

confidence: 99%

Predictors of Time to Death After Terminal Withdrawal of Mechanical Ventilation in the ICU

Cooke

Hotchkin

Engelberg

et al. 2010

Chest

Self Cite

View full text Add to dashboard Cite

A pproximately 20% of all American patients die during or shortly after a stay in the ICU, 1 the majority of whom do so in the context of a decision to forego life-sustaining therapy. [2][3][4] Once families and caregivers decide to withdraw life support, experts in end-of-life communication advocate for clinicians to inform families of what they should expect during their loved one's dying process. 5,6 This communication might include details about the expected myoclonus of dying patients, the potential for agonal respirations after discontinuation of mechanical ventilation, and the timing of death after withdrawal of life support. 6 Despite frequent family requests as well as expert recommendations for discussion of the postwithdrawal course, few data exist to guide clinicians in accurately conveying the anticipated course. [7][8][9] The majority of studies that examine the timing of death after withdrawal focus on patients with severe neurologic injury in the context of organ donation after cardiac death 10 or on whether the use of analgesics and sedatives during the dying process hasten death in patients who are critically ill. 7,11 These studies, among others, 12,13 dedicate little attention to other factors that may infl uence the timing of death after withdrawal of life support, such as age, severity of illness, or underlying diagnosis. Characterization of the factors that predict time to death may inform familycaregiver communication at the end of life and alleviate some of the anxiety and frustration resulting

show abstract

Section: Discussionmentioning

confidence: 99%

Predictors of Time to Death After Terminal Withdrawal of Mechanical Ventilation in the ICU

Cooke

Hotchkin

Engelberg

et al. 2010

Chest

Self Cite

View full text Add to dashboard Cite

show abstract

“…Two studies measured comfort with discussing EoL issues/topics (Kerai & Wheeler, 2013;Smith et al, 2013) and both of these studies used Likert scales (5-point scale and 7-point scale respectively). One study (Smith et al, 2013) reported that all of the measures used were developed according to expert opinion, society guidelines and a literature review for EoL communication (Buckley et al, 2009;Curtis et al, 2002;Lautrette et al, 2006;Lautrette et al, 2007;McDonagh et al, 2004;NIH, 2004;White et al, 2007). However (2012) was also the only study to measure stress and burnout, and used the 22-item Maslach Burnout Inventory (as used by Ramirez et al, 1996).…”

Section: Outcome Measuresmentioning

confidence: 99%

The effectiveness of communication-skills training interventions in end-of-life noncancer care in acute hospital-based services: A systematic review

2015

View full text Add to dashboard Cite

A note on versions:The version presented here may differ from the published version or, version of record, if you wish to cite this item you are advised to consult the publisher's version. Please see the 'permanent WRAP URL' above for details on accessing the published version and note that access may require a subscription For more information, please contact the WRAP Team at: wrap@warwick.ac.uk Significance of ResultsFurther research is needed to fully explore the effectiveness of existing training interventions in this population, and evidence using objective measures in particular is needed. Ideally, randomised controlled trials, or studies using control groups and longer follow ups are needed to test the effectiveness of interventions. There has been no recent review that has focused on non-cancer services and patients, and with evidence highlighting gaps in effective communication between staff and patients about EoL care in acute hospitals (e.g. Hewison et al., 2014), it is timely to focus on communication skills training in non-cancer acute services. Therefore this review seeks to establish, through the available literature, the effectiveness of communication skills training in non-cancer EoL care in acute hospital based services.

show abstract

“…4 Incorporating trained and educated bedside nurses and advanced practice nurses as part of the interdisciplinary team in end-of-life discussions may lead to earlier discussion and can provide the emotional support and reassurance that the family desires. 5 Formal education (both didactic and clinical) may also decrease moral distress as well as provide the empowerment needed to provide excellent endof-life care.…”

mentioning

confidence: 99%

Education May Help Decrease Nurses’ Moral Distress

Parker

2013

American Journal of Critical Care

View full text Add to dashboard Cite

Studying communication about end-of-life care during the ICU family conference: Development of a framework

Cited by 184 publications

References 28 publications

Predictors of Time to Death After Terminal Withdrawal of Mechanical Ventilation in the ICU

Predictors of Time to Death After Terminal Withdrawal of Mechanical Ventilation in the ICU

The effectiveness of communication-skills training interventions in end-of-life noncancer care in acute hospital-based services: A systematic review

Education May Help Decrease Nurses’ Moral Distress

Contact Info

Product

Resources

About