“Stuck in a loop of fear”: a phenomenological exploration of carers’ experiences supporting a spouse with acquired brain injury

Lond, Benjamin; Williamson, Iain

doi:10.1080/09638288.2017.1363299

Cited by 14 publications

(9 citation statements)

References 28 publications

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“…Secondary stressors are often investigated less than primary stressors when exploring caregiving stress and its impact, yet studies have shown a significant role of these stressors in caregiving strain. Some have highlighted that informal caregivers reporting high levels of informal caregiver burnout perceived themselves as having a more disturbed daily life due to the illness, less free time and time for themselves (Lindström et al, 2011), or hypervigilance regarding the occurrence of new symptoms in the case of unpredictable illnesses (Lond and Williamson, 2017). Informal caregiver burnout was also found to be related to having a reduced social life and the loss of friends (Lindgren, 1990), and more globally the feeling on the part of caregivers of having had to give up important things for themselves due to the care-recipients’ problem (Gérain and Zech, 2018).…”

Section: Introductionmentioning

confidence: 99%

Informal Caregiver Burnout? Development of a Theoretical Framework to Understand the Impact of Caregiving

2019

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Informal caregiving is a rewarding but demanding role. The present theoretical framework proposes to adapt the tridimensional concept of burnout to informal caregiving as a way to address the potential consequences of caregiving. This adaptation reflects caregivers’ reported difficulties, as well as empirical findings on emotional exhaustion, depersonalization, and personal accomplishment as caregiving outcomes. But to understand burnout in informal caregiving contexts, it is also necessary to find ways to model it. The Informal Caregiving Integrative Model (ICIM) is thus proposed. This model is based on the integration of elements from literature on both informal caregiving stress and professional burnout. The goal of the ICIM is to emphasize the importance of every category of determinants of informal caregiver burnout (i.e., relating to the caregiver, the caregiving setting, and the sociocultural context), with a key mediating role for the caregivers’ appraisal of their situation and their relationship with the care-recipient. This article is a first integrative step in the consideration of a form of burnout specific to informal caregivers and supports the design of empirical and interventional studies based on the theoretical foundation that the ICIM proposes.

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Section: Introductionmentioning

confidence: 99%

Informal Caregiver Burnout? Development of a Theoretical Framework to Understand the Impact of Caregiving

2019

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“…Long-lasting caring for a partner with ABI presents considerable challenges that may threaten a person's well-being (Lond & Williamson, 2018). The caregiver often plays a significant role in providing the injured person with emotional support.…”

Section: Discussionmentioning

confidence: 99%

“…In the counterpart, the caregiving experience often alters the physical and psychological health of the caregivers (Gebhardt et al, 2011). Their anxiety is often managed through overprotective practices that put them at risk of burnout (Lond & Williamson, 2018). The current situation related to the COVID-19 pandemic worsens caregivers' situation because of quarantine measures as a disease control tool (Dubey et al, 2020).…”

Section: Introductionmentioning

confidence: 99%

Inteligencia emocional en cuidadores de pacientes con daño cerebral adquirido y déficit cognitivo: ¿existe relación con la sobrecarga o la resiliencia?

García¹,

Bustos²,

Arango‐Lasprilla³

2021

Ansiedad y Estrés

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Introduction: Acquired brain injury entails stressful situations of emotional complexity. Objective: To evaluate possible relationship among emotional intelligence, emotional status, resilience, and burden sensation of caregivers of patients with cognitive-behavioral impairment due to acquired brain injury in isolation circumstances because of COVID-19 pandemic. Material and methods: An observational descriptive cross-sectional study of prevalence was designed with a sample of 17 caregivers of patients with cognitive-behavioral impairment due to acquired brain injury. Main outcome measures: Caregiver Burden Interview, the 10-item Connor-Davidson Resilience Scale, Emotional Health, the Trait Meta-Mood Scale and the Positive and Negative Affect Schedule. Results: The median age of the 17 caregivers was 47.5 years, 71% of women had a median care-time of 3.5 years, and 65% of the total sample were spouses of the patients. 70% of the patients were affected by stroke (hemorrhagic or ischemic cause). 59% of the caregivers presented a low level of emotional attention and emotional clarity, and 47 %, low emotional repair ability. 82% of them did not report overload, 53% showed low resilience level. Emotional intelligence showed strong correlation with resilience and mental health of caregivers. All of them were positively correlated with daily positive emotions and negatively correlated

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“…Equipping caregivers with emotional regulation strategies to provide sustainable care is something that could benefit both the caregiver and the rehabilitation of the spouse. Caregivers' anxiety episodes are often managed through hyper-vigilant and overprotective practices that put them at risk of burnout [7].…”

Section: Introductionmentioning

confidence: 99%

Training on Emotional Intelligence for Caregivers of Patients with Acquired Brain Injury and Cognitive Impairment: A Quasi-Experimental Study

De-Torres¹,

Bustos²,

Arango-Lasprilla³

2022

Preprint

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Background: Cognitive-behavioral alterations can occur after an acquired brain injury. It is a stressful situa-tion for patient and relatives. Objectives: To develop and evaluate a synchronous online training program on emotional intelligence (EI) for caregivers of adult patients with cognitive-behavioral impairment due to acquired brain injury. Methods: A quasi-experimental study was designed, a target population of ten caregivers attended to a one-month virtual synchronous course about EI. The emotional status of caregivers was registered one-month-previous and one-month-post program using comparative measures: The Trait Meta-Mood Scale (TMMS-24) and the Positive and Negative Affect Schedule (PANAS). Results: Median age of the ten caregivers was 48 years, 80% of women with a median care-time of 6 years. 50% of them were spouses of the patients. 60% of the patients were affected by stroke (hemorrhagic or ischemic cause). The main cognitive impairment of the patients reported by relatives was memory deficit. After re-ceiving training, favorable changes were found regarding emotional affect measured with the PANAS, both positive (increase) and negative (decrease), as well as with the TMMS-24-mood-repair area (p < 0.05). Conclusions: Training in EI helps caregivers to make their mood more positive and improve aspects of their emotional intelligence such as emotional regulation.

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“Stuck in a loop of fear”: a phenomenological exploration of carers’ experiences supporting a spouse with acquired brain injury

Cited by 14 publications

References 28 publications

Informal Caregiver Burnout? Development of a Theoretical Framework to Understand the Impact of Caregiving

Informal Caregiver Burnout? Development of a Theoretical Framework to Understand the Impact of Caregiving

Inteligencia emocional en cuidadores de pacientes con daño cerebral adquirido y déficit cognitivo: ¿existe relación con la sobrecarga o la resiliencia?

Training on Emotional Intelligence for Caregivers of Patients with Acquired Brain Injury and Cognitive Impairment: A Quasi-Experimental Study

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