Stress, Coping, and Marital Functioning among Parents of Children with Cancer

Barbarin, Oscar A.; Hughes, Diane; Chesler, Mark A.

doi:10.2307/352146

Cited by 117 publications

(119 citation statements)

References 15 publications

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“…Estes resultados também foram encontrados em vários estudos sobre crenças de mães de filhos portadores de enfermidade crônica, sendo considerado como um recurso importante que permite aos pais gerarem suas próprias expectativas para os eventos futuros ao longo das prestações de cuidados ao filho (Barbarian, Hughes & Chesler, 1985;Fewell, 1986;Libow, 1989;Venters, 1981). Deste modo, podemos compreender que a busca de apoio social/religioso, adicionada ao bom nível de suporte formal e institucional percebidos, exerce uma importante função de suporte.…”

Section: Discussionunclassified

Estratégias de coping de mães de portadores de autismo: lidando com dificuldades e com a emoção

Schmidt¹,

Dell’Aglio²,

Bosa³

2007

Psicol. Reflex. Crit.

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ResumoEstudos têm apontado evidências de estresse em famílias de portadores de autismo. Neste processo, deve-se considerar as estratégias de coping utilizadas pelos familiares frente às circunstâncias adversas. O objetivo deste estudo foi verificar as estratégias de coping maternas frente a dificuldades dos portadores de autismo, assim como as estratégias das mães para lidar com as próprias emoções desencadeadas pelo estresse. Participaram 30 mães, entre 30 a 56 anos, cujos filhos apresentam diagnóstico de autismo e freqüentam instituições de atendimento. Utilizou-se uma entrevista semi-estruturada, a qual foi transcrita e analisada com base na Análise de Conteúdo. As principais dificuldades se referem ao comportamento do filho, frente às quais as mães utilizam predominantemente as estratégias de ação direta e de aceitação. Quanto às estratégias para lidar com as emoções, as categorias mais freqüentes foram distração, busca de apoio social/religioso, inação e evitação. Os resultados são discutidos considerando-se o estresse e a adaptação materna. Palavras-chave: Autismo; estresse materno; estratégias de coping. AbstractMany studies have shown evidence of high levels of stress in families with autistic children. Concerning this process, it is important to consider the coping strategies used by family members in face of the adverse circumstances. The purpose of this study is to investigate the coping strategies of mothers when dealing with their autistic children, as well as how they deal with their own emotions unleashed by the stress. Thirty mothers, between 30 and 56 years old participated in the study. Their children have met the criteria for autism and attended special education schools. The coping strategies were investigated using a semi-structured interview, which was transcribed and analyzed by content analysis. The main difficulties refer to the child's behavior. In relation to these difficulties, the strategy used by the mothers was predominantly direct action and acceptance. Concerning the strategies to deal with their own emotions, the most frequent categories were distraction, reaching out for social/religious support, lack of action and avoidance. Results are discussed in terms of stress and maternal adaptation model.

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Section: Discussionunclassified

Estratégias de coping de mães de portadores de autismo: lidando com dificuldades e com a emoção

Schmidt¹,

Dell’Aglio²,

Bosa³

2007

Psicol. Reflex. Crit.

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“…The selected studies are all summarized in Table 1, in which the following information is included: the reference number of the study; the number of parents or family members participating in the study; illness-related variables of the children with cancer at time of investigation; the purpose of the study; the measures administered to the parents and the major results of the study concerning the parents. Available information about inclusion or exclusion of children with relapse or second malignan- Table 1 Studies describing emotional adjustment or coping behavior of parents of children with cancer (index-cc number of children with cancer on which study is based; no data of children are reported in the study, p-cc parents of children with cancer, ratio mothers/ fathers not given, m mothers, f fathers, couples cases in which mother and father of a child participated, cc number of children with cancer who participated and of whom data are reported in the study, tsd time since diagnosis, families child, mother and/or father participated; exact numbers are not obvious, ALL acute lymphocytic leukemia, AML acute myelomonocytic leukaemia, NHL nonHodgkin lymphoma, mixed both leukaemias, lymphoma and solid tumours, cd chronic diseases, hc healthy children) [3,4]: Satisfaction and coping in relation to medical context [5]: Childhood cancer and marital outcome [2,4,5]: From interview 8 coping strategies [2][3][4]: Quality relationship staff [2,5]: Marital quality [2,6]: Perceived illness related stress [3]: Satisfaction with medical staff [2]: Relationship with friends [4]: Rated coping effectiveness [5]: Family cohesion, spouse support and medical stress [2]: Coping strategies had a stronger effect on social relations than on the decrease of subjective stress [3]: Satisfaction predicted with 7 dimensions of quality relationship staff. Personal contact best predictor for satisfaction [4]: Passive coping related to better relation medical staff [5]: Marital quality and spouse support under stress with increase hospitalizations.…”

Section: Introductionmentioning

confidence: 99%

Adjustment and coping by parents of children with cancer: a review of the literature

Grootenhuis

1997

Support Care Cancer

194

167

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Studies published since about 1980 on psychological adjustment and coping of parents of children with cancer were reviewed. First, results concerning parental adjustment in terms of psychological distress, marital distress, and family functioning were summarized. Secondly, the use of coping strategies such as social support, communication, and search for meaning were described. Thirdly, factors that influence parental adjustment to childhood cancer, such as coping strategies and illness-related and demographic variables were discussed. All studies are summarized in a review table, with information about the number of participating parents and children, the purpose, measures and major results. Difficulties in generalizing findings are possibly due to the heterogeneous group of children with cancer, the differences in reporting emotional problems by mothers and fathers, the difficulties in assessing illness-specific problems, and the diversity in the ways of assessing coping and adjustment.

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“…Research and clinical observations suggest that the demands for care of a VLBW infant with a chronic illness tax family relationships as well as individual family members (Stullenbarger, et al, 1987;Barbarin, Hughes, & Chesler, 1985) .…”

Section: Overview Of the Problemmentioning

confidence: 99%

Creating Paths: Living With a Very-Low-Birth-Weight Infant

Vasquez

1995

Journal of Obstetric, Gynecologic & Neonatal Nursing

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Objective: To describe parents' method of adaptation to the problems of caring for a very‐low‐birth‐weight (VLBW) infant at home. Design: Exploratory, involving three interview sessions, 1 month, 3 months, and 5 months after hospital discharge of a VLBW infant. Setting: A newborn intensive‐care unit in a tertiary‐care center. Participants: Fourteen parents of VLBW (< 1,500 g) infants after hospital discharge. Results: A basic social process, Creating Paths, was identified. It is the continuous process experienced by parents living with a VLBW infant the first 5 months after hospital discharge. The process consists of three stages: gathering, emerging, and affirming. Conclusions: This grounded theory systematically tracks and describes the adaptation process of parents with VLBW infants during the first 5 months of living at home. The theory may be used to anticipate concerns and provide guidance and support to parents and their infants.

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Stress, Coping, and Marital Functioning among Parents of Children with Cancer

Cited by 117 publications

References 15 publications

Estratégias de coping de mães de portadores de autismo: lidando com dificuldades e com a emoção

Estratégias de coping de mães de portadores de autismo: lidando com dificuldades e com a emoção

Adjustment and coping by parents of children with cancer: a review of the literature

Creating Paths: Living With a Very-Low-Birth-Weight Infant

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