Stigma perceived by patients with functional somatic syndromes and its effect on health outcomes – A systematic review

Ko, C.; Lucassen, P.J.; Linden, B. Van Der; Ballering, Aranka V; Hartman, Tim olde

doi:10.1016/j.jpsychores.2021.110715

Cited by 23 publications

(15 citation statements)

References 37 publications

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“…Distorted self-concepts can aggravate problem behaviours and symptoms such as fatigue, but might be improved through cognitive bias modification of biased self-concepts, such as in an ongoing project on fatigue in breast cancer patients [ 23 ]. Stigmatisation and invalidation were reported to negatively affect the HR-QoL and health outcomes in patients with CFS and fibromyalgia [ 24 ]: illnesses that are often considered by non-patients to be psychological (‘only in the mind’), due to a lack of physical explanations. Like CFS and fibromyalgia, and as participants pointed out, post-COVID-19 syndrome is not observable from the outside (a hidden disability).…”

Section: Discussionmentioning

confidence: 99%

“It Really Is an Elusive Illness”—Post-COVID-19 Illness Perceptions and Recovery Strategies: A Thematic Analysis

Schaap

Wensink

Doggen

et al. 2022

IJERPH

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A substantial number of patients report persisting symptoms after a COVID-19 infection: so-called post-COVID-19 syndrome. There is limited research on patients’ perspectives on post-COVID-19 symptoms and ways to recover. This qualitative study explored the illness perceptions and recovery strategies of patients who had been hospitalised for COVID-19. Differences between recovered and non-recovered patients were investigated. Semi-structured in-depth interviews were held with 24 participating patients (8 recovered and 16 non-recovered) 7 to 12 months after hospital discharge. Data were interpreted using reflexive thematic analysis. Four overarching themes were identified: (I) symptoms after hospital discharge; (II) impact of COVID-19 on daily life and self-identity; (III) uncertainty about COVID-19; and (IV) dealing with COVID-19. Formerly hospitalised post-COVID-19 patients seem to have difficulties with making sense of their illness and gaining control over their recovery. The majority of non-recovered participants continue to suffer mostly from weakness or fatigue, dyspnoea and cognitive dysfunction. No notable differences in illness beliefs were observed between recovered and non-recovered participants

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Section: Discussionmentioning

confidence: 99%

“It Really Is an Elusive Illness”—Post-COVID-19 Illness Perceptions and Recovery Strategies: A Thematic Analysis

Schaap

Wensink

Doggen

et al. 2022

IJERPH

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“…The way in which patients present to healthcare services, and the judgements made by healthcare professionals about such presentations, influences the progression of candidacy [45,46]. Fibromyalgia is a stigmatising illness [47], shaped by societal attitudes about chronic pain and mental illness. Greater perceived stigma in people with chronic pain can heighten pain-related disability and distress [48], and affect presentation at services.…”

Section: Presentation At Healthcare Services and The Adjudications Of...mentioning

confidence: 99%

UK healthcare services for people with fibromyalgia: results from two web-based national surveys (the PACFiND study)

Wilson

Beasley

Pope

et al. 2022

BMC Health Serv Res

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Background The UK’s “Getting It Right First Time” programme recommends that management of people with fibromyalgia should centre on primary care. However, it remains unclear as to how best to organise health systems to deliver services to optimise patient outcomes. Aim To profile UK healthcare services for people with fibromyalgia: provision of National Health Services (NHS) and use of non-NHS services by people with fibromyalgia. Methods Two online open surveys (A and B) incorporating questions about diagnosis, treatment and management of fibromyalgia and gaps in healthcare services were conducted between 11th September 2019 and 3rd February 2020. These were targeted to NHS healthcare professionals consulting with people with fibromyalgia (Survey A) and people ≥16 years diagnosed with fibromyalgia using non-NHS services to manage their condition (Survey B). Descriptive statistics were used to report quantitative data. Thematic analysis was undertaken for qualitative data. Results Survey A received 1701 responses from NHS healthcare professionals across the UK. Survey B received 549 responses from people with fibromyalgia. The results show that NHS services for people with fibromyalgia are highly disparate, with few professionals reporting care pathways in their localities. Diagnosing fibromyalgia is variable among NHS healthcare professionals and education and pharmacotherapy are mainstays of NHS treatment and management. The greatest perceived unmet need in healthcare for people with fibromyalgia is a lack of available services. From the pooled qualitative data, three themes were developed: ‘a troublesome label’, ‘a heavy burden’ and ‘a low priority’. Through the concept of candidacy, these themes provide insight into limited access to healthcare for people with fibromyalgia in the UK. Conclusion This study highlights problems across the NHS in service provision and access for people with fibromyalgia, including several issues less commonly discussed; potential bias towards people with self-diagnosed fibromyalgia, challenges facing general practitioners seeking involvement of secondary care services for people with fibromyalgia, and a lack of mental health and multidisciplinary holistic services to support those affected. The need for new models of primary and community care that offer timely diagnosis, interventions to support self-management with access to specialist services if needed, is paramount.

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“…Stigma dibedakan berdasarkan munculnya dalam suatu lingkungan masyarakat. Menurut Ko et al (2022) stigma muncul dipengaruhi oleh sekelompok orang yang mempengaruhi, menerima, mendukung atau memberlakukan sikap negatif seperti pengucilan, penolakan, dan menyalahkan. Pengalaman individu berdasarkan hal yang pernah dialami sebelumnya.…”

Section: Stigmaunclassified

“…Lingkungan tempat tinggal berdasarkan apa yang dilihat dari kondisi lingkungan dan mempengaruhi sikap individu (Ko et al 2022).…”

Section: Stigma Masyarakat Dalam Menghadapi Pandemi Covid-19 DI Desa ...unclassified

Manajemen Informasi Kesehatan terhadap Stigma Masyarakat dalam Menghadapi Pandemi Covid-19 di Desa Tambakromo, Kecamatan Cepu, Kabupaten Blora

Putri

Ganggi

2022

Anuva

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Manajemen informasi kesehatan merupakan proses yang dilakukan oleh setiap individu untuk mengatur informasi kesehatan hingga menyebarluaskan ke dalam lingkungan masyarakat. Tujuan penelitian ini untuk mengetahui manajemen informasi kesehatan terhadap stigma masyarakat dalam menghadapi pandemi covid-19 di Desa Tambakromo Kecamatan Cepu Kabupaten Blora. Metode yang digunakan adalah metode kualitatif dengan pendekatan studi kasus. Teknik pengambilan data dilakukan dengan observasi, wawancara mendalam dan terbuka (indepth, open-ended interviews), dan dokumen tertulis. Pemilihan informan dilakukan dengan cluster sampling dan membagi informan menjadi 3 klaster. Klaster 1 yaitu pemangku kebijakan, klaster 2 informan yang sudah melakukan vaksin dan patuh protokol kesehatan, dan klaster 3 informan yang tidak melakukan vaksin dan tidak patuh protokol kesehatan. Hasil penelitian ini menunjukkan bahwa manajemen informasi kesehatan yang dilakukan memberikan stigma positif dan negatif di Desa Tambakromo Kecamatan Cepu Kabupaten Blora. Fasefase yang dilewati dalam manajemen informasi kesehatan yaitu menemukan kembali informasi, menyimpan informasi, mengatur informasi, mengambil informasi saat dibutuhkan, hingga menyebarluaskan informasi. Kemampuan dan kebiasaan dalam menggunakan media sosial dan peran pemangku kebijakan dapat mempengaruhi stigma dalam memperoleh informasi kesehatan di masa pandemi covid-19.

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Stigma perceived by patients with functional somatic syndromes and its effect on health outcomes – A systematic review

Cited by 23 publications

References 37 publications

“It Really Is an Elusive Illness”—Post-COVID-19 Illness Perceptions and Recovery Strategies: A Thematic Analysis

“It Really Is an Elusive Illness”—Post-COVID-19 Illness Perceptions and Recovery Strategies: A Thematic Analysis

UK healthcare services for people with fibromyalgia: results from two web-based national surveys (the PACFiND study)

Manajemen Informasi Kesehatan terhadap Stigma Masyarakat dalam Menghadapi Pandemi Covid-19 di Desa Tambakromo, Kecamatan Cepu, Kabupaten Blora

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