Spirituality in Caregiving and Care Receiving

Theis, Saundra L.; Biordi, Diana L.; Coeling, Harriet; Nalepka, Claire D.; Miller, Baila

doi:10.1097/00004650-200301000-00010

Cited by 31 publications

(20 citation statements)

References 21 publications

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“…The review further suggests that these benefits may play a part in enhancing psychological health and encouraging physical well-being. A number of previous studies confirm the benefits of religious belief among carers -particularly relatives of individuals who live with dementia (Burgener, 1999;Paun, 2004;Theis, Biordi, Coeling, Nalepka, & Miller, 2003). The findings of these studies confirm the general suggestion that religious beliefs and practices provide a framework that helps carers to cultivate hope and acceptance, and identify some greater meaning in their situations.…”

Section: Supportsupporting

confidence: 68%

A grounded theory longitudinal study of carers’ experiences of caring for people with dementia

2011

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IntroductionIncreasingly the provision of care for older people with dementia has shifted from institutions to the community. This has resulted in an increase in burden and a reduction in autonomy for those who care for these individuals. AimsThis study sought to identify, describe and explore the changes in the carers' experiences of looking after a relative living with dementia, and the effects of caring on the carers' autonomy and health over time. Research MethodsA longitudinal, grounded theory approach in three phases was used. In-depth interviews were conducted with six spouses at the beginning, at six months and at eighteen months. A constant comparative analysis of taped and transcribed interviews was used. Findings Four categories emerged: My Life Changed, Commitment, Responsibility and Duty, and Support. The core category My Life Changed was identified as representing the beginning of the caregiving journey; and the learning from experience that occurred as a consequence of that journey, offering a new perspective on the experience of carers. Commitment refers to a deepened and sustained element; Responsibility and Duty increases over time and finally Support refers to the fluctuating nature of help provided by formal and informal sources. All participants experienced changes in the caregiving journey; the degree and nature of necessary adaptations varied. Downloaded from ConclusionsATheory of Caring emerged, but what changes were experienced did not appear to conform to any fixed pattern. All carers learned by experience to manage their situations. For all carers their autonomy and health was challenged.

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Section: Supportsupporting

confidence: 68%

A grounded theory longitudinal study of carers’ experiences of caring for people with dementia

2011

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“…This study contributes much needed information about spirituality and caregivers of stroke survivors, which is an outcome of their participation in the e-mail discussion group. This is a distinction between this study and others reported (Jones-Cannon & Davis, 2005;Murray, 2004;Paun, 2004;Pierce, 2001;Sawatzky & Fowler-Kerry, 2003;Taylor, 2003Taylor, , 2006Theis et al, 2003), as messages were most often unsolicited and arose from the caregivers or in response to the nurse specialist facilitator and other caregivers, providing an indication of what was meaningful to them during the first year of caring. Spirituality, which gave caregivers of stroke survivors hope, sustenance, and a chance to express themselves more fully, enabled them to cope during a time of change.…”

contrasting

confidence: 62%

Spirituality Expressed by Caregivers of Stroke Survivors

Pierce

Steiner

Havens³

et al. 2008

West J Nurs Res

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Thirty-six caregivers of stroke survivors who are new to that role participate in a Web-based support and education intervention over the course of a year. The authors use a secondary analysis of a total of 2,148 e-mail messages that these caregivers posted to the intervention's discussion group. Rigorous content analysis is used to analyze the narrative data coded to spirituality (n = 230 e-mails). Four themes emerge and are drawn to Friedemann's (1995) framework of systemic organization: (a) feeling the presence of a greater power, (b) practicing rituals, (c) being one with nature, and (d) interacting with family and friends. Spirituality gives these caregivers hope and sustenance, but it also helps them express themselves more fully during a difficult time of change. The e-mail discussion data presented here highlight the importance of increased awareness of addressing spirituality in nurse-client encounters and designing interventions to support the caregivers.

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“…Compared with other people with serious illnesses, cancer patients have reported the highest percentage of religious coping responses [10]. Indeed, reporting a connection with a benevolent and loving God, religious involvement and spiritual practice have been associated with higher levels of hope [11,12], and ability to find meaning [13]. Although spirituality and/or religion can be an important resource to many people dealing with illness, sickness can also profoundly shake patients' most fundamental, religious or spiritual (R/S) beliefs and practices leading to R/S struggle or distress, also referred to as negative religious coping (NRC).…”

Section: Introductionmentioning

confidence: 99%

'The Relationship Between Post-Traumatic Stress Disorder and Coping Strategies among Patients with Cancer in Gaza Strip

M¹,

Aa²

2017

J Nurs Health Stud

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Aim: The study aimed to examine the mental health status of the patients with cancer and the coping strategies that adopted by them in front of stressful situations. Method:The sample consisted of 358 patients with cancer in the oncology clinic at Shifa Hospital in Gaza Strip. Participants were interviewed individually by questionnaire include socioeconomic questionnaire, PTSD scale, and Ways of coping Scale. Results:The study showed that 42.5% of patients had PTSD, 47% had re-experiencing of PTSD, 40.5% had hyperarousal, and 40.1% had avoidance symptoms. The group of 40 years and less were significantly higher in reexperiences than 71 years and above among the study sample.The results showed that affiliation at the highest rank (81.6%), followed by reinterpretation (75.5%), self-control coping strategy (75.3%), problem solving (72.3%), wish and avoidance thinking was (69.0%), trouble and escape was (61.8%), accountability coping strategy was (53.0%) among the study sample of patients with cancer. The result showed that there were no significant differences in sex of patients and wish and avoidance thinking, problem solving, reinterpretation, affiliation, accountability, and self-control. However, there were significant differences in trouble and escape in favor of male patients.There was positive significant correlation between wish and avoidance thinking and re-experience of PTSD. In addition, there were positive significant correlation between accountability and PTSD, re-experience of PTSD, avoidance of PTSD, hyper-arousal of PTSD. In addition, there were positive significant correlation between Trouble and escape and PTSD, re-experience of PTSD, avoidance of PTSD, hyper-arousal of PTSD. While; there were negative significant correlation between problem solving and PTSD, re-experience of PTSD, avoidance of PTSD, hyperarousal of PTSD. In addition, there were negative significant correlation between re-interpretation and PTSD, re-experience of PTSD, avoidance of PTSD, hyperarousal of PTSD. In addition, there were negative significant correlation between affiliation and PTSD, avoidance of PTSD, hyperarousal of PTSD. In addition, there were negative significant correlation between selfcontrol and PTSD, avoidance of PTSD, hyper-arousal of PTSD.Clinical implications: Our findings highlight the need for therapeutic and educational programmes-including counseling for those patients with cancer and their families, support groups, and behavioural therapy for patients with P.T.S.D, and other psychiatric disorders. Also, new family therapy programmes must be established aimed at improving communications and interactions between family members, as well as teaching problemsolving skills to assist the family members in confronting the mental health problems associated with cancer.

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Spirituality in Caregiving and Care Receiving

Cited by 31 publications

References 21 publications

A grounded theory longitudinal study of carers’ experiences of caring for people with dementia

A grounded theory longitudinal study of carers’ experiences of caring for people with dementia

Spirituality Expressed by Caregivers of Stroke Survivors

'The Relationship Between Post-Traumatic Stress Disorder and Coping Strategies among Patients with Cancer in Gaza Strip

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