Special Requirements of Electronic Health Record Systems in Pediatrics

Spooner, S. Andrew

doi:10.1542/peds.2006-3527

Cited by 118 publications

(78 citation statements)

References 24 publications

(7 reference statements)

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“…First, although standards and interoperability are critical for all PHRs, special attention must be paid to pediatric functions such as growth charts and complex immunization schedules. The American Academy of Pediatrics has issued recommendations for EHR standards, 24 and these should also be applied to PHRs. Second, developmental issues in pediatrics complicate the confidentiality and privacy issues for PHRs.…”

mentioning

confidence: 99%

Pediatric Personal Health Records: Current Trends and Key Challenges

Britto

Wimberg

2009

Pediatrics

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Personal health records may enhance pediatric care and outcomes. Few systems have been developed or customized for pediatrics, and evaluations are scarce. Special considerations in pediatrics include pediatric content such as growth charts, complex privacy and confidentiality considerations, and the changing developmental needs of children and adolescents. Pediatrics 2009;123:S97-S99 P EDIATRICIANS HAVE LONG used tools such as immunization cards and well-child booklets to provide families with access to key information about their children's health. In the past 15 years, electronic records and the Internet have become increasingly important and available mechanisms through which to provide families with data about their children's health and to assist families in tracking their children's health and development. Families also create their own paper and electronic records of their children's health and health care needs. Electronic systems, known as personal health records (PHRs), may play key roles in enhancing partnerships between families and health care providers, promoting self-care, and enhancing family decision-making regarding the health of children and adolescents. Furthermore, they can provide key health information when a child becomes ill away from home or in a disaster. This article reviews PHR types and characteristics, summarizes some existing systems, and describes special challenges for PHRs in pediatrics.PHRs have been defined by the Markle Foundation as an "electronic application through which individuals can access, manage and share their health information, and that of others for whom they are authorized, in a private, secure, and confidential environment." 1 An ideal PHR would be lifelong and would integrate information from many sources, such as health care systems, pharmacies, and insurers, as well as family-entered information such as symptoms, health concerns, and self-monitoring findings. It would be controlled by the patient or family, and it would be private and secure. It would facilitate communication between families and providers, using functions such as secure e-mail. 1 No existing systems meet all of these criteria, partly because of the difficulty of merging data from multiple sources into a single data system. Privacy concerns and lack of a strong business case for PHRs have also hindered their development.In the early 1990s, many commercial vendors developed Internet-based, stand-alone systems. These systems required consumers to enter and to maintain their own health information. Although some of these systems remain, they have never become popular, likely because of the onerous nature of maintaining the information. Therefore, PHRs linked to electronic health records (EHRs) and other sources of health information have become the preferred model. 1,2 Recently, several large software makers announced their plans to develop secure PHRs that could link to physicians ' and hospitals' EHRs. 3,4 Once these systems overcome the technical challenges of integrating informatio...

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confidence: 99%

Pediatric Personal Health Records: Current Trends and Key Challenges

Britto

Wimberg

2009

Pediatrics

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“…Alguns trabalhos defendem que um RES deve ser desenvolvido para atender as características de um setor específico, de modo que possa abranger todas as funcionalidades requeridas. Spooner (2007), por exemplo, especifica uma determinada especialidade, detalhando funcionalidades de sistemas para pediatria.…”

Section: Metodologiaunclassified

Identificando propriedades essenciais de registros eletrônicos de saúde

Albergaria¹,

Bax²,

Prates³

et al. 2016

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Todo o conteúdo da Revista (incluindo-se instruções, política editorial e modelos) está sob uma licença Creative Commons Atribuição-NãoComercial-CompartilhaIgual 3.0 Não Adaptada.Ao serem publicados por esta Revista, os artigos são de livre uso em ambientes educacionais, de pesquisa e não comerciais, com atribuição de autoria obrigatória.Mais informações em http://ojs.c3sl.ufpr.br/ojs2/index.php/atoz/about/submissions#copyrightNotice. ResumoIntrodução: Inserido no desafio de possibilitar a interação de profissionais da saúde com prontuários eletrônicos baseados na Norma ISO 13606 permitindo a personalização de interface ao mesmo tempo que se preserva a estrutura e padronização dos Sistemas de Registros Eletrônicos de Saúde (S-RES), o presente recorte objetiva caracterizar propriedades essenciais de S-RES -flexibilidade, padronização e estrutura e facilidade de interação -analisando-se três destes sistemas. Método: Utilizou-se o método de Design Science Research que busca gerar conhecimento teórico a partir da resolução de um problema prático (identificado no contexto da investigação mais ampla). Mais especificamente, no objetivo explicitado neste recorte, efetivou-se uma revisão de literatura sobre os requisitos existentes e dificuldades dos usuários dos sistemas S-RES, seguida de um levantamento e caracterização das propriedades essenciais dos S-RES e do estabelecimento de critérios de análise. O método de inspeção completa a proposta metodológica, visto que as questões (que indicam os critérios) foram apresentadas a dois especialistas para a análise dos Sistemas. Resultados: No recorte proposto, as propriedades levantadas como essenciais dos sistemas foram caracterizadas e analisadas em três S-RES. Confirmou-se a importância das propriedades essenciais destes tipos de sistemas, ainda que verifique a dificuldade de serem atendidas em um mesmo sistema. Conclusão: Os desafios postos aos S-RES não são pontuais ou mesmo de um contexto de uso. Como trabalho futuro propõe-se a criação de um modelo de interface extensível de interface para sistemas de Registro Eletrônico de Saúde baseados na ISO 13606. Palavras-chave: Informática em Saúde; Registros eletrônicos de saúde; Interface humano-computador; Propriedades de sistemas informatizados Abstract Introduction: Inserted in the challenge of enabling the interaction of health professionals with electronic medical records -based on ISO 13606 -as well as allow them to customize interfaces (although preserving the structure and standardization of Electronic Health Records Systems (S-RES), the objective of this cutout paper is to characterize the essential properties of S-RES -flexibility, standardization and structure and ease of interaction -by analyzing three of these systems. Method: It was used the Design Science Research method that seeks to generate theoretical knowledge as solving a practical problem (identified in the context of a broader research). More specifically, the goal detailed in this cutout, demanded a literature review of the existing requirements and d...

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“…Por ejemplo, los niños tienen requerimientos especiales en una HCE relacionados con la dosificación de los medicamentos, así como necesidades específicas relacionadas con la evaluación de su crecimiento y desarrollo que la HCE debe facilitar. 1 Con el fin de estimular el diálogo entre los…”

Section: Pulmonary Function Testing In Preschool Children: From the Lunclassified